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X-WR-CALNAME:Western PA Bleeding Disorder Foundation
X-ORIGINAL-URL:https://wpbdf.org
X-WR-CALDESC:Events for Western PA Bleeding Disorder Foundation
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261002T190000
DTEND;TZID=America/New_York:20261002T203000
DTSTAMP:20260825T132122Z
CREATED:20260825T131646Z
LAST-MODIFIED:20260825T132122Z
UID:41857-1790967600-1790973000@wpbdf.org
SUMMARY:New Parent Network: Every Family Belongs
DESCRIPTION:Join us for an opportunity to connect with other parents who have young children with a bleeding disorder in a supportive and\nunderstanding environment! \nDuring this session\, we’ll explore what it means to be part of the bleeding disorders community while recognizing that every family’s journey is unique. Some parents in our community have lived through times when treatment options were far more limited\, while today’s families have access to significant advances in care that have transformed outcomes and quality of life. Understanding these different perspectives can help you appreciate the progress that has been made while embracing your\nown family’s experience with confidence and hope. Whether your child has had few bleeding episodes or has faced more challenges\, your family’s story matters\, and you belong in this community. \nChildcare: Supervision and a meal for children will be provided in a nearby room. Siblings are included! \nOvernight Accommodations: One hotel room will be provided per family\, for Friday night. \nFall Program & Splash Lagoon: Stay for the Fall Program on Saturday and enjoy a day at Splash Lagoon Indoor\nWater Park! The Hilton Garden Inn and the Ambassador Banquet & Conference Center (location for the Fall Program) are connected–no need to go outside! Learn more at: https://wpbdf.org/event/fall-program-2026/ \nTo RSVP:\nThis event is specifically for families who have a child aged 7 and under who has a bleeding disorder. To register\, email rsvp@wpbdf.org or call the Foundation office (724) 741-6160. The cutoff date to reserve a hotel room is September 1. The cost of the hotel room will be covered by the Foundation. However\, you will be requested to provide a credit card upon hotel check-in\, to cover any incidental charges\, such as room service. \nWhen you register\, please provide the following information: your first and last name and the full name of other adult in your hotel room (if any)\, number of adults\, number of children and their ages\, and any food allergies or dietary restrictions.
URL:https://wpbdf.org/event/new-parent-network-every-family-belongs/
LOCATION:Hilton Garden Inn\, 2225 Downs Drive\, Erie\, PA\, 16509\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/png:https://wpbdf.org/wp-content/uploads/2026/08/npn_fall_10_2_2026_png_sponsors-scaled.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260917T180000
DTEND;TZID=America/New_York:20260917T210000
DTSTAMP:20260825T131101Z
CREATED:20260825T131101Z
LAST-MODIFIED:20260825T131101Z
UID:41854-1789668000-1789678800@wpbdf.org
SUMMARY:Community Voices Program: Learn from Dr. Guy Young and two Peers about a different subcutaneous treatment for hemophilia A or B.
DESCRIPTION:Join Dr. Young for an engaging session along with two peers from the hemophilia community who will share their experience with a subcutaneous prophylactic treatment for people with Hemophilia A or B with and without inhibitors. You will learn how this treatment works\, its benefits and safety\, and how to get the right dose. \nTo RSVP:\nSend an email to info@wpbdf.org or call the Foundation office at\, 724-741-6160\, by Sunday\, September 13. Please let us know how many in your party will be attending and if you have any food allergies or dietary restrictions.
URL:https://wpbdf.org/event/community-voices-program-learn-from-dr-guy-young-and-two-peers-about-a-different-subcutaneous-treatment-for-hemophilia-a-or-b/
LOCATION:Grand Concourse\, 100 W Station Square Dr\, Pittsburgh\, PA\, 15219\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/png:https://wpbdf.org/wp-content/uploads/2026/08/community_voices_program_sanofi_9.17.26_PNG-scaled.png
ORGANIZER;CN="Kara Dornish":MAILTO:kara@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260822T100000
DTEND;TZID=America/New_York:20260822T140000
DTSTAMP:20260520T163019Z
CREATED:20260520T163019Z
LAST-MODIFIED:20260520T163019Z
UID:39513-1787392800-1787407200@wpbdf.org
SUMMARY:Regional Summer Education Day
DESCRIPTION:Join the Western PA and West Virginia Bleeding Disorders Foundations for a day of education\, connection\, and summer fun in the sun! \nThe day will begin with a light breakfast\, followed by sponsor exhibit tables and educational sessions focused on insurance\, participation in sports in the era of novel therapies\, and mental wellness and resilience. \nWe’ll then enjoy a buffet lunch together before attendees receive activity wristbands granting access to many of Oglebay Resort’s attractions\, including the outdoor pool\, zoo\, aerial challenge course\, mini golf\, and more. \nTransportation assistance is available upon request\, and a limited number of hotel rooms are available on Friday evening for guests traveling 150 miles or more. \nOn-site childcare will be provided during the educational programs. \nEmail rsvp@wpbdf.org or call the Foundation office at \n724-741-6160 by August 1. When registering\, please include the total number of attendees\, any food allergies or dietary restrictions\, the ages of any children attending\, and whether you are requesting transportation assistance or hotel accommodations.
URL:https://wpbdf.org/event/regional-summer-education-day-2/
LOCATION:Oglebay Resort\, 465 Lodge Drive\, Wheeling\, WV\, 26003\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/png:https://wpbdf.org/wp-content/uploads/2026/05/Regional.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260728T180000
DTEND;TZID=America/New_York:20260728T200000
DTSTAMP:20260401T165732Z
CREATED:20260401T165539Z
LAST-MODIFIED:20260401T165732Z
UID:38319-1785261600-1785268800@wpbdf.org
SUMMARY:Educational Session on Hemlibra!
DESCRIPTION:To register for this program\, please email rsvp@wpbdf.org or call the Foundation office at 724-741-6160. RSVP by July 23\, 2026.
URL:https://wpbdf.org/event/educational-session-on-hemlibra/
LOCATION:Juniper Grill\, 2030 Mackenzie Way Suite 800\, Cranberry Township\, PA\, 16066\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2026/04/LM26-1249_M-US-00003251v5.0-Its-A-Feeling.-If-You-Know-You-Know-Fireside-Chat-LIVE-Invite_Page_1.jpg
ORGANIZER;CN="Kara Dornish":MAILTO:kara@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260711
DTEND;VALUE=DATE:20260712
DTSTAMP:20260519T144004Z
CREATED:20260311T181444Z
LAST-MODIFIED:20260519T144004Z
UID:38268-1783728000-1783814399@wpbdf.org
SUMMARY:Annual Meeting & Erie Education Day
DESCRIPTION:Join us for a beautiful day on the bay in Erie\, PA! This year’s event features our annual meeting\, interactive vendor displays\, the official Walk Kick-off\, and lunch. We are also honored to host a special panel discussion with members of the bleeding disorders community\, who will reflect on our collective legacy and how life and care have evolved over the years. \nEach attendee will receive a $20 Wally Card to use at Waldameer Park after the program for rides\, games\, concessions\, and gifts! \nWe want to help make attendance possible for everyone! Transportation assistance is available for those who need it\, and limited hotel accommodations are available for attendees traveling 200 miles or more. Please request travel or hotel assistance during registration. \nTo register for this event\, email rsvp@wpbdf.org or call the Foundation office at 724-741-6160 by June 22. Please provide your party size\, any food allergies\, and the number of Wally Cards requested (limit 1 per family member in attendance).
URL:https://wpbdf.org/event/annual-meeting-erie-education-day/
LOCATION:Bayfront Convention Center\, 1 Sassafras Pier\, Erie\, PA\, 16507\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/png:https://wpbdf.org/wp-content/uploads/2026/03/annual_meeting_flyer_2026_FINAL_png-1-scaled.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260625T180000
DTEND;TZID=America/New_York:20260625T203000
DTSTAMP:20260427T194830Z
CREATED:20260427T194830Z
LAST-MODIFIED:20260427T194830Z
UID:38363-1782410400-1782419400@wpbdf.org
SUMMARY:Explore Sanofi’s treatment options for Hemophilia A and B!
DESCRIPTION:You’re invited to join us for an engaging presentation to learn more about Sanofi’s treatment options for Hemophilia A and B. This program will be hosted by Paul Brayshaw\, Community Relations and Education Manager at Sanofi. \nWhen:\nThursday\, June 25\, 2026\n6:00 pm – 8:30 pm\nWhere:\nBravo! Italian Kitchen\n250 W Bridge Street\nHomestead\, PA 15120\nTo register\, email rsvp@wpbdf.org or call the Foundation office at 724-741-6160 by Monday\, June 15. Please include any allergies or food restrictions.
URL:https://wpbdf.org/event/explore-sanofis-treatment-options-for-hemophilia-a-and-b/
LOCATION:Bravo! Italian Kitchen Homestead\, 250 W Bridge Street\, Homestead\, PA\, 15120\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/png:https://wpbdf.org/wp-content/uploads/2026/04/Sanofi_treatment_options_june_25_2026_PNG-scaled.png
ORGANIZER;CN="Kara Dornish":MAILTO:kara@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260612
DTEND;VALUE=DATE:20260615
DTSTAMP:20260401T163339Z
CREATED:20260401T163339Z
LAST-MODIFIED:20260401T163339Z
UID:38313-1781222400-1781481599@wpbdf.org
SUMMARY:Stay In Motion Education Weekend
DESCRIPTION:Stay In Motion Weekend is designed to educate and empower individuals and families living with bleeding disorders to embrace movement\, stay active\, and build habits that support joint health\, strength\, and overall well-being. Safe\, consistent activity is one of the most effective ways for individuals with bleeding disorders to protect their joints\, reduce stiffness\, improve mobility\, and support long-term physical and mental health. Participants will have the opportunity to take part in safe activities—such as a hike\, strength training with resistance bands\, and tai chi—according to their own abilities. Educational sessions will cover topics such as exercise and brain chemistry\, building healthy habits\, and eating healthy on a budget. \nStay In Motion Weekend Includes:\n\nTwo Night Hotel Stay\nMeals and Snacks\nActivities for Adults & Teens\nSupervision for Children\n\nThe only cost to attend this event is a $50 non-refundable registration fee\, per family (due at the time of registration). If the $50 registration fee and/or cost of transportation would present a hardship that would prevent you from attending\, you may apply for a scholarship. \nRegistration is limited to immediate family members living in the household with the person who has a bleeding disorder. \nAgenda*:\nFriday\, June 12 – Hotel check-in begins at 4:00 pm. Registration for the Stay in Motion Education Weekend will begin at 6:00 pm with exhibit displays from our sponsors. Dinner and an overview of the weekend will follow. \nSaturday\, June 13 – Breakfast and exhibit displays will begin at 8:00 am. Childcare will be available from 8:45 am to 4:30 pm. Programming will begin at 9:00 am and will feature a half-mile hike on a level\, paved trail (accessible for individuals with limited mobility and mobility devices). There will be an option to join an additional hike on a more challenging trail! \nLunch will be at 1:00 pm and offer another opportunity to speak with our sponsors at their exhibits. The afternoon will feature educational sessions about exercise and brain chemistry\, building healthy habits\, and eating healthy on a budget. You can then choose between different activities\, like exercise with resistance bands or yoga. Dinner will be served at 6:00 pm. After dinner\, you will be free to enjoy the resort on your own. \nSunday\, June 14 – Breakfast will begin at 8:00 am. Childcare will be available from 8:45 am to 11:00 am. Together\, we will learn and practice tai chi! Adventure Passes will be distributed and we encourage you to enjoy the rest of the day at the resort on your own! Hotel check-out will be at 11:00 am. \n*Agenda is subject to change\nRegistration Information:\nTo request a registration form\, send an email to rsvp@wpbdf.org or call 724-741-6160. Once approved\, you will receive a link to fill out your registration form online. \nThe $50 registration fee can be paid with a check\, money order\, or credit card. \nCompleted registration form (including all signed documents) and the registration fee (or scholarship application) must be received by April 30. \nCompleted registration forms and $50 registration fee (or scholarship application) must be received by April 30\, 2026.\nYou are encouraged to register early!  \nPlease note: Any family that has registered and no-showed Education Weekend in the past or no-showed multiple events in the last 18 months (without a medical reason) may be put on a waiting list.\n \n“I’m excited for this year’s Education Weekend! I look forward to spending the weekend outdoors and participating in all of the fun activities that are available at Seven Springs. We held our Young Adult Retreat here a few years ago and I really enjoyed the activities\, like paddle boarding and the outdoor swimming pool! If you are looking for ways to get involved in the community and learn about ways to support your physical health\, sign up today. You won’t regret it!” \nTori\, WPBDF Board of Directors
URL:https://wpbdf.org/event/stay-in-motion-education-weekend/
LOCATION:Seven Springs\, 777 Water Wheel Dr\, Seven Springs\, PA\, 15622\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/png:https://wpbdf.org/wp-content/uploads/2026/04/Screenshot-2026-04-01-121758.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260527T183000
DTEND;TZID=America/New_York:20260527T200000
DTSTAMP:20260422T143611Z
CREATED:20260422T143611Z
LAST-MODIFIED:20260422T143611Z
UID:38359-1779906600-1779912000@wpbdf.org
SUMMARY:Living with Hemophilia B: From Challenges to Hopeful Futures
DESCRIPTION:When: May 27\, 2026 | 6:30 PM\nWhere: Virtual on Zoom\nAre you experiencing challenges in your hemophilia B Care? Let’s talk about it. \nLiving with hemophilia B can present unique challenges. This program explores common roadblocks and invites you to share your hopes for the future of hemophilia B management. Are you ready to talk about it? Your voice matters. \nAttendees will receive a $15 DoorDash e-gift card (up to $45 per family) after attending the entire program. \nRegister online at: https://tinyurl.com/2kexvn5r \n 
URL:https://wpbdf.org/event/living-with-hemophilia-b-from-challenges-to-hopeful-futures/
LOCATION:Virtual
CATEGORIES:Programs
ATTACH;FMTTYPE=image/png:https://wpbdf.org/wp-content/uploads/2026/04/Living-with-Hemophilia-B-From-Challenges-to-Hopeful-Futures-1.png
ORGANIZER;CN="Kara Dornish":MAILTO:kara@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260417T180000
DTEND;TZID=America/New_York:20260417T200000
DTSTAMP:20260223T210125Z
CREATED:20260223T210125Z
LAST-MODIFIED:20260223T210125Z
UID:38233-1776448800-1776456000@wpbdf.org
SUMMARY:World Hemophilia Day - Pittsburgh
DESCRIPTION:This World Hemophilia Day\, we’re celebrating the power of a less limited mindset\, inspiring our community to redefine what’s possible and explore future possibilities. It’s a day to share stories\, make genuine connections\, and empower one another to go beyond perceived limits. \nReady to celebrate? RSVP to rsvp@wpbdf.org or call the Foundation office at 724-741-6160. Let us know the names of attendees and any dietary restrictions or food allergies in your group. \n 
URL:https://wpbdf.org/event/world-hemophilia-day-pittsburgh/
LOCATION:Monterey Bay Fish Grotto\, 1411 Grandview Ave\, Pittsburgh\, PA\, 15211\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/png:https://wpbdf.org/wp-content/uploads/2026/02/World_Hemophilia_Day_2026_Pittsburgh-scaled.png
ORGANIZER;CN="Kara Dornish":MAILTO:kara@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260328T090000
DTEND;TZID=America/New_York:20260328T120000
DTSTAMP:20260113T141149Z
CREATED:20260113T141149Z
LAST-MODIFIED:20260113T141149Z
UID:38156-1774688400-1774699200@wpbdf.org
SUMMARY:Learning & Laser Tag Youth Group Event
DESCRIPTION:Calling all kids ages 7–12! Join us for an exciting youth group event that combines an interactive educational program with an action-packed laser tag party—all in a private room just for our group.\nWhen: Saturday\, March 28\, 2026 | 9:00 AM – 12:00 PM \nWhere: Laser Storm Pittsburgh\, 7715 McKnight Rd\, Pittsburgh\, PA 15237 \nProgram: Speak Up\, Stay Safe!\nThrough games\, discussion\, and skill-building activities\, kids will learn how to communicate honestly about symptoms\, understand when it’s important to speak up\, and recognize the difference between being hurt and simply feeling nervous or uninterested. This engaging program helps build confidence\, safety\, and trust by teaching kids how to use their voice clearly and responsibly. \nThen… Let the Fun Begin!\nAfter the program\, kids will gear up for two games of laser tag\, plus enjoy arcade time\, popcorn\, pizza\, and drinks! Please note: We regret that we are unable to provide childcare for younger siblings. At least one parent or guardian must remain onsite during the event. \nRSVP Required:\nThis event is specifically for children ages 7–12 who either have a bleeding disorder or have a sibling with a bleeding disorder. \nTo register\, please email rsvp@wpbdf.org by March 20\, 2026\, and include: \n\nYour full name\nName and age of each child attending\nAny food allergies\n\nWe can’t wait for a morning of learning\, laughter\, and laser tag fun—don’t miss it!
URL:https://wpbdf.org/event/learning-laser-tag-youth-group-event/
LOCATION:Laser Storm Pittsburgh\, 7715 McKnight Rd\, Pittsburgh\, PA\, 15237\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/png:https://wpbdf.org/wp-content/uploads/2026/01/speak_up_stay_safe_png_FINAL-1-scaled.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260324T183000
DTEND;TZID=America/New_York:20260324T210000
DTSTAMP:20251219T210253Z
CREATED:20251219T210133Z
LAST-MODIFIED:20251219T210253Z
UID:38148-1774377000-1774386000@wpbdf.org
SUMMARY:Learn About the What\, Why\, and How Behind VONVENDI!
DESCRIPTION:When: Tuesday\, March 24\, 2026 at 6:30 pm \nWhere: Grand Concourse\, 100 W Station Square Drive\, Pittsburgh\, PA 15219 \nThe following topics will be covered during the program: \n\nThe underlying cause of von Willebrand disease (VWD).\nWhat VONVENDI is\, who it is for\, and how it works.\nHow to properly store\, prepare\, and administer VONVENDI.\n\nYou’ll also have the chance to engage with the speaker and ask questions about VWD and VONVENDI. \nThis program will be presented by Janet Martin\, Community Education Specialist. \nVONVENDI® has approved uses in adults and children with von Willebrand disease (VWD)\, an inherited bleeding disorder that makes it difficult to form blood clots. VONVENDI first received FDA approval for on-demand treatment and control of bleeding episodes in adults in 2015 and has 10 years of real-world use. \nVONVENDI is approved for 3 uses\, including: \n\nOn-demand treatment and control of bleeding episodes in adults and children\nPerioperative management of surgical bleeding in adults and children\nRoutine prophylaxis to reduce the frequency of bleeding episodes in adults\n\nTo RSVP\, email rsvp@wpbdf.org or call the Foundation office at 724-741-6160 by Tuesday\, March 17. Please include any allergies or food restrictions.
URL:https://wpbdf.org/event/learn-about-the-what-why-and-how-behind-vonvendi/
LOCATION:Grand Concourse\, 100 W Station Square Dr\, Pittsburgh\, PA\, 15219\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/png:https://wpbdf.org/wp-content/uploads/2025/12/vonvendi_03_24_26_FINAL_png.png
ORGANIZER;CN="Kara Dornish":MAILTO:kara@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260314T100000
DTEND;TZID=America/New_York:20260314T140000
DTSTAMP:20260123T203221Z
CREATED:20260123T202618Z
LAST-MODIFIED:20260123T203221Z
UID:38181-1773482400-1773496800@wpbdf.org
SUMMARY:Dismissed Movie Screening
DESCRIPTION:Join us for a meaningful and engaging afternoon featuring a screening of Dismissed\, followed by a guided discussion\, lunch\, and hands-on activity stations. After the film\, participants can rotate through interactive stations\, including: \n\nPacking period packs for distribution to school nurses across Pennsylvania\nCreating kindness cards\nCanvas painting\nMaking mini flags\nSharing your voice on the Dismissed Wall\n\nWe hope you will join us for this impactful event filled with learning\, creativity\, connection\, and advocacy! Childcare will be available! RSVP by Monday\, March 2 to rsvp@wpbdf.org or call 724-741-6160. Please be sure to include any allergies or food restrictions\, total number in your party\, and ages of children attending. Transportation assistance is available! \nThank you to Sanofi for sponsoring this event! \nAbout the Film:\nDismissed is a powerful documentary that follows five women living with hemophilia\, bringing to light their personal journeys and the systemic challenges women with bleeding disorders often face. Both educational and deeply moving\, Dismissed serves as a call to action for healthcare providers\, policymakers\, and communities to recognize and address the unique realities of women with bleeding disorders. The film has been widely praised for its focus on women’s health and its potential to inspire meaningful change.
URL:https://wpbdf.org/event/dismissed-movie-screening/
LOCATION:Sheraton Station Square\, 300 W Station Square Drive\, Pittsburgh\, PA\, 15219\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2026/01/dismissed_screening_flyer_jpg.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260221T120000
DTEND;TZID=America/New_York:20260221T140000
DTSTAMP:20251211T233917Z
CREATED:20251211T233917Z
LAST-MODIFIED:20251211T233917Z
UID:38137-1771675200-1771682400@wpbdf.org
SUMMARY:Lunch Program - Shared Decision Making
DESCRIPTION:To register\, email rsvp@wpbdf.org or call the Foundation office at 724-741-6160 by Thursday\, February 12.
URL:https://wpbdf.org/event/lunch-program-shared-decision-making/
LOCATION:Bravo! Italian Kitchen\, 211 Summit Park Dr\, Pittsburgh\, PA\, 15275\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2025/12/Pfize-Program-Shared-Decision-Making-2026.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260122T183000
DTEND;TZID=America/New_York:20260122T203000
DTSTAMP:20251029T184523Z
CREATED:20251029T184523Z
LAST-MODIFIED:20251029T184523Z
UID:38070-1769106600-1769113800@wpbdf.org
SUMMARY:Hympavzi - Understanding a Rebalancing Therapy Option for Hemophilia
DESCRIPTION:To RSVP\, email rsvp@wpbdf.org or call the Foundation office at 724-741-6160. Please include any allergies or food restrictions.
URL:https://wpbdf.org/event/hympavzi-understanding-a-rebalancing-therapy-option-for-hemophilia/
LOCATION:Grand Concourse\, 100 W Station Square Dr\, Pittsburgh\, PA\, 15219\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2025/10/Pfizer-Jan22-Branded.jpg
ORGANIZER;CN="Kara Dornish":MAILTO:kara@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251213T110000
DTEND;TZID=America/New_York:20251213T140000
DTSTAMP:20251010T173947Z
CREATED:20251010T173947Z
LAST-MODIFIED:20251010T173947Z
UID:38038-1765623600-1765634400@wpbdf.org
SUMMARY:Winter Program
DESCRIPTION:To register\, please email rsvp@wpbdf.org or call the Chapter office at 724-741-6160. Be sure to include the total number of attendees and the ages of any children attending. \nWe can’t wait to see you there!
URL:https://wpbdf.org/event/winter-program-2/
LOCATION:The Club at Shadow Lakes\, 2000 Beaver Lakes Blvd\, Aliquippa\, PA\, 15001\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2025/10/winter_program_12_13_2025_FINAL_jpg.jpg
ORGANIZER;CN="Kara Dornish":MAILTO:kara@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251116T140000
DTEND;TZID=America/New_York:20251116T153000
DTSTAMP:20250924T174819Z
CREATED:20250924T174819Z
LAST-MODIFIED:20250924T174819Z
UID:38017-1763301600-1763307000@wpbdf.org
SUMMARY:New Parent Network - Emotions\, Sensations:  Yours or Mine?  Supporting Your Child’s Unique Experience
DESCRIPTION:This event is open to families who have a child aged 0-7 who has a bleeding disorder and are members of the Western PA Bleeding Disorders Foundation (WPBDF) or patients of the Hemophilia Center of Western PA (HCWP). \nTo register\, send an email to rsvp@wpbdf.org or call the Foundation office at 724-741-6160\, by November 2. Registered families will receive a Zoom link to join the event. \nQuestions? Contact Janet Barone\, WPBDF (janet@wpbdf.org | 724-741-6160 Option 3) or Kathaleen Schnur\, HCWP (kschnur@vitalant.org | 412-209-7267).
URL:https://wpbdf.org/event/new-parent-network-emotions-sensations-yours-or-mine-supporting-your-childs-unique-experience/
LOCATION:PA
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2025/09/NPN_Emotions_11_16_2025.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20251114
DTEND;VALUE=DATE:20251117
DTSTAMP:20250922T211759Z
CREATED:20250922T211355Z
LAST-MODIFIED:20250922T211759Z
UID:38008-1763078400-1763337599@wpbdf.org
SUMMARY:Teen Retreat
DESCRIPTION:For questions\, please contact Janet Barone (janet@wpbdf.org / 724-741-6160) or Katharine Bush (kbush@vitalant.org / 412-209-7286). \n  \nTo register\, send an email to rsvp@wpbdf.org or call 724-741-6160 to request a registration form.
URL:https://wpbdf.org/event/teen-retreat-5/
LOCATION:Promise Camp & Retreat Center\, 227 Lance Road\, Clinton\, PA\, 15026\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2025/09/wpbdf_teen_reatreat_FINAL_2025-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251021T193000
DTEND;TZID=America/New_York:20251021T200000
DTSTAMP:20251016T215226Z
CREATED:20251016T215154Z
LAST-MODIFIED:20251016T215226Z
UID:38050-1761075000-1761076800@wpbdf.org
SUMMARY:Virtual Teen Group Meet Up
DESCRIPTION:Join us on Zoom! \nThis gathering is for TEENS ONLY! Middle school and high school students who have a bleeding diagnosis or are a teenage sibling of someone with a bleeding diagnosis and/or are involved with Camp Hot-to-Clot are invited to participate. \nTo register\, send an email to rsvp@wpbdf.org with your first and last name. \nA Zoom link will be sent to those who register. Please register no later than October 20.
URL:https://wpbdf.org/event/virtual-teen-group-meet-up/
LOCATION:PA
CATEGORIES:Programs
ATTACH;FMTTYPE=image/png:https://wpbdf.org/wp-content/uploads/2025/10/Teen-Group-Zoom_MeetUp_2025.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251004T100000
DTEND;TZID=America/New_York:20251004T130000
DTSTAMP:20250801T153239Z
CREATED:20250801T153239Z
LAST-MODIFIED:20250801T153239Z
UID:37935-1759572000-1759582800@wpbdf.org
SUMMARY:Fall Program
DESCRIPTION:To register\, please email rsvp@wpbdf.org or call the Chapter office at 724-741-6160. Be sure to include the total number of attendees and the ages of any children attending. \nWe can’t wait to see you there!
URL:https://wpbdf.org/event/fall-program-3/
LOCATION:Trinity Evangelical Lutheran Church\, 2500 Brandt School Road\, Wexford\, PA\, 15090\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2025/08/Fall-Program_2025.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250921
DTEND;VALUE=DATE:20250922
DTSTAMP:20250716T153108Z
CREATED:20250716T153108Z
LAST-MODIFIED:20250716T153108Z
UID:37918-1758412800-1758499199@wpbdf.org
SUMMARY:Game Day Program
DESCRIPTION:To register\, please email rsvp@wpbdf.org or call the Chapter office at 724-741-6160. Be sure to include the total number of attendees\, any food allergies\, and the ages of any children attending. \nWe can’t wait to see you there!
URL:https://wpbdf.org/event/game-day-program/
LOCATION:PNC Park\, 115 Federal Stret\, Pittsburgh\, PA\, 15212\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2025/07/Octapharma-Pirates-Program.jpg
ORGANIZER;CN="Kara Dornish":MAILTO:kara@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250916T183000
DTEND;TZID=America/New_York:20250916T200000
DTSTAMP:20250716T220254Z
CREATED:20250716T134755Z
LAST-MODIFIED:20250716T220254Z
UID:37914-1758047400-1758052800@wpbdf.org
SUMMARY:VWD Dinner Program
DESCRIPTION:This program will be taking place in the Board Room at the Grand Concourse on Tuesday\, September 16th at 6:30pm. \nTo register\, please email rsvp@wpbdf.org or call the Chapter office at 724-741-6160. Be sure to include the total number of attendees\, any food allergies\, and the ages of any children attending. \nWe can’t wait to see you there!
URL:https://wpbdf.org/event/vwd-dinner-program/
LOCATION:Grand Concourse\, 100 W Station Square Dr\, Pittsburgh\, PA\, 15219\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2025/07/Star-Therapeutics.jpg
ORGANIZER;CN="Kara Dornish":MAILTO:kara@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250809T100000
DTEND;TZID=America/New_York:20250809T140000
DTSTAMP:20250725T162128Z
CREATED:20250610T213442Z
LAST-MODIFIED:20250725T162128Z
UID:37863-1754733600-1754748000@wpbdf.org
SUMMARY:Regional Summer Education Day
DESCRIPTION:Join us Saturday\, August 9th at Oglebay Resort in Wheeling\, WV for a full day of learning and fun! \nOur day will kick off with an insightful presentation \n\nAdvocating for Your Care in the Emergency Room\, led by Dawn Rotellini from the National Bleeding Disorders Foundation.\n\nThen\, choose between two breakout sessions: \n\nBeyond Bleeds: Optimizing Joint Health in Adults with Bleeding Disorders\, presented by Clayton Kubrick\, Physical Therapist at the Hemophilia Center of Western PA\nNavigating School with a Bleeding Disorder\, presented by Maria Rohan\, Community Education Specialist at Takeda\n\nChildcare will be provided on site for your convenience. \nWe’ll take a break to enjoy a delicious buffet lunch together. After the sessions\, everyone will receive an activity wristband granting all-day access to Oglebay Resort’s outdoor pool\, zoo\, aerial challenge course\, mini golf\, and more. \nAdditional Information: \n\nTransportation assistance is available upon request.\nOvernight accommodations can be provided on Friday night for guests traveling 150 miles or more.\n\nTo register\, please email rsvp@wpbdf.org or call the Chapter office at 724-741-6160. Be sure to include the total number of attendees\, any food allergies\, and the ages of any children attending. \nWe can’t wait to see you there!
URL:https://wpbdf.org/event/regional-summer-education-day/
LOCATION:Oglebay Resort\, 465 Lodge Drive\, Wheeling\, WV\, 26003\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/png:https://wpbdf.org/wp-content/uploads/2025/06/Regional-Summer-Education-Day-4.png
ORGANIZER;CN="Kara Dornish":MAILTO:kara@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250516
DTEND;VALUE=DATE:20250519
DTSTAMP:20250128T184055Z
CREATED:20240724T174926Z
LAST-MODIFIED:20250128T184055Z
UID:36939-1747353600-1747612799@wpbdf.org
SUMMARY:Pennsylvania Bleeding Disorders Conference
DESCRIPTION:Registration is now open!\nJoin us for the inaugural Pennsylvania Bleeding Disorders Conference! Gather with other individuals and families living with bleeding disorders\, from across the state of Pennsylvania and surrounding areas. Hear from experts in the bleeding disorders field and learn more about your or your loved one’s bleeding disorder; meet others and grow your peer network; visit vendor booths and learn about the latest treatments and services. \nThe Conference Includes: \n\nEducation Sessions for Adults\nSupervision\, Education Sessions\, and Activities for Children\nDaycare for Infants and Young Children\nMeals and Snacks During the Conference\n2-Night Hotel Accommodations\n\nProgram & Activities:  \nThe weekend will include sessions for adults with bleeding disorders and parents of children with bleeding disorders. Fun\, educational sessions and activities will be provided for children\, based on age group. Daycare will be provided for children ages 0-6. \nProgram Topics Include: \n\nAging and Bleeding Disorders\nWomen with Bleeding Disorders\nTreatment for Men with Mild Diagnoses\nPediatric to Adult Clinic Transition\nChildren and Pain\nHemophilia\, Von Willebrand Disease\, Rare Factor Deficiencies\, Platelet Disorders\, Bleeding of Unknown Cause\nAnd more!\n\nThe conference will begin the evening of Friday\, May 16 and conclude by noon on Sunday\, May 18. An optional\, pre-conference program for Advocacy Ambassadors will be offered on Friday afternoon. \nAll registered persons are expected to participate in meal programs and education sessions for the duration of the conference. Children will be enrolled in programs and activities\, based on age. \nThe schedule is as follows:* \nFriday\, May 16 – Check-in for PABDC will begin at 4:00 pm and the Opening Session and dinner will begin at 6:00 pm. An optional pre-conference program for those interested in becoming an Advocacy Ambassador\, will begin at 1:00 pm. \nSaturday\, May 17 – Breakfast will begin at 7:30 am\, followed by education sessions. Lunch will be included. A reception with light appetizers will take place from 5:00-6:30 pm. After the reception\, you will be free to enjoy the resort on your own. Dinner will be on your own. \nSunday\, May 18 – Breakfast will begin at 7:30 am\, followed by program sessions. The event will conclude by noon. No lunch will be provided. \n*Please note\, times subject to change.\nRegistration Information:  \nTo request a registration form\, send an email to rsvp@wpbdf.org or call 724-741-6160. Once approved\, you will receive a link to fill out your registration form online. \nThe only cost to attend this event is a $50 non-refundable registration fee\, per family (due at time of registration). If the $50 registration fee and/or cost of transportation would present a hardship that would prevent you from attending\, you may apply for a scholarship. \nThe $50 registration fee can be paid with a check\, money order\, or credit card. Registration approval and payment instructions will be emailed to you after your registration form has been reviewed by WPBDF. \nThe deadline to request a registration form is March 13\, 2025. Completed registration form (including all signed documents) and the $50 registration fee (or scholarship request) must be received by March 15\, 2025. \nIf you do not have access to the online registration form and need a printed copy mailed to you\, you must request the registration form no later than March 3\, 2025. \nThis event is open to members of the Western or Eastern PA Bleeding Disorders Foundations or patients of one of the seven HTCs in PA. Registration is limited to immediate family members living in the household with the person who has a bleeding disorder.\nPlease note: Any family that has no-showed multiple events in the last 18 months (without a medical reason) may be placed on a waiting list. Please note: Any family that has no-showed multiple events in the last 18 months (without a medical reason) may be placed on a waiting list. \n 
URL:https://wpbdf.org/event/pennsylvania-bleeding-disorders-conference/
LOCATION:Hershey Lodge\, 325 University Drive\, Hershey\, PA\, 17033\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/png:https://wpbdf.org/wp-content/uploads/2024/07/PABDC_Vert.png
ORGANIZER;CN="Kara Dornish":MAILTO:kara@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250410T183000
DTEND;TZID=America/New_York:20250410T200000
DTSTAMP:20250325T145858Z
CREATED:20250325T145858Z
LAST-MODIFIED:20250325T145858Z
UID:37588-1744309800-1744315200@wpbdf.org
SUMMARY:Family Connection: A dinner program with WPBDF
DESCRIPTION:Better communication as a family living with a bleeding disorder is possible. Topics covered in this overview include learning to manage care\, communication outside of the immediate family\, use of social media\, and disclosure at work and school. \nTo RSVP\, email rsvp@wpbdf.org or call the Foundation office at 724-741-6160. Please include any allergies or food restrictions.
URL:https://wpbdf.org/event/family-connection-a-dinner-program-with-wpbdf/
LOCATION:Grand Concourse\, 100 W Station Square Dr\, Pittsburgh\, PA\, 15219\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2025/03/family_connection_program_FINAL.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250301
DTEND;VALUE=DATE:20250323
DTSTAMP:20250214T195454Z
CREATED:20250214T191934Z
LAST-MODIFIED:20250214T195454Z
UID:37519-1740787200-1742687999@wpbdf.org
SUMMARY:WPBDF Canvas Collage Project
DESCRIPTION:The Western Pennsylvania Bleeding Disorders Foundation invites you to participate in a special activity for Bleeding Disorders Awareness Month! We are asking our members and families to paint a 4” x 4” mini canvas to go along with World Hemophilia Day’s theme – Access for All: Women and girls bleed too! This collage will hang in the Foundation office! \nWe will start shipping the canvas squares on March 1. A stamped addressed return envelope will be included. Please send your decorated canvas back to the Foundation by Friday\, April 11\, 2025. Our goal is to showcase the completed project on World Hemophilia Day\, April 17\, 2025. \nAll the canvas squares will be shared on social media on April 14. Community members are encouraged to vote on their favorite ones! The canvas with the most votes will win four reserved seats to a 2025 Washington Wild Things game! \nRSVP: This project is open to all members of WPBDF. Supplies will be sent to those who register. To register\, call the Foundation at 724-741-6160 or email rsvp@wpbdf.org\, by Friday\, March 21\, to give us your name\, mailing address\, number of people participating\, and to let us know if you will need paint and/or paint brushes to be sent with your canvas.
URL:https://wpbdf.org/event/wpbdf-canvas-collage-project/
LOCATION:PA
CATEGORIES:Advocacy,Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2025/02/WHD-Canvas-Collage-2025-1-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250204T180000
DTEND;TZID=America/New_York:20250204T210000
DTSTAMP:20241226T172842Z
CREATED:20241226T151952Z
LAST-MODIFIED:20241226T172842Z
UID:37418-1738692000-1738702800@wpbdf.org
SUMMARY:Women's Group - Galentine's Event
DESCRIPTION:This event is open to women of the Foundation who either have a bleeding disorder or are a spouse/partner or parent/guardian of someone with a bleeding disorder. There is no cost to attend. Register by Monday\, January 27\, by sending an email to rsvp@wpbdf.org or call the WPBDF office at 724-741-6160. \n  \nAfter you register\, you will receive a link to pick your project. \nYou will be able to choose from the following projects:
URL:https://wpbdf.org/event/womens-group-galentines-event/
LOCATION:AR Workshop Gibsonia\, 5328 William Flinn Highway\, Gibsonia\, PA\, 15044\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/png:https://wpbdf.org/wp-content/uploads/2024/12/Galentines-Event-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250130T180000
DTEND;TZID=America/New_York:20250130T213000
DTSTAMP:20241213T185448Z
CREATED:20241031T193951Z
LAST-MODIFIED:20241213T185448Z
UID:37362-1738260000-1738272600@wpbdf.org
SUMMARY:Von Willebrand Disease Educational Dinner Program
DESCRIPTION:Join us for a dinner program and learn about von Willebrand Disease (VWD) with Dr. Claudio Sandoval! Dr. Sandoval will provide an overview of VWD for patients and their caregivers and he will also address some issues specific to females\, such as low iron deficiency and postpartum hemorrhaging. There will be time for questions and answers. \nDinner is included and there’s no cost to attend. To register\, send an email to rsvp@wpbdf.org or call 724-741-6160\, by January 23\, 2025. Please include the number of people attending and let us know if there are any food allergies or dietary requirements. \nThank you to our sponsors\, Octapharma and InfuCareRX!
URL:https://wpbdf.org/event/von-willebrand-disease-educational-dinner-program/
LOCATION:Bravo! Italian Kitchen\, 211 Summit Park Dr\, Pittsburgh\, PA\, 15275\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/10/vwd_program_flyer-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250111T110000
DTEND;TZID=America/New_York:20250111T130000
DTSTAMP:20241018T131051Z
CREATED:20241018T131051Z
LAST-MODIFIED:20241018T131051Z
UID:37324-1736593200-1736600400@wpbdf.org
SUMMARY:WPBDF's Youth Group: Being Different Belonging Together
DESCRIPTION:Bullying has become a major public health issue\, and it often starts at a very young age. Through a creative process we will discuss this topic and you will be able to address questions\, feelings\, and concerns you might have. You will receive helpful tips on how to navigate difficult situations and come up with creative solutions for creating a safe environment. This program will be presented by Kathaleen Schnur\, LCSW\, from the Hemophilia Center of Western PA. \nThis event is specifically for children aged 7-12 who either have a bleeding disorder or are the sibling of someone with a bleeding disorder. Immediate family members living in the household are welcome. Childcare for younger siblings may be available in a separate room\, during the program. Siblings who are interested and able to sit quietly through a class are welcome to participate in the program with their brother/sister; otherwise\, we encourage use of childcare provided. \nTickets to the Science Center will be included for you and your family to enjoy the Science Center after the program! To register\, send an email to rsvp@wpbdf.org or call 724-741-6160 by December 27. Include: total number of people in your party\, your full name\, names and ages of all children attending the program\, names and ages of children you would like to request child care for during the program.
URL:https://wpbdf.org/event/wpbdfs-youth-group-being-different-belonging-together/
LOCATION:Carnegie Science Center\, 1 Allegheny Avenue\, Pittsburgh\, PA\, 15212\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/10/youth_group_flyer_FINAL.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241207T100000
DTEND;TZID=America/New_York:20241207T130000
DTSTAMP:20240705T133107Z
CREATED:20240705T133107Z
LAST-MODIFIED:20240705T133107Z
UID:36877-1733565600-1733576400@wpbdf.org
SUMMARY:Winter Program
DESCRIPTION:Please be sure to RSVP by November 25\, at rsvp@wpbdf.org or call the Foundation office at 724-741-6160. Please include the number of people who will be attending\, ages of children attending\, and any allergies or dietary restrictions.
URL:https://wpbdf.org/event/winter-program/
LOCATION:Dave & Buster’s\, 180 E Waterfront Drive\, Homestead\, PA\, 15120\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/07/2024-Winter-Program-Flyer.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241106T180000
DTEND;TZID=America/New_York:20241106T200000
DTSTAMP:20240827T211015Z
CREATED:20240827T210650Z
LAST-MODIFIED:20240827T211015Z
UID:37045-1730916000-1730923200@wpbdf.org
SUMMARY:Insurance Program
DESCRIPTION:Please RSVP by Monday\, October 28 to: rsvp@wpbdf.org or 724-741-6160. \nPlease be sure to include the total number of adults and children attending and any food allergies or dietary restrictions.
URL:https://wpbdf.org/event/insurance-program-2/
LOCATION:Bravo! Italian Kitchen\, 211 Summit Park Dr\, Pittsburgh\, PA\, 15275\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/08/Insurance-Program.jpg
END:VEVENT
END:VCALENDAR