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DTSTART;TZID=America/New_York:20150320T180000
DTEND;TZID=America/New_York:20150322T103000
DTSTAMP:20260801T174457
CREATED:20150122T012831Z
LAST-MODIFIED:20230127T014007Z
UID:34531-1426874400-1427020200@wpbdf.org
SUMMARY:Teen & Parent Retreat
DESCRIPTION:Teenagers and their parents are invited to join us at the beautiful Family Retreat Center in Mars\, PA.  The weekend will include a great teen and parent program tailored for our group\, by Patrick Torrey.   The weekend will also include opportunities for both teens and parents to spend time with their peers and enjoy the retreat center! \nTeenagers ages 13-18 are invited. At this time\, there is a limit of one parent per family\, and a parent MUST accompany their teen(s). No other family members are permitted to attend. There is no cost. \nThe deadline for pre-registration was December 21st.  Registration forms have been mailed to those who pre-registered and and are qualified to attend.  Please call Janet Barone at 724-741-6160 or e-mail her at janet@wpcnhf.org with any questions.
URL:https://wpbdf.org/event/teen-parent-retreat/
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2022/11/Teens-on-stairs.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20150723T180000
DTEND;TZID=America/New_York:20150723T203000
DTSTAMP:20260801T174457
CREATED:20150519T182039Z
LAST-MODIFIED:20230127T013720Z
UID:34555-1437674400-1437683400@wpbdf.org
SUMMARY:WPCNHF Annual Meeting
DESCRIPTION:This year\, our Annual Meeting will be held at Dave & Busters! You will hear short presentations from factor manufacturers about their products\, programs\, and/or services. \nThe evening will include exhibit displays from home healthcare and factor manufacturers\, a buffet dinner\, and game cards. \nTime & Location:\nRegistration and exhibits begin at 6:00 p.m.\nDave & Buster’s – The Waterfront\, 180 E Waterfront Dr\, Homestead\, PA 15120 \nRSVP:\nTo register\, send an e-mail or call 724-741-6160 by July 15. If children will be attending\, please be sure to include their ages.
URL:https://wpbdf.org/event/wpcnhf-annual-meeting/
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2023/01/daveandbusters.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20150427T180000
DTEND;TZID=America/New_York:20150427T203000
DTSTAMP:20260801T174457
CREATED:20150320T195021Z
LAST-MODIFIED:20230127T013849Z
UID:34540-1430157600-1430166600@wpbdf.org
SUMMARY:Food & Fitness Basics
DESCRIPTION:WPCNHF invites you to join us for a cooking class and dinner!\nDuring this fun and educational hands-on event you will get a chance to see a cooking demonstration as well as explore: \n\nThe benefits of physical activity and good nutrition.\nGuidelines for choosing physical activities and exercises.\nReading food labels and making healthy food choices.\nHow small changes may help lead to a healthier lifestyle.\n\nMonday April 27th\, 2015\n6:00 pm – 8:30 pm\nGiant Eagle Market District\n100 Settlers Ridge Center Drive\nPittsburgh\, PA 15205 \nSpace is limited.  Please RSVP by April 24th by calling 724-741-6160 or e-mailing Janet at janet@wpcnhf.org. \nThank you to NovoNordisk for sponsoring this program.
URL:https://wpbdf.org/event/food-fitness-basics/
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2023/01/family-cooking.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20150129T180000
DTEND;TZID=America/New_York:20150129T200000
DTSTAMP:20260801T174457
CREATED:20150110T010301Z
LAST-MODIFIED:20230127T014212Z
UID:34515-1422554400-1422561600@wpbdf.org
SUMMARY:Advocacy 101
DESCRIPTION:Dinner and a Program\nWPCNHF invites you to attend a dinner and education program on advocacy. This is a great opportunity for adults and teenagers to learn why it’s important to be an advocate\, what some of the key issues are nationally and in Pennsylvania\, and what to expect at the upcoming NHF Washington Days and the State Advocacy Day in Harrisburg. \nYou will hear from the following speakers: \nKarla Beckner White\, State Government Affairs\, CSL Behring \nMary Garvey\, Public Policy Analyst\, NHF \n Date\nThursday\, January 29\, 2015 \nTime\nCheck-in begins at 6:00 p.m. \nDinner & Program begin at 6:30 p.m. \nLocation\nBravo! Cucina Italiana – Robinson\n211 Summit Park Drive\, Pittsburgh\, PA 15275 \nRSVP\nPlease register by January 25\, 2015 by calling the Chapter office at 724-741-6160 or sending an e-mail to rsvp@westpennhemophilia.org. \nPlease include your name\, phone number\, and the total number of people in your party who are planning to attend. \nSponsor\nThank you to CSL Behring for sponsoring this event. \n 
URL:https://wpbdf.org/event/advocacy-101/
LOCATION:Harrisburg-Day-2019-3
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2023/01/buffet.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20150801T120000
DTEND;TZID=America/New_York:20150801T170000
DTSTAMP:20260801T174457
CREATED:20150519T182817Z
LAST-MODIFIED:20230127T013705Z
UID:34557-1438430400-1438448400@wpbdf.org
SUMMARY:Women's Program
DESCRIPTION:Self-Care for Bleeding Disorder Caregivers – Put Your Oxygen Mask on First\nCaring for a child or partner can be exhausting. Bleeding disorders affect everyone in the family and you can experience a range of emotions from anger and anxiety to pride and satisfaction. This workshop is designed to help caregivers identify and accept the feelings encountered while caring for a loved one with a bleeding disorder as well as learn how to manage the tasks and feelings associated with being a caregiver with greater ease. \nYou will gain a clearer sense of priorities in caring for a loved one as well as explore the power of delegation and becoming comfortable using it. This workshop focuses on increasing your ability to care for yourself and how to care for your own body and spirit. You will learn to create balance so when you are in the role of caregiver you are operating at maximum efficiency! \nTake a break this summer and join your fellow female caregivers for this wonderful program! The workshop will be held at The Inn on Negley (a beautifully restored 1884 Victorian home in Pittsburgh’s Shadyside neighborhood) and will include an Afternoon Tea. \nDate\nSaturday\, August 1\, 2015 \nTime\n12:00 p.m. – 5:00 p.m. \nLocation\nThe Inn on Negley\n703 S Negley Ave.\nPittsburgh\, PA 15232\nRSVP\nTo register\, please call Janet Barone\nat 724-741-6160 or send an\ne-mail to rsvp@wpcnhf.org.
URL:https://wpbdf.org/event/womens-program/
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2023/01/FAmily-in-living-room.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20150207T093000
DTEND;TZID=America/New_York:20150207T140000
DTSTAMP:20260801T174457
CREATED:20150110T014052Z
LAST-MODIFIED:20230127T014125Z
UID:34519-1423301400-1423317600@wpbdf.org
SUMMARY:Educational Scholarship Workshop
DESCRIPTION:  \nLunch\, Informational Presentations & Hands-on Help applying for Scholarships\n For individuals with bleeding disorders\, guardians & siblings \n \nTopics include: Navigating the Financial Aspects of Higher Learning and Writing a Winning Scholarship Essay. \nDate: Saturday\, February 7\, 2015 \nTime: Check-in and Continental Breakfast begin at 9:30am\, Program will be held from 10:00am-2:00pm \nLocation: Regional Learning Alliance \n850 Cranberry Woods Drive\, Cranberry Township\, PA 16066 \nLearn… \n\nHow to apply for financial aids\nDiscover how to access $1\,000’s of dollars in untapped scholarships\nFind out about educational accommodations that lead to success.\n\nPlease RSVP by February 1\, 2015 to rsvp@westpennhemophilia.org or 724-741-6160 \nSponsored by Cottrill’s Pharmacy and Bayer Health Care
URL:https://wpbdf.org/event/educational-scholarship-workshop/
LOCATION:Walk-Poster
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2023/01/Cottrills.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20150225
DTEND;VALUE=DATE:20150228
DTSTAMP:20260801T174457
CREATED:20150122T014849Z
LAST-MODIFIED:20230127T014108Z
UID:34532-1424822400-1425081599@wpbdf.org
SUMMARY:Washington Days
DESCRIPTION:
URL:https://wpbdf.org/event/washington-days/
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2022/11/capitol-building.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20150420
DTEND;VALUE=DATE:20150421
DTSTAMP:20260801T174457
CREATED:20150211T192526Z
LAST-MODIFIED:20230127T013908Z
UID:34536-1429488000-1429574399@wpbdf.org
SUMMARY:Harrisburg Day
DESCRIPTION:On Monday\, April 20\, 2015\, members and friends of the Western Pennsylvania Chapter of the National Hemophilia Foundation will join volunteers from the Eastern PA Chapter in Harrisburg to speak with legislators about the needs of the Pennsylvania bleeding disorders community.  This is a very important day for bleeding disorders in Pennsylvania and we really need your help!  This annual day helps state senators and house members understand key issues affecting our families and patients and we hope you will be able to join us as we make our voices heard. \nISSUE #1:  CONTINUED FUNDING FOR THE PENNSYLVANIA HEMOPHILIA PROGRAMS\nISSUE #2: HIGH COST SHARING FOR FACTOR CONCENTRATES\nPlease join us for this important day! \nPlease fill out this registration form and e-mail\, mail\, or fax this form to us by March 20th.  Details about the day will be forwarded to you once we receive your registration. \nUS Mail: WPCNHF\, 20411 Rt. 19\, Unit 14\, Cranberry Township\, PA 16066 \nE-Mail: rsvp@wpcnhf.org \nFax: 724-741-6167
URL:https://wpbdf.org/event/harrisburg-day/
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2022/11/harrisburgDay_04.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20150320T180000
DTEND;TZID=America/New_York:20150322T103000
DTSTAMP:20260801T174457
CREATED:20150122T012831Z
LAST-MODIFIED:20230127T014007Z
UID:34531-1426874400-1427020200@wpbdf.org
SUMMARY:Teen & Parent Retreat
DESCRIPTION:Teenagers and their parents are invited to join us at the beautiful Family Retreat Center in Mars\, PA.  The weekend will include a great teen and parent program tailored for our group\, by Patrick Torrey.   The weekend will also include opportunities for both teens and parents to spend time with their peers and enjoy the retreat center! \nTeenagers ages 13-18 are invited. At this time\, there is a limit of one parent per family\, and a parent MUST accompany their teen(s). No other family members are permitted to attend. There is no cost. \nThe deadline for pre-registration was December 21st.  Registration forms have been mailed to those who pre-registered and and are qualified to attend.  Please call Janet Barone at 724-741-6160 or e-mail her at janet@wpcnhf.org with any questions.
URL:https://wpbdf.org/event/teen-parent-retreat/
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2022/11/Teens-on-stairs.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20150723T180000
DTEND;TZID=America/New_York:20150723T203000
DTSTAMP:20260801T174457
CREATED:20150519T182039Z
LAST-MODIFIED:20230127T013720Z
UID:34555-1437674400-1437683400@wpbdf.org
SUMMARY:WPCNHF Annual Meeting
DESCRIPTION:This year\, our Annual Meeting will be held at Dave & Busters! You will hear short presentations from factor manufacturers about their products\, programs\, and/or services. \nThe evening will include exhibit displays from home healthcare and factor manufacturers\, a buffet dinner\, and game cards. \nTime & Location:\nRegistration and exhibits begin at 6:00 p.m.\nDave & Buster’s – The Waterfront\, 180 E Waterfront Dr\, Homestead\, PA 15120 \nRSVP:\nTo register\, send an e-mail or call 724-741-6160 by July 15. If children will be attending\, please be sure to include their ages.
URL:https://wpbdf.org/event/wpcnhf-annual-meeting/
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2023/01/daveandbusters.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20150427T180000
DTEND;TZID=America/New_York:20150427T203000
DTSTAMP:20260801T174457
CREATED:20150320T195021Z
LAST-MODIFIED:20230127T013849Z
UID:34540-1430157600-1430166600@wpbdf.org
SUMMARY:Food & Fitness Basics
DESCRIPTION:WPCNHF invites you to join us for a cooking class and dinner!\nDuring this fun and educational hands-on event you will get a chance to see a cooking demonstration as well as explore: \n\nThe benefits of physical activity and good nutrition.\nGuidelines for choosing physical activities and exercises.\nReading food labels and making healthy food choices.\nHow small changes may help lead to a healthier lifestyle.\n\nMonday April 27th\, 2015\n6:00 pm – 8:30 pm\nGiant Eagle Market District\n100 Settlers Ridge Center Drive\nPittsburgh\, PA 15205 \nSpace is limited.  Please RSVP by April 24th by calling 724-741-6160 or e-mailing Janet at janet@wpcnhf.org. \nThank you to NovoNordisk for sponsoring this program.
URL:https://wpbdf.org/event/food-fitness-basics/
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2023/01/family-cooking.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20150129T180000
DTEND;TZID=America/New_York:20150129T200000
DTSTAMP:20260801T174457
CREATED:20150110T010301Z
LAST-MODIFIED:20230127T014212Z
UID:34515-1422554400-1422561600@wpbdf.org
SUMMARY:Advocacy 101
DESCRIPTION:Dinner and a Program\nWPCNHF invites you to attend a dinner and education program on advocacy. This is a great opportunity for adults and teenagers to learn why it’s important to be an advocate\, what some of the key issues are nationally and in Pennsylvania\, and what to expect at the upcoming NHF Washington Days and the State Advocacy Day in Harrisburg. \nYou will hear from the following speakers: \nKarla Beckner White\, State Government Affairs\, CSL Behring \nMary Garvey\, Public Policy Analyst\, NHF \n Date\nThursday\, January 29\, 2015 \nTime\nCheck-in begins at 6:00 p.m. \nDinner & Program begin at 6:30 p.m. \nLocation\nBravo! Cucina Italiana – Robinson\n211 Summit Park Drive\, Pittsburgh\, PA 15275 \nRSVP\nPlease register by January 25\, 2015 by calling the Chapter office at 724-741-6160 or sending an e-mail to rsvp@westpennhemophilia.org. \nPlease include your name\, phone number\, and the total number of people in your party who are planning to attend. \nSponsor\nThank you to CSL Behring for sponsoring this event. \n 
URL:https://wpbdf.org/event/advocacy-101/
LOCATION:Harrisburg-Day-2019-3
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2023/01/buffet.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20150801T120000
DTEND;TZID=America/New_York:20150801T170000
DTSTAMP:20260801T174457
CREATED:20150519T182817Z
LAST-MODIFIED:20230127T013705Z
UID:34557-1438430400-1438448400@wpbdf.org
SUMMARY:Women's Program
DESCRIPTION:Self-Care for Bleeding Disorder Caregivers – Put Your Oxygen Mask on First\nCaring for a child or partner can be exhausting. Bleeding disorders affect everyone in the family and you can experience a range of emotions from anger and anxiety to pride and satisfaction. This workshop is designed to help caregivers identify and accept the feelings encountered while caring for a loved one with a bleeding disorder as well as learn how to manage the tasks and feelings associated with being a caregiver with greater ease. \nYou will gain a clearer sense of priorities in caring for a loved one as well as explore the power of delegation and becoming comfortable using it. This workshop focuses on increasing your ability to care for yourself and how to care for your own body and spirit. You will learn to create balance so when you are in the role of caregiver you are operating at maximum efficiency! \nTake a break this summer and join your fellow female caregivers for this wonderful program! The workshop will be held at The Inn on Negley (a beautifully restored 1884 Victorian home in Pittsburgh’s Shadyside neighborhood) and will include an Afternoon Tea. \nDate\nSaturday\, August 1\, 2015 \nTime\n12:00 p.m. – 5:00 p.m. \nLocation\nThe Inn on Negley\n703 S Negley Ave.\nPittsburgh\, PA 15232\nRSVP\nTo register\, please call Janet Barone\nat 724-741-6160 or send an\ne-mail to rsvp@wpcnhf.org.
URL:https://wpbdf.org/event/womens-program/
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2023/01/FAmily-in-living-room.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20150207T093000
DTEND;TZID=America/New_York:20150207T140000
DTSTAMP:20260801T174457
CREATED:20150110T014052Z
LAST-MODIFIED:20230127T014125Z
UID:34519-1423301400-1423317600@wpbdf.org
SUMMARY:Educational Scholarship Workshop
DESCRIPTION:  \nLunch\, Informational Presentations & Hands-on Help applying for Scholarships\n For individuals with bleeding disorders\, guardians & siblings \n \nTopics include: Navigating the Financial Aspects of Higher Learning and Writing a Winning Scholarship Essay. \nDate: Saturday\, February 7\, 2015 \nTime: Check-in and Continental Breakfast begin at 9:30am\, Program will be held from 10:00am-2:00pm \nLocation: Regional Learning Alliance \n850 Cranberry Woods Drive\, Cranberry Township\, PA 16066 \nLearn… \n\nHow to apply for financial aids\nDiscover how to access $1\,000’s of dollars in untapped scholarships\nFind out about educational accommodations that lead to success.\n\nPlease RSVP by February 1\, 2015 to rsvp@westpennhemophilia.org or 724-741-6160 \nSponsored by Cottrill’s Pharmacy and Bayer Health Care
URL:https://wpbdf.org/event/educational-scholarship-workshop/
LOCATION:Walk-Poster
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2023/01/Cottrills.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20150225
DTEND;VALUE=DATE:20150228
DTSTAMP:20260801T174457
CREATED:20150122T014849Z
LAST-MODIFIED:20230127T014108Z
UID:34532-1424822400-1425081599@wpbdf.org
SUMMARY:Washington Days
DESCRIPTION:
URL:https://wpbdf.org/event/washington-days/
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2022/11/capitol-building.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20150420
DTEND;VALUE=DATE:20150421
DTSTAMP:20260801T174457
CREATED:20150211T192526Z
LAST-MODIFIED:20230127T013908Z
UID:34536-1429488000-1429574399@wpbdf.org
SUMMARY:Harrisburg Day
DESCRIPTION:On Monday\, April 20\, 2015\, members and friends of the Western Pennsylvania Chapter of the National Hemophilia Foundation will join volunteers from the Eastern PA Chapter in Harrisburg to speak with legislators about the needs of the Pennsylvania bleeding disorders community.  This is a very important day for bleeding disorders in Pennsylvania and we really need your help!  This annual day helps state senators and house members understand key issues affecting our families and patients and we hope you will be able to join us as we make our voices heard. \nISSUE #1:  CONTINUED FUNDING FOR THE PENNSYLVANIA HEMOPHILIA PROGRAMS\nISSUE #2: HIGH COST SHARING FOR FACTOR CONCENTRATES\nPlease join us for this important day! \nPlease fill out this registration form and e-mail\, mail\, or fax this form to us by March 20th.  Details about the day will be forwarded to you once we receive your registration. \nUS Mail: WPCNHF\, 20411 Rt. 19\, Unit 14\, Cranberry Township\, PA 16066 \nE-Mail: rsvp@wpcnhf.org \nFax: 724-741-6167
URL:https://wpbdf.org/event/harrisburg-day/
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2022/11/harrisburgDay_04.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20150320T180000
DTEND;TZID=America/New_York:20150322T103000
DTSTAMP:20260801T174457
CREATED:20150122T012831Z
LAST-MODIFIED:20230127T014007Z
UID:34531-1426874400-1427020200@wpbdf.org
SUMMARY:Teen & Parent Retreat
DESCRIPTION:Teenagers and their parents are invited to join us at the beautiful Family Retreat Center in Mars\, PA.  The weekend will include a great teen and parent program tailored for our group\, by Patrick Torrey.   The weekend will also include opportunities for both teens and parents to spend time with their peers and enjoy the retreat center! \nTeenagers ages 13-18 are invited. At this time\, there is a limit of one parent per family\, and a parent MUST accompany their teen(s). No other family members are permitted to attend. There is no cost. \nThe deadline for pre-registration was December 21st.  Registration forms have been mailed to those who pre-registered and and are qualified to attend.  Please call Janet Barone at 724-741-6160 or e-mail her at janet@wpcnhf.org with any questions.
URL:https://wpbdf.org/event/teen-parent-retreat/
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2022/11/Teens-on-stairs.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20150723T180000
DTEND;TZID=America/New_York:20150723T203000
DTSTAMP:20260801T174457
CREATED:20150519T182039Z
LAST-MODIFIED:20230127T013720Z
UID:34555-1437674400-1437683400@wpbdf.org
SUMMARY:WPCNHF Annual Meeting
DESCRIPTION:This year\, our Annual Meeting will be held at Dave & Busters! You will hear short presentations from factor manufacturers about their products\, programs\, and/or services. \nThe evening will include exhibit displays from home healthcare and factor manufacturers\, a buffet dinner\, and game cards. \nTime & Location:\nRegistration and exhibits begin at 6:00 p.m.\nDave & Buster’s – The Waterfront\, 180 E Waterfront Dr\, Homestead\, PA 15120 \nRSVP:\nTo register\, send an e-mail or call 724-741-6160 by July 15. If children will be attending\, please be sure to include their ages.
URL:https://wpbdf.org/event/wpcnhf-annual-meeting/
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2023/01/daveandbusters.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20150427T180000
DTEND;TZID=America/New_York:20150427T203000
DTSTAMP:20260801T174457
CREATED:20150320T195021Z
LAST-MODIFIED:20230127T013849Z
UID:34540-1430157600-1430166600@wpbdf.org
SUMMARY:Food & Fitness Basics
DESCRIPTION:WPCNHF invites you to join us for a cooking class and dinner!\nDuring this fun and educational hands-on event you will get a chance to see a cooking demonstration as well as explore: \n\nThe benefits of physical activity and good nutrition.\nGuidelines for choosing physical activities and exercises.\nReading food labels and making healthy food choices.\nHow small changes may help lead to a healthier lifestyle.\n\nMonday April 27th\, 2015\n6:00 pm – 8:30 pm\nGiant Eagle Market District\n100 Settlers Ridge Center Drive\nPittsburgh\, PA 15205 \nSpace is limited.  Please RSVP by April 24th by calling 724-741-6160 or e-mailing Janet at janet@wpcnhf.org. \nThank you to NovoNordisk for sponsoring this program.
URL:https://wpbdf.org/event/food-fitness-basics/
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2023/01/family-cooking.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20150129T180000
DTEND;TZID=America/New_York:20150129T200000
DTSTAMP:20260801T174457
CREATED:20150110T010301Z
LAST-MODIFIED:20230127T014212Z
UID:34515-1422554400-1422561600@wpbdf.org
SUMMARY:Advocacy 101
DESCRIPTION:Dinner and a Program\nWPCNHF invites you to attend a dinner and education program on advocacy. This is a great opportunity for adults and teenagers to learn why it’s important to be an advocate\, what some of the key issues are nationally and in Pennsylvania\, and what to expect at the upcoming NHF Washington Days and the State Advocacy Day in Harrisburg. \nYou will hear from the following speakers: \nKarla Beckner White\, State Government Affairs\, CSL Behring \nMary Garvey\, Public Policy Analyst\, NHF \n Date\nThursday\, January 29\, 2015 \nTime\nCheck-in begins at 6:00 p.m. \nDinner & Program begin at 6:30 p.m. \nLocation\nBravo! Cucina Italiana – Robinson\n211 Summit Park Drive\, Pittsburgh\, PA 15275 \nRSVP\nPlease register by January 25\, 2015 by calling the Chapter office at 724-741-6160 or sending an e-mail to rsvp@westpennhemophilia.org. \nPlease include your name\, phone number\, and the total number of people in your party who are planning to attend. \nSponsor\nThank you to CSL Behring for sponsoring this event. \n 
URL:https://wpbdf.org/event/advocacy-101/
LOCATION:Harrisburg-Day-2019-3
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2023/01/buffet.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20150801T120000
DTEND;TZID=America/New_York:20150801T170000
DTSTAMP:20260801T174457
CREATED:20150519T182817Z
LAST-MODIFIED:20230127T013705Z
UID:34557-1438430400-1438448400@wpbdf.org
SUMMARY:Women's Program
DESCRIPTION:Self-Care for Bleeding Disorder Caregivers – Put Your Oxygen Mask on First\nCaring for a child or partner can be exhausting. Bleeding disorders affect everyone in the family and you can experience a range of emotions from anger and anxiety to pride and satisfaction. This workshop is designed to help caregivers identify and accept the feelings encountered while caring for a loved one with a bleeding disorder as well as learn how to manage the tasks and feelings associated with being a caregiver with greater ease. \nYou will gain a clearer sense of priorities in caring for a loved one as well as explore the power of delegation and becoming comfortable using it. This workshop focuses on increasing your ability to care for yourself and how to care for your own body and spirit. You will learn to create balance so when you are in the role of caregiver you are operating at maximum efficiency! \nTake a break this summer and join your fellow female caregivers for this wonderful program! The workshop will be held at The Inn on Negley (a beautifully restored 1884 Victorian home in Pittsburgh’s Shadyside neighborhood) and will include an Afternoon Tea. \nDate\nSaturday\, August 1\, 2015 \nTime\n12:00 p.m. – 5:00 p.m. \nLocation\nThe Inn on Negley\n703 S Negley Ave.\nPittsburgh\, PA 15232\nRSVP\nTo register\, please call Janet Barone\nat 724-741-6160 or send an\ne-mail to rsvp@wpcnhf.org.
URL:https://wpbdf.org/event/womens-program/
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2023/01/FAmily-in-living-room.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20150207T093000
DTEND;TZID=America/New_York:20150207T140000
DTSTAMP:20260801T174457
CREATED:20150110T014052Z
LAST-MODIFIED:20230127T014125Z
UID:34519-1423301400-1423317600@wpbdf.org
SUMMARY:Educational Scholarship Workshop
DESCRIPTION:  \nLunch\, Informational Presentations & Hands-on Help applying for Scholarships\n For individuals with bleeding disorders\, guardians & siblings \n \nTopics include: Navigating the Financial Aspects of Higher Learning and Writing a Winning Scholarship Essay. \nDate: Saturday\, February 7\, 2015 \nTime: Check-in and Continental Breakfast begin at 9:30am\, Program will be held from 10:00am-2:00pm \nLocation: Regional Learning Alliance \n850 Cranberry Woods Drive\, Cranberry Township\, PA 16066 \nLearn… \n\nHow to apply for financial aids\nDiscover how to access $1\,000’s of dollars in untapped scholarships\nFind out about educational accommodations that lead to success.\n\nPlease RSVP by February 1\, 2015 to rsvp@westpennhemophilia.org or 724-741-6160 \nSponsored by Cottrill’s Pharmacy and Bayer Health Care
URL:https://wpbdf.org/event/educational-scholarship-workshop/
LOCATION:Walk-Poster
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2023/01/Cottrills.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20150225
DTEND;VALUE=DATE:20150228
DTSTAMP:20260801T174457
CREATED:20150122T014849Z
LAST-MODIFIED:20230127T014108Z
UID:34532-1424822400-1425081599@wpbdf.org
SUMMARY:Washington Days
DESCRIPTION:
URL:https://wpbdf.org/event/washington-days/
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2022/11/capitol-building.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20221105
DTEND;VALUE=DATE:20221107
DTSTAMP:20260801T174457
CREATED:20220415T181205Z
LAST-MODIFIED:20230127T005237Z
UID:35252-1667606400-1667779199@wpbdf.org
SUMMARY:Education Weekend
DESCRIPTION:The Western Pennsylvania Bleeding Disorders Foundation’s Education Weekend benefits patients and their families living with hemophilia\, von Willebrand Disease\, and other rare bleeding disorders. All ages are welcome!\nWhen: November 5-6\, 2022 \nWhere: Seven Springs Mountain Resort\n777 Waterwheel Dr.\, Seven Springs\, PA 15622 \nProgram Information: \nThe weekend will include sessions for adults with bleeding disorders and parents of children with bleeding disorders. Special programs and activities are provided for children ages 5-18 and daycare is provided for children ages 0-4. \nSessions include: \n\nControlling Bleeding — The basic and the new\nInfusion Training\nMental Health\nResearch Panel Discussion\nSocial Activities\n\nFun\, educational sessions and activities will be provided for children\, based on age group. Activities may include bowling\, indoor mini-golf\, scavenger hunt\, and game room. Two special pre-conference programs will be offered for Friday evening\, November 4: Teen & Parent and New Parent Network. Invitations for those programs will be sent to eligible members. \n\nThe weekend includes:\n1 or 2 Night Hotel Stay\nMeals and Snacks\nEducation Sessions for Adults\nSupervision\, Education Sessions\, and Activities for Children\nDaycare for Infants and Preschoolers\n\nThe only cost to attend this event is a $25 non-refundable registration fee\, per family (due at time of registration). If the $25 registration fee and/or cost of transportation would present a hardship that would prevent you from attending\, you may apply for a scholarship. \nRegistration is limited to immediate family members living in the household with the person who has a bleeding disorder. \n \n“I’m the mom of an eight-year-old boy with Severe Type A Hemophilia\, and I’m also a carrier of Hemophilia. I’m excited to learn more about treatment options for bleeding disorders. I’m also looking forward to connecting with other bleeding disorder families.” – Kelly \nHotel Rooms and Meals: \nFriday\, November 4 – A hotel room will be provided ONLY for those who qualify and will be participating in the pre-conference Teen & Parent program or New Parent Network program\, and for those who live more than 100 miles from Seven Springs Mountain Resort. Meals and child supervision on Friday night will only be provided for families that are participating in a program that evening. \nSaturday\, November 5 – A hotel room\, meals\, education sessions\, children’s programs\, and childcare will be provided for all registered families. Event begins at 9:00 AM on Saturday. \nSunday\, November 6 – Breakfast\, education sessions\, optional infusion training\, and child supervision will be provided for all registered families. Event will conclude around noon. \n \n“I was diagnosed at the age of 63 with Hemophilia B after hemorrhaging after a tooth extraction. I look forward to learning about the new and emerging therapies\, tips on safely staying active\, and learning how to self -infuse. In addition\, seeing familiar members of the bleeding disorder community gives great comfort and support. I also look forward to making new friends and sharing experiences.” – Paul \nRegistration Information: \n\nTo request registration forms\, send an email to rsvp@wpbdf.org or call 724-741-6160.\nThe deadline to request registration forms and a scholarship application is September 7\, 2022.\nWPBDF must receive completed registration forms and deposit (or scholarship application) by September 21\, 2022.\n\n \n“Hi\, my name is Tori B. And I have von Willebrand Disease (VWD). I have been involved with the bleeding disorder community for quite some time. My favorite events are being a volunteer or camp counselor at Camp Hot-to-Clot\, advocating for people with bleeding disorders in Washington D.C.\, and attending events with the chapter. I’m looking forward to Education Weekend and I’m excited to attend some Young Adult sessions.” – Tori \nDeadline to request Registration Forms:\nSeptember 7\, 2022\nYou are encouraged to register early!\nPlease note: Any family that has registered for and no-showed this event in the past or has no-showed multiple events in the last 18 months (without a medical reason) may be placed on a waiting list.\n \n“We are looking forward to reconnecting with other members of the bleeding community. We are also interested in learning what is new on the research frontier.” – Scott \nQuestions: Contact the Foundation at rsvp@wpbdf.org or call 724-741-6160.
URL:https://wpbdf.org/event/education-weekend-4/
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2023/01/education-weekend-2022-logo-1-scaled-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20150420
DTEND;VALUE=DATE:20150421
DTSTAMP:20260801T174457
CREATED:20150211T192526Z
LAST-MODIFIED:20230127T013908Z
UID:34536-1429488000-1429574399@wpbdf.org
SUMMARY:Harrisburg Day
DESCRIPTION:On Monday\, April 20\, 2015\, members and friends of the Western Pennsylvania Chapter of the National Hemophilia Foundation will join volunteers from the Eastern PA Chapter in Harrisburg to speak with legislators about the needs of the Pennsylvania bleeding disorders community.  This is a very important day for bleeding disorders in Pennsylvania and we really need your help!  This annual day helps state senators and house members understand key issues affecting our families and patients and we hope you will be able to join us as we make our voices heard. \nISSUE #1:  CONTINUED FUNDING FOR THE PENNSYLVANIA HEMOPHILIA PROGRAMS\nISSUE #2: HIGH COST SHARING FOR FACTOR CONCENTRATES\nPlease join us for this important day! \nPlease fill out this registration form and e-mail\, mail\, or fax this form to us by March 20th.  Details about the day will be forwarded to you once we receive your registration. \nUS Mail: WPCNHF\, 20411 Rt. 19\, Unit 14\, Cranberry Township\, PA 16066 \nE-Mail: rsvp@wpcnhf.org \nFax: 724-741-6167
URL:https://wpbdf.org/event/harrisburg-day/
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2022/11/harrisburgDay_04.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20150320T180000
DTEND;TZID=America/New_York:20150322T103000
DTSTAMP:20260801T174457
CREATED:20150122T012831Z
LAST-MODIFIED:20230127T014007Z
UID:34531-1426874400-1427020200@wpbdf.org
SUMMARY:Teen & Parent Retreat
DESCRIPTION:Teenagers and their parents are invited to join us at the beautiful Family Retreat Center in Mars\, PA.  The weekend will include a great teen and parent program tailored for our group\, by Patrick Torrey.   The weekend will also include opportunities for both teens and parents to spend time with their peers and enjoy the retreat center! \nTeenagers ages 13-18 are invited. At this time\, there is a limit of one parent per family\, and a parent MUST accompany their teen(s). No other family members are permitted to attend. There is no cost. \nThe deadline for pre-registration was December 21st.  Registration forms have been mailed to those who pre-registered and and are qualified to attend.  Please call Janet Barone at 724-741-6160 or e-mail her at janet@wpcnhf.org with any questions.
URL:https://wpbdf.org/event/teen-parent-retreat/
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2022/11/Teens-on-stairs.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20150723T180000
DTEND;TZID=America/New_York:20150723T203000
DTSTAMP:20260801T174457
CREATED:20150519T182039Z
LAST-MODIFIED:20230127T013720Z
UID:34555-1437674400-1437683400@wpbdf.org
SUMMARY:WPCNHF Annual Meeting
DESCRIPTION:This year\, our Annual Meeting will be held at Dave & Busters! You will hear short presentations from factor manufacturers about their products\, programs\, and/or services. \nThe evening will include exhibit displays from home healthcare and factor manufacturers\, a buffet dinner\, and game cards. \nTime & Location:\nRegistration and exhibits begin at 6:00 p.m.\nDave & Buster’s – The Waterfront\, 180 E Waterfront Dr\, Homestead\, PA 15120 \nRSVP:\nTo register\, send an e-mail or call 724-741-6160 by July 15. If children will be attending\, please be sure to include their ages.
URL:https://wpbdf.org/event/wpcnhf-annual-meeting/
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2023/01/daveandbusters.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20150427T180000
DTEND;TZID=America/New_York:20150427T203000
DTSTAMP:20260801T174457
CREATED:20150320T195021Z
LAST-MODIFIED:20230127T013849Z
UID:34540-1430157600-1430166600@wpbdf.org
SUMMARY:Food & Fitness Basics
DESCRIPTION:WPCNHF invites you to join us for a cooking class and dinner!\nDuring this fun and educational hands-on event you will get a chance to see a cooking demonstration as well as explore: \n\nThe benefits of physical activity and good nutrition.\nGuidelines for choosing physical activities and exercises.\nReading food labels and making healthy food choices.\nHow small changes may help lead to a healthier lifestyle.\n\nMonday April 27th\, 2015\n6:00 pm – 8:30 pm\nGiant Eagle Market District\n100 Settlers Ridge Center Drive\nPittsburgh\, PA 15205 \nSpace is limited.  Please RSVP by April 24th by calling 724-741-6160 or e-mailing Janet at janet@wpcnhf.org. \nThank you to NovoNordisk for sponsoring this program.
URL:https://wpbdf.org/event/food-fitness-basics/
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2023/01/family-cooking.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20150129T180000
DTEND;TZID=America/New_York:20150129T200000
DTSTAMP:20260801T174457
CREATED:20150110T010301Z
LAST-MODIFIED:20230127T014212Z
UID:34515-1422554400-1422561600@wpbdf.org
SUMMARY:Advocacy 101
DESCRIPTION:Dinner and a Program\nWPCNHF invites you to attend a dinner and education program on advocacy. This is a great opportunity for adults and teenagers to learn why it’s important to be an advocate\, what some of the key issues are nationally and in Pennsylvania\, and what to expect at the upcoming NHF Washington Days and the State Advocacy Day in Harrisburg. \nYou will hear from the following speakers: \nKarla Beckner White\, State Government Affairs\, CSL Behring \nMary Garvey\, Public Policy Analyst\, NHF \n Date\nThursday\, January 29\, 2015 \nTime\nCheck-in begins at 6:00 p.m. \nDinner & Program begin at 6:30 p.m. \nLocation\nBravo! Cucina Italiana – Robinson\n211 Summit Park Drive\, Pittsburgh\, PA 15275 \nRSVP\nPlease register by January 25\, 2015 by calling the Chapter office at 724-741-6160 or sending an e-mail to rsvp@westpennhemophilia.org. \nPlease include your name\, phone number\, and the total number of people in your party who are planning to attend. \nSponsor\nThank you to CSL Behring for sponsoring this event. \n 
URL:https://wpbdf.org/event/advocacy-101/
LOCATION:Harrisburg-Day-2019-3
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2023/01/buffet.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20150801T120000
DTEND;TZID=America/New_York:20150801T170000
DTSTAMP:20260801T174457
CREATED:20150519T182817Z
LAST-MODIFIED:20230127T013705Z
UID:34557-1438430400-1438448400@wpbdf.org
SUMMARY:Women's Program
DESCRIPTION:Self-Care for Bleeding Disorder Caregivers – Put Your Oxygen Mask on First\nCaring for a child or partner can be exhausting. Bleeding disorders affect everyone in the family and you can experience a range of emotions from anger and anxiety to pride and satisfaction. This workshop is designed to help caregivers identify and accept the feelings encountered while caring for a loved one with a bleeding disorder as well as learn how to manage the tasks and feelings associated with being a caregiver with greater ease. \nYou will gain a clearer sense of priorities in caring for a loved one as well as explore the power of delegation and becoming comfortable using it. This workshop focuses on increasing your ability to care for yourself and how to care for your own body and spirit. You will learn to create balance so when you are in the role of caregiver you are operating at maximum efficiency! \nTake a break this summer and join your fellow female caregivers for this wonderful program! The workshop will be held at The Inn on Negley (a beautifully restored 1884 Victorian home in Pittsburgh’s Shadyside neighborhood) and will include an Afternoon Tea. \nDate\nSaturday\, August 1\, 2015 \nTime\n12:00 p.m. – 5:00 p.m. \nLocation\nThe Inn on Negley\n703 S Negley Ave.\nPittsburgh\, PA 15232\nRSVP\nTo register\, please call Janet Barone\nat 724-741-6160 or send an\ne-mail to rsvp@wpcnhf.org.
URL:https://wpbdf.org/event/womens-program/
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2023/01/FAmily-in-living-room.jpg
END:VEVENT
END:VCALENDAR