Y’all YETI for this?
April 15, 2024
After a long day of traveling across the country, we were greeted by smiling, familiar faces in the Portland, Oregon
Blog
When Copay Assistance Backfires on Patients
April 15, 2024
Julie Appleby, KFF Health News March 15, 2024 In early 2019, Jennifer Hepworth and her husband were stunned by a large
Vote for your favorite 2024 World Hemophilia Canvas!
April 11, 2024
To celebrate Bleeding Disorders Awareness Month and World Hemophilia Day, members of the WPBDF community were sent 4 x 4
“I wish more OB/GYNs would be more educated about bleeding disorders. My gynecologist told me to get a hysterectomy, not knowing I had a bleeding disorder. If he had known about my VWD, I wouldn’t have had to make that choice and get that procedure.”
March 29, 2024
Constance is diagnosed with von Willebrand Disease (VWD), and like many other women in the bleeding disorders community, did not
“We have struggled to be heard, but now is the time to speak up because they are starting to listen! The struggles were worth it, especially if I can advocate and prevent someone from going through all the pain and struggles that I have had to go through.”
March 27, 2024
At two years old, Cassie accidentally received her diagnosis of Type 1 von Willebrand Disease, severe, when she was scheduled
Travel Grant for NBDF’s 2024 BDC
March 22, 2024
Educational Grants are Available for NBDF’s 2024 Bleeding Disorders Conference The Western Pennsylvania Bleeding Disorders Foundation (WPBDF) is pleased to
“We do have symptoms, we are not going to be satisfied with, ‘Oh that’s your normal,’ anymore!”
March 21, 2024
Before Jessamyn received her bleeding disorder diagnosis, she had terrible, long, and miserable periods. Her family had a long history
WPBDF’s 2024 Academic Scholarship
March 12, 2024
Who is eligible for the WPBDF Scholarship? Any person or immediate family member of a person with hemophilia, von Willebrand Disease,
“I finally learned that I was not a problem, and that women do have hemophilia.”
March 7, 2024
Marisa has mild hemophilia A, but she didn’t receive her diagnosis until she was 31 years old. Growing up as
WPBDF is looking for a Summer 2024 Intern!
February 5, 2024
Program and Events Coordinator Summer 2024 Internship Summary Responsible for assisting in planning and managing WPBDF’s programs and fundraising initiatives; including the
Request a Review of Denied Health Insurance Claims
January 29, 2024
Did you know you can request a review of denied health insurance claims online? If your health plan has denied a
Volunteer
November 29, 2023
There are many meaningful ways for you to invest your time, creativity, and talents to help WPBDF operate efficiently and
WPBDF is looking for a Spring 2024 Intern!
October 27, 2023
Program and Events Coordinator Spring 2024 Internship Western Pennsylvania Bleeding Disorders Foundation Summary Responsible for assisting in planning and managing WPBDF’s programs and fundraising
Unite with 4 Rare Kids!
August 31, 2023
Team 4 Rare Kids is made up of the team captains, Christy and Jason, and their children, Seth, Spencer, Xavier,
34 Patient Advocacy Organizations Call on Payer Matrix to Stop Misidentifying as a Patient Advocacy Company
August 24, 2023
By Identifying as a ‘Leading Patient Advocate,’ Payer Matrix Puts Patients in Jeopardy New York, NY (August 24, 2023) – 34 patient