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X-WR-CALDESC:Events for Western PA Bleeding Disorder Foundation
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260527T183000
DTEND;TZID=America/New_York:20260527T200000
DTSTAMP:20260524T163616
CREATED:20260422T143611Z
LAST-MODIFIED:20260422T143611Z
UID:38359-1779906600-1779912000@wpbdf.org
SUMMARY:Living with Hemophilia B: From Challenges to Hopeful Futures
DESCRIPTION:When: May 27\, 2026 | 6:30 PM\nWhere: Virtual on Zoom\nAre you experiencing challenges in your hemophilia B Care? Let’s talk about it. \nLiving with hemophilia B can present unique challenges. This program explores common roadblocks and invites you to share your hopes for the future of hemophilia B management. Are you ready to talk about it? Your voice matters. \nAttendees will receive a $15 DoorDash e-gift card (up to $45 per family) after attending the entire program. \nRegister online at: https://tinyurl.com/2kexvn5r \n 
URL:https://wpbdf.org/event/living-with-hemophilia-b-from-challenges-to-hopeful-futures/
LOCATION:Virtual
CATEGORIES:Programs
ATTACH;FMTTYPE=image/png:https://wpbdf.org/wp-content/uploads/2026/04/Living-with-Hemophilia-B-From-Challenges-to-Hopeful-Futures-1.png
ORGANIZER;CN="Kara Dornish":MAILTO:kara@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260531T130000
DTEND;TZID=America/New_York:20260531T180000
DTSTAMP:20260524T163616
CREATED:20260218T154732Z
LAST-MODIFIED:20260218T154732Z
UID:38212-1780232400-1780250400@wpbdf.org
SUMMARY:Backyard Battle of the Bags Cornhole Tournament
DESCRIPTION:Get ready for an afternoon of bags\, brews\, and bragging rights! Join us on Sunday\, May 31st for an outdoor cornhole tournament inspired by one of the greatest rivalries around—Pitt vs. WVU. Whether you bleed blue and gold or cheer for the Mountaineers\, this event is all about friendly competition\, good vibes\, and supporting an incredible cause. \nAll proceeds from the tournament will benefit the Western Pennsylvania Bleeding Disorders Foundation (WPBDF) and the West Virginia Chapter of the National Bleeding Disorders Foundation (WVNBDF)\, because no matter which side you’re on\, we all win when we come together for our bleeding disorders community. \n📍 Location\nCobblehaus Brewing Company\n1021 5th Ave\nCoraopolis\, PA 15108 \n⏰ Schedule\nCheck-in & warm-up: 1:00 PM\nTournament begins: 1:30 PM \n Registration:\nSocial Division \n\nEarly Bird (now through April 1): $40\nRegular Price (after April 1): $50\n\nCompetitive Division \n\nEarly Bird (now through April 1): $50\nRegular Price (after April 1): $60\n\nThis is a double-elimination tournament\, professionally managed by Steel City Cornhole\, ensuring a smooth and competitive experience for all teams. \nEnjoy delicious brews made by Cobblehaus Brewing Co.\, with a special bleeding disorders brew made specifically for this event! A portion of all sales from our brew will be donated back to WPBDF and WVBDF. Thank you to Cobblehaus Brewing Co. for supporting the bleeding disorders community! \nPrizing:\nCompetitive Division \n\n1st Place Team: $400\n2nd Place Team: $200\n3rd Place Team: $100\n\nSocial Division \n\n1st Place Team: Winner takes all – $100\n\nSo\, grab a teammate\, rep your colors\, and help us turn a legendary rivalry into an unforgettable day for a great cause! 🏈🎯🍻 \n🎯 Toss Bags. Raise Funds. Win Swag.\nParticipants who raise $25 by Friday\, April 24\, will receive a commemorative event t-shirt as a thank-you for supporting the bleeding disorders community! When you register\, be sure to select Team Pittsburgh or Team West Virginia! Stay tuned for the t-shirt design reveals!
URL:https://wpbdf.org/event/backyard-battle-of-the-bags-cornhole-tournament/
LOCATION:Cobblehaus Brewing Company\, 1021 5th Avenue\, Coraopolis\, 15108\, United States
CATEGORIES:Fundraisers
ATTACH;FMTTYPE=image/png:https://wpbdf.org/wp-content/uploads/2026/02/cornhole-2026-flyer_FINAL_PNG-scaled.png
ORGANIZER;CN="Jessica Lee":MAILTO:jessica@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260612
DTEND;VALUE=DATE:20260615
DTSTAMP:20260524T163616
CREATED:20260401T163339Z
LAST-MODIFIED:20260401T163339Z
UID:38313-1781222400-1781481599@wpbdf.org
SUMMARY:Stay In Motion Education Weekend
DESCRIPTION:Stay In Motion Weekend is designed to educate and empower individuals and families living with bleeding disorders to embrace movement\, stay active\, and build habits that support joint health\, strength\, and overall well-being. Safe\, consistent activity is one of the most effective ways for individuals with bleeding disorders to protect their joints\, reduce stiffness\, improve mobility\, and support long-term physical and mental health. Participants will have the opportunity to take part in safe activities—such as a hike\, strength training with resistance bands\, and tai chi—according to their own abilities. Educational sessions will cover topics such as exercise and brain chemistry\, building healthy habits\, and eating healthy on a budget. \nStay In Motion Weekend Includes:\n\nTwo Night Hotel Stay\nMeals and Snacks\nActivities for Adults & Teens\nSupervision for Children\n\nThe only cost to attend this event is a $50 non-refundable registration fee\, per family (due at the time of registration). If the $50 registration fee and/or cost of transportation would present a hardship that would prevent you from attending\, you may apply for a scholarship. \nRegistration is limited to immediate family members living in the household with the person who has a bleeding disorder. \nAgenda*:\nFriday\, June 12 – Hotel check-in begins at 4:00 pm. Registration for the Stay in Motion Education Weekend will begin at 6:00 pm with exhibit displays from our sponsors. Dinner and an overview of the weekend will follow. \nSaturday\, June 13 – Breakfast and exhibit displays will begin at 8:00 am. Childcare will be available from 8:45 am to 4:30 pm. Programming will begin at 9:00 am and will feature a half-mile hike on a level\, paved trail (accessible for individuals with limited mobility and mobility devices). There will be an option to join an additional hike on a more challenging trail! \nLunch will be at 1:00 pm and offer another opportunity to speak with our sponsors at their exhibits. The afternoon will feature educational sessions about exercise and brain chemistry\, building healthy habits\, and eating healthy on a budget. You can then choose between different activities\, like exercise with resistance bands or yoga. Dinner will be served at 6:00 pm. After dinner\, you will be free to enjoy the resort on your own. \nSunday\, June 14 – Breakfast will begin at 8:00 am. Childcare will be available from 8:45 am to 11:00 am. Together\, we will learn and practice tai chi! Adventure Passes will be distributed and we encourage you to enjoy the rest of the day at the resort on your own! Hotel check-out will be at 11:00 am. \n*Agenda is subject to change\nRegistration Information:\nTo request a registration form\, send an email to rsvp@wpbdf.org or call 724-741-6160. Once approved\, you will receive a link to fill out your registration form online. \nThe $50 registration fee can be paid with a check\, money order\, or credit card. \nCompleted registration form (including all signed documents) and the registration fee (or scholarship application) must be received by April 30. \nCompleted registration forms and $50 registration fee (or scholarship application) must be received by April 30\, 2026.\nYou are encouraged to register early!  \nPlease note: Any family that has registered and no-showed Education Weekend in the past or no-showed multiple events in the last 18 months (without a medical reason) may be put on a waiting list.\n \n“I’m excited for this year’s Education Weekend! I look forward to spending the weekend outdoors and participating in all of the fun activities that are available at Seven Springs. We held our Young Adult Retreat here a few years ago and I really enjoyed the activities\, like paddle boarding and the outdoor swimming pool! If you are looking for ways to get involved in the community and learn about ways to support your physical health\, sign up today. You won’t regret it!” \nTori\, WPBDF Board of Directors
URL:https://wpbdf.org/event/stay-in-motion-education-weekend/
LOCATION:Seven Springs\, 777 Water Wheel Dr\, Seven Springs\, PA\, 15622\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/png:https://wpbdf.org/wp-content/uploads/2026/04/Screenshot-2026-04-01-121758.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260625T180000
DTEND;TZID=America/New_York:20260625T203000
DTSTAMP:20260524T163616
CREATED:20260427T194830Z
LAST-MODIFIED:20260427T194830Z
UID:38363-1782410400-1782419400@wpbdf.org
SUMMARY:Explore Sanofi’s treatment options for Hemophilia A and B!
DESCRIPTION:You’re invited to join us for an engaging presentation to learn more about Sanofi’s treatment options for Hemophilia A and B. This program will be hosted by Paul Brayshaw\, Community Relations and Education Manager at Sanofi. \nWhen:\nThursday\, June 25\, 2026\n6:00 pm – 8:30 pm\nWhere:\nBravo! Italian Kitchen\n250 W Bridge Street\nHomestead\, PA 15120\nTo register\, email rsvp@wpbdf.org or call the Foundation office at 724-741-6160 by Monday\, June 15. Please include any allergies or food restrictions.
URL:https://wpbdf.org/event/explore-sanofis-treatment-options-for-hemophilia-a-and-b/
LOCATION:Bravo! Italian Kitchen Homestead\, 250 W Bridge Street\, Homestead\, PA\, 15120\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/png:https://wpbdf.org/wp-content/uploads/2026/04/Sanofi_treatment_options_june_25_2026_PNG-scaled.png
ORGANIZER;CN="Kara Dornish":MAILTO:kara@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260711
DTEND;VALUE=DATE:20260712
DTSTAMP:20260524T163616
CREATED:20260311T181444Z
LAST-MODIFIED:20260519T144004Z
UID:38268-1783728000-1783814399@wpbdf.org
SUMMARY:Annual Meeting & Erie Education Day
DESCRIPTION:Join us for a beautiful day on the bay in Erie\, PA! This year’s event features our annual meeting\, interactive vendor displays\, the official Walk Kick-off\, and lunch. We are also honored to host a special panel discussion with members of the bleeding disorders community\, who will reflect on our collective legacy and how life and care have evolved over the years. \nEach attendee will receive a $20 Wally Card to use at Waldameer Park after the program for rides\, games\, concessions\, and gifts! \nWe want to help make attendance possible for everyone! Transportation assistance is available for those who need it\, and limited hotel accommodations are available for attendees traveling 200 miles or more. Please request travel or hotel assistance during registration. \nTo register for this event\, email rsvp@wpbdf.org or call the Foundation office at 724-741-6160 by June 22. Please provide your party size\, any food allergies\, and the number of Wally Cards requested (limit 1 per family member in attendance).
URL:https://wpbdf.org/event/annual-meeting-erie-education-day/
LOCATION:Bayfront Convention Center\, 1 Sassafras Pier\, Erie\, PA\, 16507\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/png:https://wpbdf.org/wp-content/uploads/2026/03/annual_meeting_flyer_2026_FINAL_png-1-scaled.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260728T180000
DTEND;TZID=America/New_York:20260728T200000
DTSTAMP:20260524T163616
CREATED:20260401T165539Z
LAST-MODIFIED:20260401T165732Z
UID:38319-1785261600-1785268800@wpbdf.org
SUMMARY:Educational Session on Hemlibra!
DESCRIPTION:To register for this program\, please email rsvp@wpbdf.org or call the Foundation office at 724-741-6160. RSVP by July 23\, 2026.
URL:https://wpbdf.org/event/educational-session-on-hemlibra/
LOCATION:Juniper Grill\, 2030 Mackenzie Way Suite 800\, Cranberry Township\, PA\, 16066\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2026/04/LM26-1249_M-US-00003251v5.0-Its-A-Feeling.-If-You-Know-You-Know-Fireside-Chat-LIVE-Invite_Page_1.jpg
ORGANIZER;CN="Kara Dornish":MAILTO:kara@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260822T100000
DTEND;TZID=America/New_York:20260822T140000
DTSTAMP:20260524T163616
CREATED:20260520T163019Z
LAST-MODIFIED:20260520T163019Z
UID:39513-1787392800-1787407200@wpbdf.org
SUMMARY:Regional Summer Education Day
DESCRIPTION:Join the Western PA and West Virginia Bleeding Disorders Foundations for a day of education\, connection\, and summer fun in the sun! \nThe day will begin with a light breakfast\, followed by sponsor exhibit tables and educational sessions focused on insurance\, participation in sports in the era of novel therapies\, and mental wellness and resilience. \nWe’ll then enjoy a buffet lunch together before attendees receive activity wristbands granting access to many of Oglebay Resort’s attractions\, including the outdoor pool\, zoo\, aerial challenge course\, mini golf\, and more. \nTransportation assistance is available upon request\, and a limited number of hotel rooms are available on Friday evening for guests traveling 150 miles or more. \nOn-site childcare will be provided during the educational programs. \nEmail rsvp@wpbdf.org or call the Foundation office at \n724-741-6160 by August 1. When registering\, please include the total number of attendees\, any food allergies or dietary restrictions\, the ages of any children attending\, and whether you are requesting transportation assistance or hotel accommodations.
URL:https://wpbdf.org/event/regional-summer-education-day-2/
LOCATION:Oglebay Resort\, 465 Lodge Drive\, Wheeling\, WV\, 26003\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/png:https://wpbdf.org/wp-content/uploads/2026/05/Regional.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260901T190500
DTEND;TZID=America/New_York:20260901T213000
DTSTAMP:20260524T163616
CREATED:20260325T143802Z
LAST-MODIFIED:20260325T143802Z
UID:38299-1788289500-1788298200@wpbdf.org
SUMMARY:Fundraising Night at the Washington Wild Things
DESCRIPTION:Join us for a fundraising night at the Washington Wild Things!\nOn Tuesday\, September 1\, the Washington Wild Things will host a Red Out to raise awareness for heart health and blood disorders! WPBDF will be at the game passing out goodies and raising awareness for the signs and symptoms of bleeding disorders! \nJoin us at the game!\nCheer on the Washington Wild Things as they take on the Gateway Grizzlies! Buy tickets at the link below\, and $5 from every ticket will be donated back to WPBDF. Don’t forget to wear your red to show your support for the bleeding disorders community! \nGet tickets at: bit.ly/wpbdf-wild-things \nInterested in Volunteering?\nWe need volunteers to help staff our informational booth throughout the game! You will help us pass out goodies to visitors\, discuss the signs & symptoms of bleeding disorders\, and promote upcoming WPBDF events. Email Jessica at\njessica@wpbdf.org to sign up!
URL:https://wpbdf.org/event/fundraising-night-at-the-washington-wild-things/
LOCATION:EQT Park\, 1 Washington Federal Way\, Washington\, PA\, 15301\, United States
CATEGORIES:Advocacy,Fundraisers
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2026/03/Washington-Wild-Things-Fundraiser-Flyer.jpg
ORGANIZER;CN="Jessica Lee":MAILTO:jessica@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260919T073000
DTEND;TZID=America/New_York:20260919T110000
DTSTAMP:20260524T163616
CREATED:20260218T155831Z
LAST-MODIFIED:20260218T155831Z
UID:38220-1789803000-1789815600@wpbdf.org
SUMMARY:Run for Their Lives 5k
DESCRIPTION:Lace up and join us for the 17th Annual Run for Their Lives 5K on September 19\, 2026! This timed charity fun run features an approximately 3-mile course through the beautiful\, tree-lined streets of North Park in northern Allegheny County\, just north of Pittsburgh\, PA. Your participation helps raise awareness of bleeding disorders and supports essential education and advocacy programs. \nOnline run registration will close at 6:00 PM on Friday\, September 18. In-person registration will begin at 7:30 AM on Saturday\, September 6!  \nDate: Saturday\, September 19\, 2026 \nLocation: North Park Swimming Pool Loop\, 303 Pearce Mill Rd\, Allison Park\, PA 15101 \nTime: Registration begins at 7:30 AM\, Race begins at 8:30 AM \nDistance: 5K (Approximately 3-mile course) \nEach participant will receive a technical race t-shirt (if registered by July 31\, 2026)\, goody bag\, and medal. The final day to ensure a shirt in your size is Friday\, July 31. \nThe registration fee schedule is as follows: \nEarly Bird Pricing – $25 now through May 31\, 2026 \nPre-Race Registration – $30 from June 1 – September 18\, 2026 \nRace Day Fee – $35 \nVirtual Run for Their Lives 5K \nOur hybrid run gives you the choice to join us in-person on September 19 in North Park or be a virtual runner and run one of your favorite courses! No matter where you run\, you’re still raising critical awareness and funds to support those affected by bleeding disorders in Western Pennsylvania! \nRegistration for virtual runners is $25 and includes a t-shirt (if registered by July 31\, 2026)\, race medal\, and goody bag. Virtual runners have the option to have their race packets/bags mailed to them for an additional fee or free pick-up at the WPBDF office located at: 433 State Avenue\, Suite #4\, Beaver PA 15009. \nOur office is open from 9 am – 4 pm. Please contact Jessica\, Race Director\, at jessica@wpbdf.org to coordinate packet pick-up. Stay tuned for more information about virtual race packet pick-up and shipping dates. \nCome for the Run – Stay for the Fun!\nFollowing the Run for Their Lives 5K\, join us for our Unite for Bleeding Disorders Walk to support the Western PA Bleeding Disorder Foundation. Enjoy snacks\, music\, raffles\, games\, and community! For more information about the walk and to register or donate please visit our Walk page at: https://bit.ly/wpbdf-unite \nQuestions?  Call Jessica at 724-741-6160 or e-mail jessica@wpbdf.org. \nRegister today: https://bit.ly/runfortheirlives2026
URL:https://wpbdf.org/event/run-for-their-lives-5k-2026/
LOCATION:North Park Swimming Pool\, S Ridge Drive\, Allison Park\, PA\, 15101\, United States
CATEGORIES:Fundraisers
ATTACH;FMTTYPE=image/png:https://wpbdf.org/wp-content/uploads/2026/02/run_2026_flyer_FINAL_png-scaled.png
ORGANIZER;CN="Jessica Lee":MAILTO:jessica@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260919T083000
DTEND;TZID=America/New_York:20260919T110000
DTSTAMP:20260524T163616
CREATED:20260218T155249Z
LAST-MODIFIED:20260218T155249Z
UID:38217-1789806600-1789815600@wpbdf.org
SUMMARY:Unite for Bleeding Disorders Walk
DESCRIPTION:UNITE for hope. \nUNITE for community. \nUNITE to make a difference.\nJoin us on Saturday\, September 19\, 2026\, at the North Park Swimming Pool for the 18th Annual Unite for Bleeding Disorders Walk! The Unite for Bleeding Disorders Walk brings our community together. It unites families with bleeding disorders and chapters with family\, friends\, neighbors\, and coworkers to support important programs and services to help people with Hemophilia\, von Willebrand Disease\, and other rare bleeding disorders in our community. \nEvent Details\nDate: September 19th\, 2026 \nStarts: 9:00 AM \nEnds: 11:30 AM \nCheck-In Time: 8:30 AM to 9:30 AM \nLocation: North Park Swimming Pool\, 901 South Ridge Drive\, McCandless\, PA 15044 \n_____________________________________________________________________________ \nThe funds generated from our Walk help the Western Pennsylvania Bleeding Disorders Foundation: \n\nPromote patient advocacy and blood safety for everyone\nSupport families in need by offering assistance with medical bills\, travel to and from the treatment center\, knee/elbow braces and other medical devices\nProvide medical ID jewelry to our members at no cost to them\nProvide local educational programming throughout the year\nProvide a support network to all our community members\nCreate and increase awareness about bleeding disorders\n\nYour support means continued education\, support groups\, and patient assistance for our members in need. By participating in our Unite Walk\, you are raising critical funds and awareness for our mission and showing each other the strength & unity of the Bleeding Disorders Community. \nSign up today! \n\nThank you for your interest in supporting the Unite for Bleeding Disorders Walk! Your participation helps us further our mission to discover better treatments and cures for bleeding disorders while preventing complications through education\, awareness\, advocacy\, and research. \nWe invite you to get involved today by starting a team\, joining an existing team\, or making a donation. Then plan to join us on Walk Day! Every dollar raised goes directly to our chapter and brings us closer to making a difference in the lives of those affected by bleeding disorders. \n\nThank you for your support!
URL:https://wpbdf.org/event/unite-for-bleeding-disorders-walk-2026/
LOCATION:North Park Swimming Pool\, S Ridge Drive\, Allison Park\, PA\, 15101\, United States
CATEGORIES:Fundraisers
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2026/02/2026-Unite-Walk-Flyer.jpg
ORGANIZER;CN="Jessica Lee":MAILTO:jessica@wpcnhf.org
END:VEVENT
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