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X-WR-CALNAME:Western PA Bleeding Disorder Foundation
X-ORIGINAL-URL:https://wpbdf.org
X-WR-CALDESC:Events for Western PA Bleeding Disorder Foundation
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DTSTART;TZID=America/New_York:20260917T180000
DTEND;TZID=America/New_York:20260917T210000
DTSTAMP:20260825T131101Z
CREATED:20260825T131101Z
LAST-MODIFIED:20260825T131101Z
UID:41854-1789668000-1789678800@wpbdf.org
SUMMARY:Community Voices Program: Learn from Dr. Guy Young and two Peers about a different subcutaneous treatment for hemophilia A or B.
DESCRIPTION:Join Dr. Young for an engaging session along with two peers from the hemophilia community who will share their experience with a subcutaneous prophylactic treatment for people with Hemophilia A or B with and without inhibitors. You will learn how this treatment works\, its benefits and safety\, and how to get the right dose. \nTo RSVP:\nSend an email to info@wpbdf.org or call the Foundation office at\, 724-741-6160\, by Sunday\, September 13. Please let us know how many in your party will be attending and if you have any food allergies or dietary restrictions.
URL:https://wpbdf.org/event/community-voices-program-learn-from-dr-guy-young-and-two-peers-about-a-different-subcutaneous-treatment-for-hemophilia-a-or-b/
LOCATION:Grand Concourse\, 100 W Station Square Dr\, Pittsburgh\, PA\, 15219\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/png:https://wpbdf.org/wp-content/uploads/2026/08/community_voices_program_sanofi_9.17.26_PNG-scaled.png
ORGANIZER;CN="Kara Dornish":MAILTO:kara@wpcnhf.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260919T073000
DTEND;TZID=America/New_York:20260919T110000
DTSTAMP:20260218T155831Z
CREATED:20260218T155831Z
LAST-MODIFIED:20260218T155831Z
UID:38220-1789803000-1789815600@wpbdf.org
SUMMARY:Run for Their Lives 5k
DESCRIPTION:Lace up and join us for the 17th Annual Run for Their Lives 5K on September 19\, 2026! This timed charity fun run features an approximately 3-mile course through the beautiful\, tree-lined streets of North Park in northern Allegheny County\, just north of Pittsburgh\, PA. Your participation helps raise awareness of bleeding disorders and supports essential education and advocacy programs. \nOnline run registration will close at 6:00 PM on Friday\, September 18. In-person registration will begin at 7:30 AM on Saturday\, September 6!  \nDate: Saturday\, September 19\, 2026 \nLocation: North Park Swimming Pool Loop\, 303 Pearce Mill Rd\, Allison Park\, PA 15101 \nTime: Registration begins at 7:30 AM\, Race begins at 8:30 AM \nDistance: 5K (Approximately 3-mile course) \nEach participant will receive a technical race t-shirt (if registered by July 31\, 2026)\, goody bag\, and medal. The final day to ensure a shirt in your size is Friday\, July 31. \nThe registration fee schedule is as follows: \nEarly Bird Pricing – $25 now through May 31\, 2026 \nPre-Race Registration – $30 from June 1 – September 18\, 2026 \nRace Day Fee – $35 \nVirtual Run for Their Lives 5K \nOur hybrid run gives you the choice to join us in-person on September 19 in North Park or be a virtual runner and run one of your favorite courses! No matter where you run\, you’re still raising critical awareness and funds to support those affected by bleeding disorders in Western Pennsylvania! \nRegistration for virtual runners is $25 and includes a t-shirt (if registered by July 31\, 2026)\, race medal\, and goody bag. Virtual runners have the option to have their race packets/bags mailed to them for an additional fee or free pick-up at the WPBDF office located at: 433 State Avenue\, Suite #4\, Beaver PA 15009. \nOur office is open from 9 am – 4 pm. Please contact Jessica\, Race Director\, at jessica@wpbdf.org to coordinate packet pick-up. Stay tuned for more information about virtual race packet pick-up and shipping dates. \nCome for the Run – Stay for the Fun!\nFollowing the Run for Their Lives 5K\, join us for our Unite for Bleeding Disorders Walk to support the Western PA Bleeding Disorder Foundation. Enjoy snacks\, music\, raffles\, games\, and community! For more information about the walk and to register or donate please visit our Walk page at: https://bit.ly/wpbdf-unite \nQuestions?  Call Jessica at 724-741-6160 or e-mail jessica@wpbdf.org. \nRegister today: https://bit.ly/runfortheirlives2026
URL:https://wpbdf.org/event/run-for-their-lives-5k-2026/
LOCATION:North Park Swimming Pool\, S Ridge Drive\, Allison Park\, PA\, 15101\, United States
CATEGORIES:Fundraisers
ATTACH;FMTTYPE=image/png:https://wpbdf.org/wp-content/uploads/2026/02/run_2026_flyer_FINAL_png-scaled.png
ORGANIZER;CN="Jessica Lee":MAILTO:jessica@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260919T083000
DTEND;TZID=America/New_York:20260919T110000
DTSTAMP:20260218T155249Z
CREATED:20260218T155249Z
LAST-MODIFIED:20260218T155249Z
UID:38217-1789806600-1789815600@wpbdf.org
SUMMARY:Unite for Bleeding Disorders Walk
DESCRIPTION:UNITE for hope. \nUNITE for community. \nUNITE to make a difference.\nJoin us on Saturday\, September 19\, 2026\, at the North Park Swimming Pool for the 18th Annual Unite for Bleeding Disorders Walk! The Unite for Bleeding Disorders Walk brings our community together. It unites families with bleeding disorders and chapters with family\, friends\, neighbors\, and coworkers to support important programs and services to help people with Hemophilia\, von Willebrand Disease\, and other rare bleeding disorders in our community. \nEvent Details\nDate: September 19th\, 2026 \nStarts: 9:00 AM \nEnds: 11:30 AM \nCheck-In Time: 8:30 AM to 9:30 AM \nLocation: North Park Swimming Pool\, 901 South Ridge Drive\, McCandless\, PA 15044 \n_____________________________________________________________________________ \nThe funds generated from our Walk help the Western Pennsylvania Bleeding Disorders Foundation: \n\nPromote patient advocacy and blood safety for everyone\nSupport families in need by offering assistance with medical bills\, travel to and from the treatment center\, knee/elbow braces and other medical devices\nProvide medical ID jewelry to our members at no cost to them\nProvide local educational programming throughout the year\nProvide a support network to all our community members\nCreate and increase awareness about bleeding disorders\n\nYour support means continued education\, support groups\, and patient assistance for our members in need. By participating in our Unite Walk\, you are raising critical funds and awareness for our mission and showing each other the strength & unity of the Bleeding Disorders Community. \nSign up today! \n\nThank you for your interest in supporting the Unite for Bleeding Disorders Walk! Your participation helps us further our mission to discover better treatments and cures for bleeding disorders while preventing complications through education\, awareness\, advocacy\, and research. \nWe invite you to get involved today by starting a team\, joining an existing team\, or making a donation. Then plan to join us on Walk Day! Every dollar raised goes directly to our chapter and brings us closer to making a difference in the lives of those affected by bleeding disorders. \n\nThank you for your support!
URL:https://wpbdf.org/event/unite-for-bleeding-disorders-walk-2026/
LOCATION:North Park Swimming Pool\, S Ridge Drive\, Allison Park\, PA\, 15101\, United States
CATEGORIES:Fundraisers
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2026/02/2026-Unite-Walk-Flyer.jpg
ORGANIZER;CN="Jessica Lee":MAILTO:jessica@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261002T190000
DTEND;TZID=America/New_York:20261002T203000
DTSTAMP:20260825T132122Z
CREATED:20260825T131646Z
LAST-MODIFIED:20260825T132122Z
UID:41857-1790967600-1790973000@wpbdf.org
SUMMARY:New Parent Network: Every Family Belongs
DESCRIPTION:Join us for an opportunity to connect with other parents who have young children with a bleeding disorder in a supportive and\nunderstanding environment! \nDuring this session\, we’ll explore what it means to be part of the bleeding disorders community while recognizing that every family’s journey is unique. Some parents in our community have lived through times when treatment options were far more limited\, while today’s families have access to significant advances in care that have transformed outcomes and quality of life. Understanding these different perspectives can help you appreciate the progress that has been made while embracing your\nown family’s experience with confidence and hope. Whether your child has had few bleeding episodes or has faced more challenges\, your family’s story matters\, and you belong in this community. \nChildcare: Supervision and a meal for children will be provided in a nearby room. Siblings are included! \nOvernight Accommodations: One hotel room will be provided per family\, for Friday night. \nFall Program & Splash Lagoon: Stay for the Fall Program on Saturday and enjoy a day at Splash Lagoon Indoor\nWater Park! The Hilton Garden Inn and the Ambassador Banquet & Conference Center (location for the Fall Program) are connected–no need to go outside! Learn more at: https://wpbdf.org/event/fall-program-2026/ \nTo RSVP:\nThis event is specifically for families who have a child aged 7 and under who has a bleeding disorder. To register\, email rsvp@wpbdf.org or call the Foundation office (724) 741-6160. The cutoff date to reserve a hotel room is September 1. The cost of the hotel room will be covered by the Foundation. However\, you will be requested to provide a credit card upon hotel check-in\, to cover any incidental charges\, such as room service. \nWhen you register\, please provide the following information: your first and last name and the full name of other adult in your hotel room (if any)\, number of adults\, number of children and their ages\, and any food allergies or dietary restrictions.
URL:https://wpbdf.org/event/new-parent-network-every-family-belongs/
LOCATION:Hilton Garden Inn\, 2225 Downs Drive\, Erie\, PA\, 16509\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/png:https://wpbdf.org/wp-content/uploads/2026/08/npn_fall_10_2_2026_png_sponsors-scaled.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261003T100000
DTEND;TZID=America/New_York:20261003T130000
DTSTAMP:20260825T132059Z
CREATED:20260825T132059Z
LAST-MODIFIED:20260825T132059Z
UID:41862-1791021600-1791032400@wpbdf.org
SUMMARY:Fall Program
DESCRIPTION:Clinical research has played a vital role in advancing the treatment of bleeding disorders\, leading to safer\, more effective therapies and improved quality of life for individuals and families. This educational session will provide an overview of the clinical research process and help participants better understand what it means to take part in a research study. \nWe’ll cover key research terms as well as the different types and phases of clinical research. Participants will also learn why clinical studies are important\, how they contribute to future treatment advances\, and what protections are in place for research participants. \nThe session\, presented by Dana Ivanco\, CCRC\, Sr. Clinical Research Coordinator\, from the Hemophilia Center of Western PA\, will conclude with an overview of current and emerging clinical studies involving people with bleeding disorders\, providing insight into the ongoing research shaping the future of care. \nMeals: A buffet lunch will be served immediately following the program. A child’s meal will be reserved for children aged 12 and under. (If you’d like to request an exception\, please notify us when you register.) \nTransportation: Transportation assistance\, in the form of a gas card\, is available upon request. \nChildcare: Onsite childcare will be provided during the educational program. \nEnjoy the rest of the day at Splash Lagoon Indoor Water Park! Tickets to Splash Lagoon will be handed out to those who attend the Fall Program. Tickets will be valid from 2:00 PM to 9:00 PM on Saturday\, October 3rd. \nTo RSVP:\nThere is no cost to attend this event! To register\, send an email to rsvp@wpbdf.org or call the Foundation office at 724-741-6160 by September 18. \nPlease provide the following information: first and last name\, number of adults\, number of children and their ages\, any food allergies or dietary restrictions\, number of swimmers (people going in the water at Splash Lagoon) and number of observers (people going to the Water Park but not going in the water).
URL:https://wpbdf.org/event/fall-program-2026/
LOCATION:Ambassador Center\, 7794 Peach Street\, Erie\, PA\, 16509\, United States
ATTACH;FMTTYPE=image/png:https://wpbdf.org/wp-content/uploads/2026/08/fall_program_10_3_2026_PNG-scaled.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261024T170000
DTEND;TZID=America/New_York:20261024T230000
DTSTAMP:20260825T132750Z
CREATED:20260825T132750Z
LAST-MODIFIED:20260825T132750Z
UID:41866-1792861200-1792882800@wpbdf.org
SUMMARY:WPBDF's Purse Bingo
DESCRIPTION:Doors open at 5:00 pm\nEarly Bird Bingo starts at 5:30 pm\nPurse Bingo starts at 6:30 pm\nThe money raised at this event will stay 100% local to support the Western Pennsylvania Bleeding Disorders Foundation! \n  \nJoin the Western Pennsylvania Bleeding Disorders Foundation for our second annual Purse Bingo! Try for a chance to win one of our amazing brand name bags! Basket raffles\, 50/50 raffles\, and bonus games will be going on all evening\, offering even more chances to win big! \nCost per person is $25 if purchased in advance. Tickets will be available for $30 at the door.\nTickets include admission to the event\, a bingo booklet (includes 6 cards per round\, for 13 rounds) and access to the event mixer bar (guests 21+)! Seating is first come\, first serve. Table reservations are available! All attendees must be 16 years or older to play bingo and win prizes. Attendees younger than 18 must be accompanied by a legal parent or guardian in order to play bingo and win prizes. \nGet your tickets at: https://bit.ly/wpbdfpursebingo2026
URL:https://wpbdf.org/event/wpbdfs-purse-bingo-2026/
LOCATION:Vanport Volunteer Fire Department\, 435 Jefferson St\, Beaver\, 15009\, United States
CATEGORIES:Fundraisers
ATTACH;FMTTYPE=image/png:https://wpbdf.org/wp-content/uploads/2026/08/Purse_Bingo_flyer_PNG_FINAL-1-scaled.png
ORGANIZER;CN="Jessica Lee":MAILTO:jessica@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20261120
DTEND;VALUE=DATE:20261123
DTSTAMP:20260902T155639Z
CREATED:20260721T182009Z
LAST-MODIFIED:20260902T155639Z
UID:40784-1795132800-1795391999@wpbdf.org
SUMMARY:You Matter Women's Retreat
DESCRIPTION:More information coming soon! \nWant to be the first to know when registration opens? Sign up for email list at: https://bit.ly/womens-retreat-2026 \n  \nThank you to our Presenting Sponsors!\n \n \n  \n 
URL:https://wpbdf.org/event/you-matter-womens-retreat/
LOCATION:Hershey Lodge\, 325 University Drive\, Hershey\, PA\, 17033\, United States
ATTACH;FMTTYPE=image/png:https://wpbdf.org/wp-content/uploads/2026/07/Womens_Retreat_Save_the_date_PNG_final-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261205T110000
DTEND;TZID=America/New_York:20261205T133000
DTSTAMP:20260825T133837Z
CREATED:20260825T133837Z
LAST-MODIFIED:20260825T133837Z
UID:41870-1796468400-1796477400@wpbdf.org
SUMMARY:Winter Program
DESCRIPTION:Join us for a fun-filled day at the National Aviary!\nConnect with other members of the Western Pennsylvania Bleeding Disorders Foundation\, learn about the programs and services available to you\, and enjoy a day of family-friendly fun! \nWe’ll begin the day in the Garden Room\, where you can visit sponsor exhibits\, participate in games and activities\, and learn about the many ways WPBDF supports individuals and families in our bleeding disorders community. Enjoy a delicious lunch buffet before spending the afternoon exploring the aviary at your own pace. \nThis event is open to members of WPBDF and their immediate family members living in the same household. \nThere’s no cost to attend\, but registration is required. To register\, send an email to rsvp@wpbdf.org or call the Foundation\noffice at 724-741-6160 by Wednesday\, November 18. Please provide the following information: \n\nFirst and Last Name\nNumber of Adults\nNumber of Children and their ages\nAny food allergies or dietary restrictions\n\nAdmission to the Aviary is included! Transportation assistance\, in the form of a gas card\, is available upon request. \n 
URL:https://wpbdf.org/event/winter-program-2026/
LOCATION:National Aviary\, 700 Arch St\, Pittsburgh\, PA\, 15212\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/png:https://wpbdf.org/wp-content/uploads/2026/08/winter_program_decemner_5_2026_PNG-scaled.png
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