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X-WR-CALNAME:Western PA Bleeding Disorder Foundation
X-ORIGINAL-URL:https://wpbdf.org
X-WR-CALDESC:Events for Western PA Bleeding Disorder Foundation
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20251114
DTEND;VALUE=DATE:20251117
DTSTAMP:20260727T120855
CREATED:20250922T211355Z
LAST-MODIFIED:20250922T211759Z
UID:38008-1763078400-1763337599@wpbdf.org
SUMMARY:Teen Retreat
DESCRIPTION:For questions\, please contact Janet Barone (janet@wpbdf.org / 724-741-6160) or Katharine Bush (kbush@vitalant.org / 412-209-7286). \n  \nTo register\, send an email to rsvp@wpbdf.org or call 724-741-6160 to request a registration form.
URL:https://wpbdf.org/event/teen-retreat-5/
LOCATION:Promise Camp & Retreat Center\, 227 Lance Road\, Clinton\, PA\, 15026\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2025/09/wpbdf_teen_reatreat_FINAL_2025-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251021T193000
DTEND;TZID=America/New_York:20251021T200000
DTSTAMP:20260727T120855
CREATED:20251016T215154Z
LAST-MODIFIED:20251016T215226Z
UID:38050-1761075000-1761076800@wpbdf.org
SUMMARY:Virtual Teen Group Meet Up
DESCRIPTION:Join us on Zoom! \nThis gathering is for TEENS ONLY! Middle school and high school students who have a bleeding diagnosis or are a teenage sibling of someone with a bleeding diagnosis and/or are involved with Camp Hot-to-Clot are invited to participate. \nTo register\, send an email to rsvp@wpbdf.org with your first and last name. \nA Zoom link will be sent to those who register. Please register no later than October 20.
URL:https://wpbdf.org/event/virtual-teen-group-meet-up/
CATEGORIES:Programs
ATTACH;FMTTYPE=image/png:https://wpbdf.org/wp-content/uploads/2025/10/Teen-Group-Zoom_MeetUp_2025.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251004T100000
DTEND;TZID=America/New_York:20251004T130000
DTSTAMP:20260727T120855
CREATED:20250801T153239Z
LAST-MODIFIED:20250801T153239Z
UID:37935-1759572000-1759582800@wpbdf.org
SUMMARY:Fall Program
DESCRIPTION:To register\, please email rsvp@wpbdf.org or call the Chapter office at 724-741-6160. Be sure to include the total number of attendees and the ages of any children attending. \nWe can’t wait to see you there!
URL:https://wpbdf.org/event/fall-program-3/
LOCATION:Trinity Evangelical Lutheran Church\, 2500 Brandt School Road\, Wexford\, PA\, 15090\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2025/08/Fall-Program_2025.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250921
DTEND;VALUE=DATE:20250922
DTSTAMP:20260727T120855
CREATED:20250716T153108Z
LAST-MODIFIED:20250716T153108Z
UID:37918-1758412800-1758499199@wpbdf.org
SUMMARY:Game Day Program
DESCRIPTION:To register\, please email rsvp@wpbdf.org or call the Chapter office at 724-741-6160. Be sure to include the total number of attendees\, any food allergies\, and the ages of any children attending. \nWe can’t wait to see you there!
URL:https://wpbdf.org/event/game-day-program/
LOCATION:PNC Park\, 115 Federal Stret\, Pittsburgh\, PA\, 15212\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2025/07/Octapharma-Pirates-Program.jpg
ORGANIZER;CN="Kara Dornish":MAILTO:kara@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250916T183000
DTEND;TZID=America/New_York:20250916T200000
DTSTAMP:20260727T120855
CREATED:20250716T134755Z
LAST-MODIFIED:20250716T220254Z
UID:37914-1758047400-1758052800@wpbdf.org
SUMMARY:VWD Dinner Program
DESCRIPTION:This program will be taking place in the Board Room at the Grand Concourse on Tuesday\, September 16th at 6:30pm. \nTo register\, please email rsvp@wpbdf.org or call the Chapter office at 724-741-6160. Be sure to include the total number of attendees\, any food allergies\, and the ages of any children attending. \nWe can’t wait to see you there!
URL:https://wpbdf.org/event/vwd-dinner-program/
LOCATION:Grand Concourse\, 100 W Station Square Dr\, Pittsburgh\, PA\, 15219\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2025/07/Star-Therapeutics.jpg
ORGANIZER;CN="Kara Dornish":MAILTO:kara@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250809T100000
DTEND;TZID=America/New_York:20250809T140000
DTSTAMP:20260727T120855
CREATED:20250610T213442Z
LAST-MODIFIED:20250725T162128Z
UID:37863-1754733600-1754748000@wpbdf.org
SUMMARY:Regional Summer Education Day
DESCRIPTION:Join us Saturday\, August 9th at Oglebay Resort in Wheeling\, WV for a full day of learning and fun! \nOur day will kick off with an insightful presentation \n\nAdvocating for Your Care in the Emergency Room\, led by Dawn Rotellini from the National Bleeding Disorders Foundation.\n\nThen\, choose between two breakout sessions: \n\nBeyond Bleeds: Optimizing Joint Health in Adults with Bleeding Disorders\, presented by Clayton Kubrick\, Physical Therapist at the Hemophilia Center of Western PA\nNavigating School with a Bleeding Disorder\, presented by Maria Rohan\, Community Education Specialist at Takeda\n\nChildcare will be provided on site for your convenience. \nWe’ll take a break to enjoy a delicious buffet lunch together. After the sessions\, everyone will receive an activity wristband granting all-day access to Oglebay Resort’s outdoor pool\, zoo\, aerial challenge course\, mini golf\, and more. \nAdditional Information: \n\nTransportation assistance is available upon request.\nOvernight accommodations can be provided on Friday night for guests traveling 150 miles or more.\n\nTo register\, please email rsvp@wpbdf.org or call the Chapter office at 724-741-6160. Be sure to include the total number of attendees\, any food allergies\, and the ages of any children attending. \nWe can’t wait to see you there!
URL:https://wpbdf.org/event/regional-summer-education-day/
LOCATION:Oglebay Resort\, 465 Lodge Drive\, Wheeling\, WV\, 26003\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/png:https://wpbdf.org/wp-content/uploads/2025/06/Regional-Summer-Education-Day-4.png
ORGANIZER;CN="Kara Dornish":MAILTO:kara@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250516
DTEND;VALUE=DATE:20250519
DTSTAMP:20260727T120855
CREATED:20240724T174926Z
LAST-MODIFIED:20250128T184055Z
UID:36939-1747353600-1747612799@wpbdf.org
SUMMARY:Pennsylvania Bleeding Disorders Conference
DESCRIPTION:Registration is now open!\nJoin us for the inaugural Pennsylvania Bleeding Disorders Conference! Gather with other individuals and families living with bleeding disorders\, from across the state of Pennsylvania and surrounding areas. Hear from experts in the bleeding disorders field and learn more about your or your loved one’s bleeding disorder; meet others and grow your peer network; visit vendor booths and learn about the latest treatments and services. \nThe Conference Includes: \n\nEducation Sessions for Adults\nSupervision\, Education Sessions\, and Activities for Children\nDaycare for Infants and Young Children\nMeals and Snacks During the Conference\n2-Night Hotel Accommodations\n\nProgram & Activities:  \nThe weekend will include sessions for adults with bleeding disorders and parents of children with bleeding disorders. Fun\, educational sessions and activities will be provided for children\, based on age group. Daycare will be provided for children ages 0-6. \nProgram Topics Include: \n\nAging and Bleeding Disorders\nWomen with Bleeding Disorders\nTreatment for Men with Mild Diagnoses\nPediatric to Adult Clinic Transition\nChildren and Pain\nHemophilia\, Von Willebrand Disease\, Rare Factor Deficiencies\, Platelet Disorders\, Bleeding of Unknown Cause\nAnd more!\n\nThe conference will begin the evening of Friday\, May 16 and conclude by noon on Sunday\, May 18. An optional\, pre-conference program for Advocacy Ambassadors will be offered on Friday afternoon. \nAll registered persons are expected to participate in meal programs and education sessions for the duration of the conference. Children will be enrolled in programs and activities\, based on age. \nThe schedule is as follows:* \nFriday\, May 16 – Check-in for PABDC will begin at 4:00 pm and the Opening Session and dinner will begin at 6:00 pm. An optional pre-conference program for those interested in becoming an Advocacy Ambassador\, will begin at 1:00 pm. \nSaturday\, May 17 – Breakfast will begin at 7:30 am\, followed by education sessions. Lunch will be included. A reception with light appetizers will take place from 5:00-6:30 pm. After the reception\, you will be free to enjoy the resort on your own. Dinner will be on your own. \nSunday\, May 18 – Breakfast will begin at 7:30 am\, followed by program sessions. The event will conclude by noon. No lunch will be provided. \n*Please note\, times subject to change.\nRegistration Information:  \nTo request a registration form\, send an email to rsvp@wpbdf.org or call 724-741-6160. Once approved\, you will receive a link to fill out your registration form online. \nThe only cost to attend this event is a $50 non-refundable registration fee\, per family (due at time of registration). If the $50 registration fee and/or cost of transportation would present a hardship that would prevent you from attending\, you may apply for a scholarship. \nThe $50 registration fee can be paid with a check\, money order\, or credit card. Registration approval and payment instructions will be emailed to you after your registration form has been reviewed by WPBDF. \nThe deadline to request a registration form is March 13\, 2025. Completed registration form (including all signed documents) and the $50 registration fee (or scholarship request) must be received by March 15\, 2025. \nIf you do not have access to the online registration form and need a printed copy mailed to you\, you must request the registration form no later than March 3\, 2025. \nThis event is open to members of the Western or Eastern PA Bleeding Disorders Foundations or patients of one of the seven HTCs in PA. Registration is limited to immediate family members living in the household with the person who has a bleeding disorder.\nPlease note: Any family that has no-showed multiple events in the last 18 months (without a medical reason) may be placed on a waiting list. Please note: Any family that has no-showed multiple events in the last 18 months (without a medical reason) may be placed on a waiting list. \n 
URL:https://wpbdf.org/event/pennsylvania-bleeding-disorders-conference/
LOCATION:Hershey Lodge\, 325 University Drive\, Hershey\, PA\, 17033\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/png:https://wpbdf.org/wp-content/uploads/2024/07/PABDC_Vert.png
ORGANIZER;CN="Kara Dornish":MAILTO:kara@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250410T183000
DTEND;TZID=America/New_York:20250410T200000
DTSTAMP:20260727T120855
CREATED:20250325T145858Z
LAST-MODIFIED:20250325T145858Z
UID:37588-1744309800-1744315200@wpbdf.org
SUMMARY:Family Connection: A dinner program with WPBDF
DESCRIPTION:Better communication as a family living with a bleeding disorder is possible. Topics covered in this overview include learning to manage care\, communication outside of the immediate family\, use of social media\, and disclosure at work and school. \nTo RSVP\, email rsvp@wpbdf.org or call the Foundation office at 724-741-6160. Please include any allergies or food restrictions.
URL:https://wpbdf.org/event/family-connection-a-dinner-program-with-wpbdf/
LOCATION:Grand Concourse\, 100 W Station Square Dr\, Pittsburgh\, PA\, 15219\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2025/03/family_connection_program_FINAL.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250301
DTEND;VALUE=DATE:20250323
DTSTAMP:20260727T120855
CREATED:20250214T191934Z
LAST-MODIFIED:20250214T195454Z
UID:37519-1740787200-1742687999@wpbdf.org
SUMMARY:WPBDF Canvas Collage Project
DESCRIPTION:The Western Pennsylvania Bleeding Disorders Foundation invites you to participate in a special activity for Bleeding Disorders Awareness Month! We are asking our members and families to paint a 4” x 4” mini canvas to go along with World Hemophilia Day’s theme – Access for All: Women and girls bleed too! This collage will hang in the Foundation office! \nWe will start shipping the canvas squares on March 1. A stamped addressed return envelope will be included. Please send your decorated canvas back to the Foundation by Friday\, April 11\, 2025. Our goal is to showcase the completed project on World Hemophilia Day\, April 17\, 2025. \nAll the canvas squares will be shared on social media on April 14. Community members are encouraged to vote on their favorite ones! The canvas with the most votes will win four reserved seats to a 2025 Washington Wild Things game! \nRSVP: This project is open to all members of WPBDF. Supplies will be sent to those who register. To register\, call the Foundation at 724-741-6160 or email rsvp@wpbdf.org\, by Friday\, March 21\, to give us your name\, mailing address\, number of people participating\, and to let us know if you will need paint and/or paint brushes to be sent with your canvas.
URL:https://wpbdf.org/event/wpbdf-canvas-collage-project/
CATEGORIES:Advocacy,Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2025/02/WHD-Canvas-Collage-2025-1-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250204T180000
DTEND;TZID=America/New_York:20250204T210000
DTSTAMP:20260727T120855
CREATED:20241226T151952Z
LAST-MODIFIED:20241226T172842Z
UID:37418-1738692000-1738702800@wpbdf.org
SUMMARY:Women's Group - Galentine's Event
DESCRIPTION:This event is open to women of the Foundation who either have a bleeding disorder or are a spouse/partner or parent/guardian of someone with a bleeding disorder. There is no cost to attend. Register by Monday\, January 27\, by sending an email to rsvp@wpbdf.org or call the WPBDF office at 724-741-6160. \n  \nAfter you register\, you will receive a link to pick your project. \nYou will be able to choose from the following projects:
URL:https://wpbdf.org/event/womens-group-galentines-event/
LOCATION:AR Workshop Gibsonia\, 5328 William Flinn Highway\, Gibsonia\, PA\, 15044\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/png:https://wpbdf.org/wp-content/uploads/2024/12/Galentines-Event-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250130T180000
DTEND;TZID=America/New_York:20250130T213000
DTSTAMP:20260727T120855
CREATED:20241031T193951Z
LAST-MODIFIED:20241213T185448Z
UID:37362-1738260000-1738272600@wpbdf.org
SUMMARY:Von Willebrand Disease Educational Dinner Program
DESCRIPTION:Join us for a dinner program and learn about von Willebrand Disease (VWD) with Dr. Claudio Sandoval! Dr. Sandoval will provide an overview of VWD for patients and their caregivers and he will also address some issues specific to females\, such as low iron deficiency and postpartum hemorrhaging. There will be time for questions and answers. \nDinner is included and there’s no cost to attend. To register\, send an email to rsvp@wpbdf.org or call 724-741-6160\, by January 23\, 2025. Please include the number of people attending and let us know if there are any food allergies or dietary requirements. \nThank you to our sponsors\, Octapharma and InfuCareRX!
URL:https://wpbdf.org/event/von-willebrand-disease-educational-dinner-program/
LOCATION:Bravo! Italian Kitchen\, 211 Summit Park Dr\, Pittsburgh\, PA\, 15275\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/10/vwd_program_flyer-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250111T110000
DTEND;TZID=America/New_York:20250111T130000
DTSTAMP:20260727T120855
CREATED:20241018T131051Z
LAST-MODIFIED:20241018T131051Z
UID:37324-1736593200-1736600400@wpbdf.org
SUMMARY:WPBDF's Youth Group: Being Different Belonging Together
DESCRIPTION:Bullying has become a major public health issue\, and it often starts at a very young age. Through a creative process we will discuss this topic and you will be able to address questions\, feelings\, and concerns you might have. You will receive helpful tips on how to navigate difficult situations and come up with creative solutions for creating a safe environment. This program will be presented by Kathaleen Schnur\, LCSW\, from the Hemophilia Center of Western PA. \nThis event is specifically for children aged 7-12 who either have a bleeding disorder or are the sibling of someone with a bleeding disorder. Immediate family members living in the household are welcome. Childcare for younger siblings may be available in a separate room\, during the program. Siblings who are interested and able to sit quietly through a class are welcome to participate in the program with their brother/sister; otherwise\, we encourage use of childcare provided. \nTickets to the Science Center will be included for you and your family to enjoy the Science Center after the program! To register\, send an email to rsvp@wpbdf.org or call 724-741-6160 by December 27. Include: total number of people in your party\, your full name\, names and ages of all children attending the program\, names and ages of children you would like to request child care for during the program.
URL:https://wpbdf.org/event/wpbdfs-youth-group-being-different-belonging-together/
LOCATION:Carnegie Science Center\, 1 Allegheny Avenue\, Pittsburgh\, PA\, 15212\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/10/youth_group_flyer_FINAL.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241207T100000
DTEND;TZID=America/New_York:20241207T130000
DTSTAMP:20260727T120855
CREATED:20240705T133107Z
LAST-MODIFIED:20240705T133107Z
UID:36877-1733565600-1733576400@wpbdf.org
SUMMARY:Winter Program
DESCRIPTION:Please be sure to RSVP by November 25\, at rsvp@wpbdf.org or call the Foundation office at 724-741-6160. Please include the number of people who will be attending\, ages of children attending\, and any allergies or dietary restrictions.
URL:https://wpbdf.org/event/winter-program/
LOCATION:Dave & Buster’s\, 180 E Waterfront Drive\, Homestead\, PA\, 15120\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/07/2024-Winter-Program-Flyer.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241106T180000
DTEND;TZID=America/New_York:20241106T200000
DTSTAMP:20260727T120855
CREATED:20240827T210650Z
LAST-MODIFIED:20240827T211015Z
UID:37045-1730916000-1730923200@wpbdf.org
SUMMARY:Insurance Program
DESCRIPTION:Please RSVP by Monday\, October 28 to: rsvp@wpbdf.org or 724-741-6160. \nPlease be sure to include the total number of adults and children attending and any food allergies or dietary restrictions.
URL:https://wpbdf.org/event/insurance-program-2/
LOCATION:Bravo! Italian Kitchen\, 211 Summit Park Dr\, Pittsburgh\, PA\, 15275\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/08/Insurance-Program.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241101
DTEND;VALUE=DATE:20241104
DTSTAMP:20260727T120855
CREATED:20240821T185542Z
LAST-MODIFIED:20240821T191608Z
UID:37026-1730419200-1730678399@wpbdf.org
SUMMARY:Teen Retreat
DESCRIPTION:For questions or to pre-register\, contact Janet Barone\, WPBDF Program Director (janet@wpbdf.org\, 724-741-6160\, Option 3) or Katherine Bush\, HCWP Social Worker (kbush@vitalant.org\, 412-209-7286).
URL:https://wpbdf.org/event/teen-retreat-4/
LOCATION:Promise Camp & Retreat Center\, 227 Lance Road\, Clinton\, PA\, 15026\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/png:https://wpbdf.org/wp-content/uploads/2024/08/Teen-Retreat-Flyer.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241005T100000
DTEND;TZID=America/New_York:20241005T130000
DTSTAMP:20260727T120855
CREATED:20240612T140202Z
LAST-MODIFIED:20240612T141432Z
UID:36834-1728122400-1728133200@wpbdf.org
SUMMARY:Fall Program
DESCRIPTION:Please be sure to RSVP by Friday\, Sepetember 20\, at rsvp@wpbdf.org or call the Foundation office at 724-741-6160. Please include the number of people who will be attending\, ages of children attending\, and any allergies or dietary restrictions. If you would like to go to Splash Lagoon after the program\, please let us know how many people in your party will be swimmers.
URL:https://wpbdf.org/event/fall-program-2/
LOCATION:Ambassador Center\, 7794 Peach Street\, Erie\, PA\, 16509\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/06/Fall-Program-Invitation.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240926T180000
DTEND;TZID=America/New_York:20240926T210000
DTSTAMP:20260727T120855
CREATED:20240713T140020Z
LAST-MODIFIED:20240713T140020Z
UID:36917-1727373600-1727384400@wpbdf.org
SUMMARY:Women's Group - Safety Skills Workshop
DESCRIPTION:RSVP by Monday\, September 16\, by sending an email to rsvp@wpbdf.org or calling 724-741-6160. Please be sure to include the number of attendees and if you have any food allergies or dietary restrictions. \nThis event is open to adult and teenage women and people with the potential to menstruate\, who have a bleeding disorder or are a parent/caregiver or spouse/partner or sibling of someone with a bleeding diagnosis.
URL:https://wpbdf.org/event/womens-group-safety-skills-workshop/
LOCATION:Wilkins School Community Center\, 7604 Charleston Avenue\, Pittsburgh\, PA\, 15218\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/07/Safety-Skills-Workshop-scaled.jpg
ORGANIZER;CN="Kara Dornish":MAILTO:kara@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240817
DTEND;VALUE=DATE:20240818
DTSTAMP:20260727T120855
CREATED:20240722T155147Z
LAST-MODIFIED:20240722T155147Z
UID:36932-1723852800-1723939199@wpbdf.org
SUMMARY:Inspiring Shots Golf Clinc
DESCRIPTION:Learn how to golf or improve your game! Beginners to advanced welcome! Meet and learn from Pro Golfer\, Perry Parker on Saturday\, August 17! \nAdditional clinic dates to be announced. There is no cost for people with bleeding disorders & caregivers. Ages 18 & up only. Golf clubs provided if needed. Come to one session or come to all! Space is limited. \nTo register\, visit: https://www.wingmenfoundation.org/inspiring-shots-golf-clinic/
URL:https://wpbdf.org/event/inspiring-shots-golf-clinc/
LOCATION:Ironwood Golf Center\, 3036 Brodhead Road\, Aliquippa\, PA\, 15001\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/07/inspiring-shots-flyer-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240810T110000
DTEND;TZID=America/New_York:20240810T190000
DTSTAMP:20260727T120855
CREATED:20240610T163306Z
LAST-MODIFIED:20240610T170307Z
UID:36826-1723287600-1723316400@wpbdf.org
SUMMARY:New Parent Network - Summer Picnic
DESCRIPTION:This is part of our New Parent Network program. This picnic is open to families who have a child with a bleeding disorder between the ages of 0-7. To register\, email rsvp@wpbdf.org or call the Foundation office at 724-741-6160 or Kathaleen at the HCWP at 412-209-7267 \n  \nGates open at 10:30 AM. New Parent Network picnic and activities start at 11:30! Additional details will be sent upon registration.
URL:https://wpbdf.org/event/new-parent-network-summer-picnic/
LOCATION:Idlewild and Soak Zone\, 2574 Lincoln Hwy\, Ligonier\, PA\, 15658\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/06/NPN-2024-Invite-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240801T183000
DTEND;TZID=America/New_York:20240801T210000
DTSTAMP:20260727T120855
CREATED:20240624T142524Z
LAST-MODIFIED:20240624T142524Z
UID:36860-1722537000-1722546000@wpbdf.org
SUMMARY:Back to School Program
DESCRIPTION:Join us for dinner and learn how students\, parents\, family members\, and school staff can work together to provide a positive learning environment for students with a bleeding disorder—from preschool through college. \nRSVP by Friday\, July 26\, at rsvp@wpbdf.org or call 724-741-6160. Please include the number of attendees\, ages of children\, and any dietary restrictions.
URL:https://wpbdf.org/event/back-to-school-program/
LOCATION:Grand Concourse\, 100 W Station Square Dr\, Pittsburgh\, PA\, 15219\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/06/Back-to-School-scaled.jpg
ORGANIZER;CN="Kara Dornish":MAILTO:kara@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240728
DTEND;VALUE=DATE:20240803
DTSTAMP:20260727T120855
CREATED:20240612T140903Z
LAST-MODIFIED:20240612T141222Z
UID:36838-1722124800-1722643199@wpbdf.org
SUMMARY:Camp Hot-to-Clot
DESCRIPTION:WPBDF is proud to help support Camp Hot-to-Clot\, which is organized by the Hemophilia Center of Western PA. \nCamp Hot-to-Clot is an overnight summer camp in Western Pennsylvania for youth aged 7-17\, who have a bleeding disorder or who have a sibling with a bleeding disorder\, and who live in Western Pennsylvania or the surrounding area. Fun activities such as swimming\, pickleball\, gaga\, rock wall climbing\, fishing\, canoeing\, archery\, arts & crafts\, and field games are offered in a safe\, nurturing environment that gives campers a chance to broaden their experiences. \nCamp Facility\n\nCamp Hot-to-Clot is held annually at the YMCA Camp Kon-O-Kwee near Zelienople\, PA (approximately 30 miles north of Pittsburgh). Camp Kon-O-Kwee is located on 500 acres of fields and woodlands along Connoquenessing Creek. It is owned and operated by YMCA of Greater Pittsburgh and is accredited by the American Camp Association. \nCamp Hot-to-Clot is staffed with professionals from the bleeding disorders community (including staff from the Hemophilia Center of Western Pennsylvania who specialize in nursing\, physical therapy\, and social work) and professional camp staff from Camp Kon-O-Kwee. Camp Hot-to-Clot staff works closely with Camp Kon-O-Kwee staff to provide a camp session that is safe\, educational\, and fun! \n  \n\n\n\n\n\n\n\n\n\n\nContact Information\n\nCamp Hot-to-Clot is organized by the Hemophilia Center of Western Pennsylvania. Social workers Katherine Bush\, LCSW and Kathaleen Schnur\, LCSW are the camp co-directors. \nFor questions or matters concerning camp\, call the Camp Hot-to-Clot phone line: 412-209-7344 \nThe Camp Hot-to-Clot co-directors\, can also be reached by email:\nKatherine Bush: kbush@vitalant.org\nKathaleen Schnur: kschnur@vitalant.org
URL:https://wpbdf.org/event/camp-hot-to-clot-4/
LOCATION:Camp Kon-o-Kwee\, 126 Nagel Rd\, Fombell\, PA\, 16123\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2023/01/camp-logo.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240724T180000
DTEND;TZID=America/New_York:20240724T203000
DTSTAMP:20260727T120855
CREATED:20240705T133756Z
LAST-MODIFIED:20240705T133756Z
UID:36881-1721844000-1721853000@wpbdf.org
SUMMARY:Women's Group: Candle Making Workshop
DESCRIPTION:Please be sure to RSVP by July 16\, at rsvp@wpbdf.org or call the Foundation office at 724-741-6160. Please include the number of people who will be attending and any allergies or dietary restrictions.
URL:https://wpbdf.org/event/womens-group-candle-making-workshop/
LOCATION:Honey and Heart Candle & Craft Co.\, 151 Grant Ave\, Vandergrift\, PA\, 15690\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/07/womens_group_candle_workshop_FINAL-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240718T180000
DTEND;TZID=America/New_York:20240718T210000
DTSTAMP:20260727T120855
CREATED:20240405T140349Z
LAST-MODIFIED:20240716T162031Z
UID:36592-1721325600-1721336400@wpbdf.org
SUMMARY:WPBDF's Annual Meeting
DESCRIPTION:Join us for dinner\, visit sponsor booths\, and learn more about the services the Foundation offers! We will be celebrating our top volunteers and kicking off the 2024 Unite for Bleeding Disorders Walk! \nAfter the meeting\, everyone is invited to stay and golf! This program is open to members of the Western Pennsylvania Bleeding Disorders Foundation and family members living in their household. This is an all ages event. Adult supervision is required at all times for those ages 16 & under. \nThe deadline to register is Monday\, July 1\, 2024. \nSpace is limited\, so be sure to register early! To register\, send an email to rsvp@wpbdf.org or call the Chapter office at 724-741-6160. Be sure to include the total number of people you are registering for and if there are any food allergies. If children are attending\, please be sure to include their ages. \n  \n  \n \n  \nPfizer – Together for Rare
URL:https://wpbdf.org/event/wpbdfs-annual-meeting/
LOCATION:Top Golf\, 400 Presto-Sygan Rd\, Bridgeville\, PA\, 15017\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/04/annual_meeting_flyer.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240629T140000
DTEND;TZID=America/New_York:20240629T153000
DTSTAMP:20260727T120855
CREATED:20240627T164514Z
LAST-MODIFIED:20240627T164514Z
UID:36869-1719669600-1719675000@wpbdf.org
SUMMARY:Inspiring Shots Golf Clinic
DESCRIPTION:Learn how to golf or improve your golf game! This 4-8 week course is for the beginner to advanced with hands-on golf instruction and a great experience to connect with others. Pro Golfer Perry Parker will also be in attendance at one of the clinics in each area! \n\nTwo participants from each clinic will win a paid trip to the Junior National Championships (JNC) in Nevada and have the chance to win a $2\,500 donation for their local chapter! \n\nClinic Dates:  \nJune 29th \n2:00 pm – 3:30 pm  \n\nAugust 17th \n2:00pm – 3:30pm \n\nAdditional Clinic Dates and Times TBA! \nFREE for people with bleeding disorders and caregivers 18 & up. \nClick Here to Register Today!
URL:https://wpbdf.org/event/inspiring-shots-golf-clinic/
LOCATION:Ironwood Golf Center\, 3036 Brodhead Road\, Aliquippa\, PA\, 15001\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/06/2024-Inspiring-Shots-WPA-1-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240628
DTEND;VALUE=DATE:20240701
DTSTAMP:20260727T120856
CREATED:20240213T143239Z
LAST-MODIFIED:20240621T143939Z
UID:36435-1719532800-1719791999@wpbdf.org
SUMMARY:Couples Retreat
DESCRIPTION:Attention Couples! Whether you are a couple in a newer\, serious relationship and want tools to start off successfully. or you are a couple in a long-term\, committed relationship who wants a deeper connection\, and whether you are in a relationship where one partner has a bleeding disorder or you are a couple raising a child with a bleeding disorder\, this retreat is for you!  \nThis retreat is available to all couples (dating\, engaged\, or married) regardless of orientation\, ages 21 and up\, and are members of the Western or Eastern Pennsylvania Bleeding Disorders Foundations. \nTo register\, send an email to rsvp@wpbdf.org. The final day to register is Friday\, May 24!  \nWPBDF and EPBDF are organizations of acceptance and tolerance for all of its members and the patients it serves\, regardless of race\, color\, ethnicity\, national origin\, religion\, sex\, sexual orientation\, gender identity or expression\, age or disability. \nThank you to our amazing sponsors: \n \n 
URL:https://wpbdf.org/event/couples-retreat/
LOCATION:Liberty Mountain Resort\, 78 Country Club Trail\, Fairfield\, PA\, 17320\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/png:https://wpbdf.org/wp-content/uploads/2024/02/CouplesRetreat2024email.png
ORGANIZER;CN="Kara Dornish":MAILTO:kara@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240619T180000
DTEND;TZID=America/New_York:20240619T203000
DTSTAMP:20260727T120856
CREATED:20240522T145845Z
LAST-MODIFIED:20240522T150035Z
UID:36817-1718820000-1718829000@wpbdf.org
SUMMARY:WPBDF's Winning Women's Group
DESCRIPTION:The WPBDF Winning Women’s group invites women and mature teenage girls to join them for an evening dedicated to relaxation! Create your own candle to take home\, enjoy a meal and the company of other women from the Foundation\, and learn about techniques to reduce stress! There’s no cost to participate in this event. Food will be provided. Please let us know if you have any food allergies when you register. \nTo register\, send an email to rsvp@wpbdf.org or call the Foundation office at 724-741-6160\, by June 12. This event is open to members of WPBDF only. \nThe Western Pennsylvania Bleeding Disorders Foundation is an organization of acceptance and tolerance for all of its members and the patients it serves\, regardless of race\, color\, ethnicity\, national origin\, religion\, sex\, sexual orientation gender identity or expression\, age or disability.
URL:https://wpbdf.org/event/wpbdfs-winning-womens-group/
LOCATION:Honey and Heart Candle & Craft Co.\, 151 Grant Ave\, Vandergrift\, PA\, 15690\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/05/womens_group_candle_workshop-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240522T180000
DTEND;TZID=America/New_York:20240522T203000
DTSTAMP:20260727T120856
CREATED:20240404T233140Z
LAST-MODIFIED:20240412T172446Z
UID:36587-1716400800-1716409800@wpbdf.org
SUMMARY:Insurance Basics: Everything You Didn’t Know You Needed to Know
DESCRIPTION:RSVP via email\, rsvp@wpbdf.org\, or calling the Foundation office at 724-741-6160.
URL:https://wpbdf.org/event/insurance-basics-everything-you-didnt-know-you-needed-to-know/
LOCATION:Luciano’s Italian Brick Oven\, 161 Scharberry Lane\, Mars\, PA\, 16046\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/04/insurance_anime_program_flyer_with_photo.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240323T100000
DTEND;TZID=America/New_York:20240323T120000
DTSTAMP:20260727T120856
CREATED:20240213T142315Z
LAST-MODIFIED:20240213T142315Z
UID:36429-1711188000-1711195200@wpbdf.org
SUMMARY:Youth Group Museum Day
DESCRIPTION:When:\nSaturday\, March 23\, 10:00 AM -12:00 PM\nWhere:\nChildren’s Museum of Pittsburgh / Museum Lab\n10 Children’s Way\nPittsburgh\, PA 15212\n\nHey kids! Join your friends for a chat with Kathaleen\, and a day at the Children’s Museum and Museum Lab. There will be yummy food and a fun activity\, too! \nHow do I sign up? Ask your grown-up to send an email to rsvp@wpbdf.org\, by March 17. Make sure we know how many people are coming and the ages of any siblings attending with you. \nParents: This event is for families with a child aged 7-12\, who either has a bleeding disorder or is the sibling of a child with a bleeding disorder. All family members living in the household with the child who has a bleeding disorder are welcome. Bleeding disorders are a chronic condition and whether the diagnosis is mild or taking a medication that has kiddos present as milder\, it’s important for them to understand and be reminded why it’s important to be mindful of their own bleeding disorder or siblings bleeding disorder as well as finding empowerment in their awareness. Kathaleen Schnur\, LCSW\, from the Hemophilia Center of Western PA\, will guide a discussion with the children (ages 7-12) on respecting bleeding disorders. \nMuseum Admission: We will meet in one of the party rooms in the Children’s Museum; however\, admission to both the Children’s Museum and Museum Lab is included\, and you are welcome to spend the remainder of the day enjoying the museums. When you register\, please be sure to let us know if there are any food allergies or special dietary requirements.
URL:https://wpbdf.org/event/youth-group-museum-day/
LOCATION:Children’s Museum\, 10 Children's Way\, Pittsburgh\, PA\, 15212\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/02/youth_group_march_23_2024_jpg-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240311T180000
DTEND;TZID=America/New_York:20240311T200000
DTSTAMP:20260727T120856
CREATED:20240213T160439Z
LAST-MODIFIED:20240213T160439Z
UID:36445-1710180000-1710187200@wpbdf.org
SUMMARY:Women's Group
DESCRIPTION:Help us assemble period packs that will be distributed to local schools and health clinics to help spread awareness of bleeding disorders. \nJoin us for dinner\, jewelry making\, and assembling period packs to spread awareness of bleeding disorders. This event is open to women and people with the potential to menstruate\, who have bleeding disorders\, and are adults or mature teenagers or are a parent/caregiver or spouse/partner of someone with a \nbleeding diagnosis. \nTo register\, send an email to rsvp@wpbdf.org or call the Foundation at 724-741-6160. Please let us know if you have any food allergies. The final day to register is Tuesday\, March 5th. \nThank you to our sponsor\, Cottrill’s Pharmacy! \nThe Western Pennsylvania Bleeding Disorders Foundation is an organization of acceptance and tolerance for all of its members and the patients it serves\, regardless of race\, color\, ethnicity\, national origin\, religion\, sex\, sexual orientation\, gender identity or expression\, age or disability.
URL:https://wpbdf.org/event/womens-group-2/
LOCATION:Bravo! Italian Kitchen\, 211 Summit Park Dr\, Pittsburgh\, PA\, 15275\, United States
CATEGORIES:Advocacy,Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/02/womens_group_03_11_24-scaled.jpg
ORGANIZER;CN="Kara Dornish":MAILTO:kara@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240208T190000
DTEND;TZID=America/New_York:20240208T200000
DTSTAMP:20260727T120856
CREATED:20240125T204931Z
LAST-MODIFIED:20240125T204931Z
UID:36324-1707418800-1707422400@wpbdf.org
SUMMARY:New Year – New Health Plan
DESCRIPTION:Do you have questions about your new health plan? \nBe in the know! Join us for a discussion on issues you are facing and things to look out for in your new insurance plan. Ryan Faden\, Director\, Patient Access at the National Bleeding Disorders Foundation will be leading the discussion about insurance issues you may be facing in your current health plan. Topics will include copay accumulator adjusters\, copay maximizers\, and formulary exclusions/limitations and more. \nDo you have a question about your current plan that you would like to address? Please let us know when you register. \nTo register\, email rsvp@wpbdf.org or call 724-741-6160 by 2:00 pm on Thursday\, February 8. Zoom link will be sent to those who register.
URL:https://wpbdf.org/event/new-year-new-health-plan/
LOCATION:Virtual
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/01/new-year-new-health-plan_FINAL-scaled.jpg
ORGANIZER;CN="Kara Dornish":MAILTO:kara@wpcnhf.org
END:VEVENT
END:VCALENDAR