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X-WR-CALNAME:Western PA Bleeding Disorder Foundation
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X-WR-CALDESC:Events for Western PA Bleeding Disorder Foundation
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DTSTART;TZID=America/New_York:20250202T183000
DTEND;TZID=America/New_York:20250202T213000
DTSTAMP:20260825T011034
CREATED:20241030T190207Z
LAST-MODIFIED:20241030T190207Z
UID:37357-1738521000-1738531800@wpbdf.org
SUMMARY:What's So Bloody Funny?
DESCRIPTION:What’s so bloody funny? Support the Western Pennsylvania Bleeding Disorders Foundation with a night of laughs! Join us on Sunday\, February 2\, at the Pittsburgh Improv for a comedy show from Samuel Comroe. A portion of all ticket sales will be donated back to WPBDF! Doors open at 6:00 PM.\n\nGet tickets at: https://bit.ly/wpbdf-comedy\n\nSamuel J. Comroe\, a Los Angeles native\, is a stand-up comedian who performs at over 100 clubs and colleges annually. He made his TV debut on TBS’ Conan and has appeared on BET’s “Real Husbands of Hollywood” with Kevin Hart. In addition to his TV appearances Sam was recently featured on All Def Digital’s Comedy Originals. He is also the winner of Ricky Gervais’ Comedy Competition\, The San Francisco Comedy Competition\, and has over 45\,000 subscribers on his Youtube Channel. His comedy is made up of the trials and tribulations of living with Tourette Syndrome since being diagnosed at age six and observational material based on his life experiences. Most recently\, he finished in 4th place on Season 13 of “America’s Got Talent” on NBC
URL:https://wpbdf.org/event/whats-so-bloody-funny/
LOCATION:Pittsburgh Improv\, 166 East Bridge St\, Homestead\, PA\, 15120\, United States
CATEGORIES:Fundraisers
ATTACH;FMTTYPE=image/png:https://wpbdf.org/wp-content/uploads/2024/10/Whats-so.png
ORGANIZER;CN="Jessica Lee":MAILTO:jessica@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250130T180000
DTEND;TZID=America/New_York:20250130T213000
DTSTAMP:20260825T011034
CREATED:20241031T193951Z
LAST-MODIFIED:20241213T185448Z
UID:37362-1738260000-1738272600@wpbdf.org
SUMMARY:Von Willebrand Disease Educational Dinner Program
DESCRIPTION:Join us for a dinner program and learn about von Willebrand Disease (VWD) with Dr. Claudio Sandoval! Dr. Sandoval will provide an overview of VWD for patients and their caregivers and he will also address some issues specific to females\, such as low iron deficiency and postpartum hemorrhaging. There will be time for questions and answers. \nDinner is included and there’s no cost to attend. To register\, send an email to rsvp@wpbdf.org or call 724-741-6160\, by January 23\, 2025. Please include the number of people attending and let us know if there are any food allergies or dietary requirements. \nThank you to our sponsors\, Octapharma and InfuCareRX!
URL:https://wpbdf.org/event/von-willebrand-disease-educational-dinner-program/
LOCATION:Bravo! Italian Kitchen\, 211 Summit Park Dr\, Pittsburgh\, PA\, 15275\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/10/vwd_program_flyer-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250111T110000
DTEND;TZID=America/New_York:20250111T130000
DTSTAMP:20260825T011034
CREATED:20241018T131051Z
LAST-MODIFIED:20241018T131051Z
UID:37324-1736593200-1736600400@wpbdf.org
SUMMARY:WPBDF's Youth Group: Being Different Belonging Together
DESCRIPTION:Bullying has become a major public health issue\, and it often starts at a very young age. Through a creative process we will discuss this topic and you will be able to address questions\, feelings\, and concerns you might have. You will receive helpful tips on how to navigate difficult situations and come up with creative solutions for creating a safe environment. This program will be presented by Kathaleen Schnur\, LCSW\, from the Hemophilia Center of Western PA. \nThis event is specifically for children aged 7-12 who either have a bleeding disorder or are the sibling of someone with a bleeding disorder. Immediate family members living in the household are welcome. Childcare for younger siblings may be available in a separate room\, during the program. Siblings who are interested and able to sit quietly through a class are welcome to participate in the program with their brother/sister; otherwise\, we encourage use of childcare provided. \nTickets to the Science Center will be included for you and your family to enjoy the Science Center after the program! To register\, send an email to rsvp@wpbdf.org or call 724-741-6160 by December 27. Include: total number of people in your party\, your full name\, names and ages of all children attending the program\, names and ages of children you would like to request child care for during the program.
URL:https://wpbdf.org/event/wpbdfs-youth-group-being-different-belonging-together/
LOCATION:Carnegie Science Center\, 1 Allegheny Avenue\, Pittsburgh\, PA\, 15212\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/10/youth_group_flyer_FINAL.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241207T100000
DTEND;TZID=America/New_York:20241207T130000
DTSTAMP:20260825T011034
CREATED:20240705T133107Z
LAST-MODIFIED:20240705T133107Z
UID:36877-1733565600-1733576400@wpbdf.org
SUMMARY:Winter Program
DESCRIPTION:Please be sure to RSVP by November 25\, at rsvp@wpbdf.org or call the Foundation office at 724-741-6160. Please include the number of people who will be attending\, ages of children attending\, and any allergies or dietary restrictions.
URL:https://wpbdf.org/event/winter-program/
LOCATION:Dave & Buster’s\, 180 E Waterfront Drive\, Homestead\, PA\, 15120\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/07/2024-Winter-Program-Flyer.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241116T173000
DTEND;TZID=America/New_York:20241116T203000
DTSTAMP:20260825T011034
CREATED:20240918T184856Z
LAST-MODIFIED:20240918T184856Z
UID:37295-1731778200-1731789000@wpbdf.org
SUMMARY:Take A Bough
DESCRIPTION:Join us for an evening to honor and celebrate those who have made a lasting impact on the Western Pennsylvania bleeding disorders community! \n📅 Saturday\, November 16\, 2024\n🕰️ 5:30 pm – 8:30 pm\n📍Red Fox Winery\n80 Red Fox Road\nHickory\, PA 15340\nTake A Bough will feature our holiday tree and wreath auction\, a delicious dinner\, games\, music\, and a presentation highlighting WPBDF’s 2024 Initiatives and the volunteers who make our work possible. This auction will showcase decorated trees\, wreaths\, and tabletop centerpieces that are all available for bid. Bidding will open online on Friday\, November 8\, and end at our Final Night Event on Saturday\, November 16\, at 8 pm. Red Fox Winery will also be providing samples of their wine for guests 21 and over. You do not need to attend the Final Night Event to participate in the auction. \nTickets are on sale now! Learn more and grab your tickets at: https://bit.ly/takeabough24
URL:https://wpbdf.org/event/take-a-bough-2024/
LOCATION:Red Fox Winery\, 80 Red Fox Road\, Hickory\, PA\, 15340\, United States
CATEGORIES:Fundraisers
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/09/TAB-Event-Flyer.jpg
ORGANIZER;CN="Jessica Lee":MAILTO:jessica@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241106T180000
DTEND;TZID=America/New_York:20241106T200000
DTSTAMP:20260825T011034
CREATED:20240827T210650Z
LAST-MODIFIED:20240827T211015Z
UID:37045-1730916000-1730923200@wpbdf.org
SUMMARY:Insurance Program
DESCRIPTION:Please RSVP by Monday\, October 28 to: rsvp@wpbdf.org or 724-741-6160. \nPlease be sure to include the total number of adults and children attending and any food allergies or dietary restrictions.
URL:https://wpbdf.org/event/insurance-program-2/
LOCATION:Bravo! Italian Kitchen\, 211 Summit Park Dr\, Pittsburgh\, PA\, 15275\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/08/Insurance-Program.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241101
DTEND;VALUE=DATE:20241104
DTSTAMP:20260825T011034
CREATED:20240821T185542Z
LAST-MODIFIED:20240821T191608Z
UID:37026-1730419200-1730678399@wpbdf.org
SUMMARY:Teen Retreat
DESCRIPTION:For questions or to pre-register\, contact Janet Barone\, WPBDF Program Director (janet@wpbdf.org\, 724-741-6160\, Option 3) or Katherine Bush\, HCWP Social Worker (kbush@vitalant.org\, 412-209-7286).
URL:https://wpbdf.org/event/teen-retreat-4/
LOCATION:Promise Camp & Retreat Center\, 227 Lance Road\, Clinton\, PA\, 15026\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/png:https://wpbdf.org/wp-content/uploads/2024/08/Teen-Retreat-Flyer.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241019T100000
DTEND;TZID=America/New_York:20241019T180000
DTSTAMP:20260825T011034
CREATED:20240821T175612Z
LAST-MODIFIED:20240821T175724Z
UID:37020-1729332000-1729360800@wpbdf.org
SUMMARY:Mead and Bleed Fundraiser
DESCRIPTION:Admission is free for the public! \nIf you would like to be a vendor at this event\, please email meadandbleed@gmail.com. \nVendor fee is $25. Vendor set up begins at 7am and tear down at 6pm. \n 
URL:https://wpbdf.org/event/mead-and-bleed-fundraiser/
LOCATION:Green Township Municipal Building\, 9333 Tate Road\, Erie\, PA\, 16509\, United States
CATEGORIES:Fundraisers
ATTACH;FMTTYPE=image/png:https://wpbdf.org/wp-content/uploads/2024/08/MeadandBleed_Flyer.png
ORGANIZER;CN="Scott Domowicz":MAILTO:rsdomowicz@msn.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241005T100000
DTEND;TZID=America/New_York:20241005T130000
DTSTAMP:20260825T011034
CREATED:20240612T140202Z
LAST-MODIFIED:20240612T141432Z
UID:36834-1728122400-1728133200@wpbdf.org
SUMMARY:Fall Program
DESCRIPTION:Please be sure to RSVP by Friday\, Sepetember 20\, at rsvp@wpbdf.org or call the Foundation office at 724-741-6160. Please include the number of people who will be attending\, ages of children attending\, and any allergies or dietary restrictions. If you would like to go to Splash Lagoon after the program\, please let us know how many people in your party will be swimmers.
URL:https://wpbdf.org/event/fall-program-2/
LOCATION:Ambassador Center\, 7794 Peach Street\, Erie\, PA\, 16509\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/06/Fall-Program-Invitation.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240926T180000
DTEND;TZID=America/New_York:20240926T210000
DTSTAMP:20260825T011034
CREATED:20240713T140020Z
LAST-MODIFIED:20240713T140020Z
UID:36917-1727373600-1727384400@wpbdf.org
SUMMARY:Women's Group - Safety Skills Workshop
DESCRIPTION:RSVP by Monday\, September 16\, by sending an email to rsvp@wpbdf.org or calling 724-741-6160. Please be sure to include the number of attendees and if you have any food allergies or dietary restrictions. \nThis event is open to adult and teenage women and people with the potential to menstruate\, who have a bleeding disorder or are a parent/caregiver or spouse/partner or sibling of someone with a bleeding diagnosis.
URL:https://wpbdf.org/event/womens-group-safety-skills-workshop/
LOCATION:Wilkins School Community Center\, 7604 Charleston Avenue\, Pittsburgh\, PA\, 15218\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/07/Safety-Skills-Workshop-scaled.jpg
ORGANIZER;CN="Kara Dornish":MAILTO:kara@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240921T080000
DTEND;TZID=America/New_York:20240921T230000
DTSTAMP:20260825T011034
CREATED:20240213T143856Z
LAST-MODIFIED:20240613T163212Z
UID:36440-1726905600-1726959600@wpbdf.org
SUMMARY:Unite for Bleeding Disorders Walk
DESCRIPTION:UNITE for hope.\nUNITE for community.\nUNITE to make a difference.\nJoin us on Saturday\, September 21\, 2024\, at the North Park Swimming Pool for the 16th Annual Unite for Bleeding Disorders Walk! The Unite for Bleeding Disorders Walk brings our community together. It unites families with bleeding disorders and chapters with family\, friends\, neighbors\, and coworkers to support important programs and services to help people with Hemophilia\, von Willebrand Disease\, and other rare bleeding disorders in our community. \nThe funds generated from our Walk help the Western Pennsylvania Bleeding Disorders Foundation: \nPromote patient advocacy and blood safety for everyone \nSupport families in need by offering assistance with medical bills\, travel to and from the treatment center\, knee/elbow braces and other medical devices \nProvide medical ID jewelry to our members at no cost to them \nProvide local educational programming throughout the year \nProvide a support network to all our community members \nCreate and increase awareness about bleeding disorders \n \nYour support means continued education\, support groups\, and patient assistance for our members in need. By participating in our Unite Walk\, you are raising critical funds and awareness for our mission and showing each other the strength & unity of the Bleeding Disorders Community. \nSign up today at: https://uniteforbleedingdisorders.org/event/wpa\nRegister today by starting a team\, joining a team\, or being an individual walker. Local businesses are invited to share their support by sponsoring the Unite for Bleeding Disorders Walk or a local walk team! Click here to learn more about our available sponsorship opportunities. \nThank you for your support! \nP.S. This is a dog friendly event! We’d love to see your furry companions joining us on Walk Day! \n\nWPBDF strives to enrich the lives of those with bleeding disorders in Western Pennsylvania and respond to the needs of the community in a dynamic environment. \nThe Western Pennsylvania Bleeding Disorders Foundation is a nonprofit consumer advocacy and service organization founded in the 1950’s and incorporated as a 501(c)(3) nonprofit organization in 1976. \nWe were founded to help meet the vast education and support needs of the bleeding disorders community in Western Pennsylvania. \nWPBDF serves families with bleeding disorders in 26 counties of Western Pennsylvania. Membership is free for people with bleeding disorders. We provide patient assistance to our members with bleeding disorders as well as hold a variety of educational events that cover a wide range of topics. Because bleeding disorders impact nearly every area of our members lives\, we strive to provide relevant and timely information about everything from raising affected children to dealing with financial stress to joint health and treatment concerns and much more.
URL:https://wpbdf.org/event/unite-for-bleeding-disorders-walk-2024/
LOCATION:North Park Swimming Pool\, S Ridge Drive\, Allison Park\, PA\, 15101\, United States
CATEGORIES:Fundraisers
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/02/8.5-x-11-in-WALK-FLYER-scaled.jpg
ORGANIZER;CN="Jessica Lee":MAILTO:jessica@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240921T080000
DTEND;TZID=America/New_York:20240921T113000
DTSTAMP:20260825T011034
CREATED:20240319T160040Z
LAST-MODIFIED:20240919T175130Z
UID:36519-1726905600-1726918200@wpbdf.org
SUMMARY:2024 Cornhole Tournament
DESCRIPTION:Registration will close online at 6:00 PM on September 20. In-person registration will begin at 8:00 AM on September 21 t the North Park Swimming Pool! See you there!\nCornhole Tournament – Saturday\, September 21st\n\nJoin us on Saturday\, September 21st for a morning of cornhole\, refreshments\, and raffles! This is an outdoor tournament. All the proceeds will stay local to benefit the members of the Western Pennsylvania Bleeding Disorders Foundation. \nWhere: North Park Swimming Pool\nS. Ridge Drive \nAllison Park\, PA 15101 \nRegistration and Warm Up Begins at 8:00 am\nTournament Begins at 9:00 am \nCost (Per Team of Two):\nEarly Bird (Now through August 2nd): $50\nPrice goes up to $60 after August 2nd. \nThis double-elimination tournament\, run by Steel City Cornhole\, will be held in conjunction with the Unite for Bleeding Disorders Walk and the Run for Their Lives 5K. This tournament is open to participants of all ages. \nCash prizes will be awarded to the 1st\, 2nd\, and 3rd place winners. \nPrizes:\n1st Place: $400 \n2nd Place: $200 \n3rd Place: $100 \nQuestions? Contact Jessica at jessica@wpbdf.org or 724-741-6160. \n\nThank you to our sponsors!\nCorn in the Hole Sponsor\n \nCorn on the Cob Sponsor
URL:https://wpbdf.org/event/cornhole/
LOCATION:North Park Swimming Pool\, S Ridge Drive\, Allison Park\, PA\, 15101\, United States
CATEGORIES:Fundraisers
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/03/cornhole_2024_flyer-2-scaled.jpg
ORGANIZER;CN="Jessica Lee":MAILTO:jessica@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240921T073000
DTEND;TZID=America/New_York:20240921T233000
DTSTAMP:20260825T011034
CREATED:20240208T170928Z
LAST-MODIFIED:20240613T163118Z
UID:36403-1726903800-1726961400@wpbdf.org
SUMMARY:Run for Their Lives 5K
DESCRIPTION:Register online at: https://bit.ly/runfortheirlives2024\nJoin us for the 15th Annual Run for Their Lives 5K happening in-person on September 21\, 2024!  Your participation will help raise awareness of bleeding disorders and help raise needed funds for education and advocacy. Run through beautiful tree-lined streets in North Park\, located in northern Allegheny County\, just north of Pittsburgh\, PA. \nDate: Saturday\, September 21\, 2024 \nLocation: North Park Swimming Pool Loop\nS. Ridge Drive\nAllison Park\, PA 15101 \nTime: Registration begins at 7:30 AM\, Race begins at 8:30 AM\nDistance: 5K (3.1 miles) \nEach participant will receive a technical race t-shirt\, goody bag\, and medal. The final day to ensure a shirt in your size is Friday\, August 2nd. \nThe registration fee schedule is as follows: \nEarly Bird Pricing – $25 now through May 31\, 2024. \nPre-Race Registration – $30 from June 1 – September 20\, 2024 \nRace Day Fee – $35 \nVirtual Run for Their Lives 5K \nOur hybrid run gives you the choice to join us in-person on September 21st in North Park or be a virtual runner and run one of your favorite courses! No matter where you run\, you’re still raising critical awareness and funds to support those affected by bleeding disorders in Western Pennsylvania! \nRegistration for virtual runners is $25 and includes a t-shirt\, race medal\, and goody bag. Virtual runners have the option to have their race packets/bags mailed to them for an additional fee or free pick-up at the WPBDF office located at: \nWPBDF \n775 Fourth Street\, First Floor \nBeaver PA 15009 \nOur office is open from 9 am – 4 pm. Please contact Jessica\, Race Director\, at jessica@wpbdf.org to coordinate packet pick-up. Stay tuned for more information about virtual race packet pick-up and shipping dates. \nCome for the Run – Stay for the Fun!\nFollowing the Run For Their Lives 5K\, there will be our Unite for Bleeding Disorders Walk to support the Western PA Bleeding Disorder Foundation.  For more information about the walk and to register or donate please visit our Walk page at: https://uniteforbleedingdisorders.org/event/wpa \nQuestions?  Call Jessica at 724-741-6160 or e-mail jessica@wpbdf.org.
URL:https://wpbdf.org/event/run-for-their-lives-5k-2/
LOCATION:North Park Swimming Pool\, S Ridge Drive\, Allison Park\, PA\, 15101\, United States
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/02/run_for_their_lives_5k_design_file_early_bird-scaled.jpg
ORGANIZER;CN="Jessica Lee":MAILTO:jessica@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240903
DTEND;VALUE=DATE:20240904
DTSTAMP:20260825T011034
CREATED:20240712T134544Z
LAST-MODIFIED:20240827T172833Z
UID:36895-1725321600-1725407999@wpbdf.org
SUMMARY:Fall Flower Fundraiser
DESCRIPTION:Order your fall flowers and support the Western PA Bleeding Disorders Foundation!\nA portion of all sales will be donated back to the Foundation to provide education\, support groups\, and patient assistance to families and individuals living with a bleeding disorder in Western PA! \nIf you would prefer to pay by check\, fill out the order form\, and mail the completed form with your check to the Foundation office. If you would like to pay with cash\, you can stop at the Foundation office with your completed order form. Please do NOT send cash through the mail. \nDownload an order form here: 2024 Fall Flower Fundraiser \nThe FINAL day to order is Tuesday\, September 3! \nPicking up your flowers:\nWhen:\nSaturday\, September 21\, 2024\n9:00 am – 11:00 am \nWhere:\nNorth Park Swimming Pool Parking Lot\nS. Ridge Drive\nAllison Park\, PA 15101 \nIf you are unable to pick up your flowers on that day\, please contact Jessica Lee at jessica@wpbdf.org or by phone at 724-741-6160 to arrange alternative pick-up options at the Foundation office\, located at: \n775 Fourth Street\, First Floor\nBeaver\, PA 15009
URL:https://wpbdf.org/event/fall-flower-fundraiser/
LOCATION:North Park Swimming Pool\, S Ridge Drive\, Allison Park\, PA\, 15101\, United States
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/07/fall_flower_flyer_2024-1-scaled.jpg
ORGANIZER;CN="Jessica Lee":MAILTO:jessica@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240817
DTEND;VALUE=DATE:20240818
DTSTAMP:20260825T011034
CREATED:20240722T155147Z
LAST-MODIFIED:20240722T155147Z
UID:36932-1723852800-1723939199@wpbdf.org
SUMMARY:Inspiring Shots Golf Clinc
DESCRIPTION:Learn how to golf or improve your game! Beginners to advanced welcome! Meet and learn from Pro Golfer\, Perry Parker on Saturday\, August 17! \nAdditional clinic dates to be announced. There is no cost for people with bleeding disorders & caregivers. Ages 18 & up only. Golf clubs provided if needed. Come to one session or come to all! Space is limited. \nTo register\, visit: https://www.wingmenfoundation.org/inspiring-shots-golf-clinic/
URL:https://wpbdf.org/event/inspiring-shots-golf-clinc/
LOCATION:Ironwood Golf Center\, 3036 Brodhead Road\, Aliquippa\, PA\, 15001\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/07/inspiring-shots-flyer-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240810T110000
DTEND;TZID=America/New_York:20240810T190000
DTSTAMP:20260825T011034
CREATED:20240610T163306Z
LAST-MODIFIED:20240610T170307Z
UID:36826-1723287600-1723316400@wpbdf.org
SUMMARY:New Parent Network - Summer Picnic
DESCRIPTION:This is part of our New Parent Network program. This picnic is open to families who have a child with a bleeding disorder between the ages of 0-7. To register\, email rsvp@wpbdf.org or call the Foundation office at 724-741-6160 or Kathaleen at the HCWP at 412-209-7267 \n  \nGates open at 10:30 AM. New Parent Network picnic and activities start at 11:30! Additional details will be sent upon registration.
URL:https://wpbdf.org/event/new-parent-network-summer-picnic/
LOCATION:Idlewild and Soak Zone\, 2574 Lincoln Hwy\, Ligonier\, PA\, 15658\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/06/NPN-2024-Invite-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240801T183000
DTEND;TZID=America/New_York:20240801T210000
DTSTAMP:20260825T011034
CREATED:20240624T142524Z
LAST-MODIFIED:20240624T142524Z
UID:36860-1722537000-1722546000@wpbdf.org
SUMMARY:Back to School Program
DESCRIPTION:Join us for dinner and learn how students\, parents\, family members\, and school staff can work together to provide a positive learning environment for students with a bleeding disorder—from preschool through college. \nRSVP by Friday\, July 26\, at rsvp@wpbdf.org or call 724-741-6160. Please include the number of attendees\, ages of children\, and any dietary restrictions.
URL:https://wpbdf.org/event/back-to-school-program/
LOCATION:Grand Concourse\, 100 W Station Square Dr\, Pittsburgh\, PA\, 15219\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/06/Back-to-School-scaled.jpg
ORGANIZER;CN="Kara Dornish":MAILTO:kara@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240728
DTEND;VALUE=DATE:20240803
DTSTAMP:20260825T011034
CREATED:20240612T140903Z
LAST-MODIFIED:20240612T141222Z
UID:36838-1722124800-1722643199@wpbdf.org
SUMMARY:Camp Hot-to-Clot
DESCRIPTION:WPBDF is proud to help support Camp Hot-to-Clot\, which is organized by the Hemophilia Center of Western PA. \nCamp Hot-to-Clot is an overnight summer camp in Western Pennsylvania for youth aged 7-17\, who have a bleeding disorder or who have a sibling with a bleeding disorder\, and who live in Western Pennsylvania or the surrounding area. Fun activities such as swimming\, pickleball\, gaga\, rock wall climbing\, fishing\, canoeing\, archery\, arts & crafts\, and field games are offered in a safe\, nurturing environment that gives campers a chance to broaden their experiences. \nCamp Facility\n\nCamp Hot-to-Clot is held annually at the YMCA Camp Kon-O-Kwee near Zelienople\, PA (approximately 30 miles north of Pittsburgh). Camp Kon-O-Kwee is located on 500 acres of fields and woodlands along Connoquenessing Creek. It is owned and operated by YMCA of Greater Pittsburgh and is accredited by the American Camp Association. \nCamp Hot-to-Clot is staffed with professionals from the bleeding disorders community (including staff from the Hemophilia Center of Western Pennsylvania who specialize in nursing\, physical therapy\, and social work) and professional camp staff from Camp Kon-O-Kwee. Camp Hot-to-Clot staff works closely with Camp Kon-O-Kwee staff to provide a camp session that is safe\, educational\, and fun! \n  \n\n\n\n\n\n\n\n\n\n\nContact Information\n\nCamp Hot-to-Clot is organized by the Hemophilia Center of Western Pennsylvania. Social workers Katherine Bush\, LCSW and Kathaleen Schnur\, LCSW are the camp co-directors. \nFor questions or matters concerning camp\, call the Camp Hot-to-Clot phone line: 412-209-7344 \nThe Camp Hot-to-Clot co-directors\, can also be reached by email:\nKatherine Bush: kbush@vitalant.org\nKathaleen Schnur: kschnur@vitalant.org
URL:https://wpbdf.org/event/camp-hot-to-clot-4/
LOCATION:Camp Kon-o-Kwee\, 126 Nagel Rd\, Fombell\, PA\, 16123\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2023/01/camp-logo.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240724T180000
DTEND;TZID=America/New_York:20240724T203000
DTSTAMP:20260825T011034
CREATED:20240705T133756Z
LAST-MODIFIED:20240705T133756Z
UID:36881-1721844000-1721853000@wpbdf.org
SUMMARY:Women's Group: Candle Making Workshop
DESCRIPTION:Please be sure to RSVP by July 16\, at rsvp@wpbdf.org or call the Foundation office at 724-741-6160. Please include the number of people who will be attending and any allergies or dietary restrictions.
URL:https://wpbdf.org/event/womens-group-candle-making-workshop/
LOCATION:Honey and Heart Candle & Craft Co.\, 151 Grant Ave\, Vandergrift\, PA\, 15690\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/07/womens_group_candle_workshop_FINAL-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240718T180000
DTEND;TZID=America/New_York:20240718T210000
DTSTAMP:20260825T011034
CREATED:20240405T140349Z
LAST-MODIFIED:20240716T162031Z
UID:36592-1721325600-1721336400@wpbdf.org
SUMMARY:WPBDF's Annual Meeting
DESCRIPTION:Join us for dinner\, visit sponsor booths\, and learn more about the services the Foundation offers! We will be celebrating our top volunteers and kicking off the 2024 Unite for Bleeding Disorders Walk! \nAfter the meeting\, everyone is invited to stay and golf! This program is open to members of the Western Pennsylvania Bleeding Disorders Foundation and family members living in their household. This is an all ages event. Adult supervision is required at all times for those ages 16 & under. \nThe deadline to register is Monday\, July 1\, 2024. \nSpace is limited\, so be sure to register early! To register\, send an email to rsvp@wpbdf.org or call the Chapter office at 724-741-6160. Be sure to include the total number of people you are registering for and if there are any food allergies. If children are attending\, please be sure to include their ages. \n  \n  \n \n  \nPfizer – Together for Rare
URL:https://wpbdf.org/event/wpbdfs-annual-meeting/
LOCATION:Top Golf\, 400 Presto-Sygan Rd\, Bridgeville\, PA\, 15017\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/04/annual_meeting_flyer.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240629T140000
DTEND;TZID=America/New_York:20240629T153000
DTSTAMP:20260825T011034
CREATED:20240627T164514Z
LAST-MODIFIED:20240627T164514Z
UID:36869-1719669600-1719675000@wpbdf.org
SUMMARY:Inspiring Shots Golf Clinic
DESCRIPTION:Learn how to golf or improve your golf game! This 4-8 week course is for the beginner to advanced with hands-on golf instruction and a great experience to connect with others. Pro Golfer Perry Parker will also be in attendance at one of the clinics in each area! \n\nTwo participants from each clinic will win a paid trip to the Junior National Championships (JNC) in Nevada and have the chance to win a $2\,500 donation for their local chapter! \n\nClinic Dates:  \nJune 29th \n2:00 pm – 3:30 pm  \n\nAugust 17th \n2:00pm – 3:30pm \n\nAdditional Clinic Dates and Times TBA! \nFREE for people with bleeding disorders and caregivers 18 & up. \nClick Here to Register Today!
URL:https://wpbdf.org/event/inspiring-shots-golf-clinic/
LOCATION:Ironwood Golf Center\, 3036 Brodhead Road\, Aliquippa\, PA\, 15001\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/06/2024-Inspiring-Shots-WPA-1-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240628
DTEND;VALUE=DATE:20240701
DTSTAMP:20260825T011034
CREATED:20240213T143239Z
LAST-MODIFIED:20240621T143939Z
UID:36435-1719532800-1719791999@wpbdf.org
SUMMARY:Couples Retreat
DESCRIPTION:Attention Couples! Whether you are a couple in a newer\, serious relationship and want tools to start off successfully. or you are a couple in a long-term\, committed relationship who wants a deeper connection\, and whether you are in a relationship where one partner has a bleeding disorder or you are a couple raising a child with a bleeding disorder\, this retreat is for you!  \nThis retreat is available to all couples (dating\, engaged\, or married) regardless of orientation\, ages 21 and up\, and are members of the Western or Eastern Pennsylvania Bleeding Disorders Foundations. \nTo register\, send an email to rsvp@wpbdf.org. The final day to register is Friday\, May 24!  \nWPBDF and EPBDF are organizations of acceptance and tolerance for all of its members and the patients it serves\, regardless of race\, color\, ethnicity\, national origin\, religion\, sex\, sexual orientation\, gender identity or expression\, age or disability. \nThank you to our amazing sponsors: \n \n 
URL:https://wpbdf.org/event/couples-retreat/
LOCATION:Liberty Mountain Resort\, 78 Country Club Trail\, Fairfield\, PA\, 17320\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/png:https://wpbdf.org/wp-content/uploads/2024/02/CouplesRetreat2024email.png
ORGANIZER;CN="Kara Dornish":MAILTO:kara@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240622T160500
DTEND;TZID=America/New_York:20240622T210000
DTSTAMP:20260825T011034
CREATED:20240208T171316Z
LAST-MODIFIED:20240215T205406Z
UID:36407-1719072300-1719090000@wpbdf.org
SUMMARY:Pittsburgh Pirates Fundraiser
DESCRIPTION:When: Saturday\, June 22\, 2024\nGame Time: 4:05 PM\n\nWhere:\nPNC Park\n115 Federal Street\nPittsburgh\, PA 15212\n\nTickets: $36 per person\n\nThe Pittsburgh Pirates are teaming up with Western PA Bleeding Disorders Foundation to help enrich the lives of those with bleeding disorders in Western Pennsylvania. $10 of each ticket sold will benefit the Western PA Bleeding Disorders Foundation! The first 20\,000 fans will get an exclusive bobblehead!\n\nSeat Location: Section 131\nPick your row online!\n\nWPBDF strives to enrich the lives of those with bleeding disorders in Western Pennsylvania and respond to the needs of the community in a dynamic environment.\n\nGet tickets online at: https://fevo-enterprise.com/event/WPBDF2024
URL:https://wpbdf.org/event/pittsburgh-pirates-fundraiser/
LOCATION:PNC Park\, 115 Federal Stret\, Pittsburgh\, PA\, 15212\, United States
CATEGORIES:Fundraisers
ATTACH;FMTTYPE=image/png:https://wpbdf.org/wp-content/uploads/2024/02/Baseball-Night.png
ORGANIZER;CN="Jessica Lee":MAILTO:jessica@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240619T180000
DTEND;TZID=America/New_York:20240619T203000
DTSTAMP:20260825T011034
CREATED:20240522T145845Z
LAST-MODIFIED:20240522T150035Z
UID:36817-1718820000-1718829000@wpbdf.org
SUMMARY:WPBDF's Winning Women's Group
DESCRIPTION:The WPBDF Winning Women’s group invites women and mature teenage girls to join them for an evening dedicated to relaxation! Create your own candle to take home\, enjoy a meal and the company of other women from the Foundation\, and learn about techniques to reduce stress! There’s no cost to participate in this event. Food will be provided. Please let us know if you have any food allergies when you register. \nTo register\, send an email to rsvp@wpbdf.org or call the Foundation office at 724-741-6160\, by June 12. This event is open to members of WPBDF only. \nThe Western Pennsylvania Bleeding Disorders Foundation is an organization of acceptance and tolerance for all of its members and the patients it serves\, regardless of race\, color\, ethnicity\, national origin\, religion\, sex\, sexual orientation gender identity or expression\, age or disability.
URL:https://wpbdf.org/event/wpbdfs-winning-womens-group/
LOCATION:Honey and Heart Candle & Craft Co.\, 151 Grant Ave\, Vandergrift\, PA\, 15690\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/05/womens_group_candle_workshop-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240522T180000
DTEND;TZID=America/New_York:20240522T203000
DTSTAMP:20260825T011034
CREATED:20240404T233140Z
LAST-MODIFIED:20240412T172446Z
UID:36587-1716400800-1716409800@wpbdf.org
SUMMARY:Insurance Basics: Everything You Didn’t Know You Needed to Know
DESCRIPTION:RSVP via email\, rsvp@wpbdf.org\, or calling the Foundation office at 724-741-6160.
URL:https://wpbdf.org/event/insurance-basics-everything-you-didnt-know-you-needed-to-know/
LOCATION:Luciano’s Italian Brick Oven\, 161 Scharberry Lane\, Mars\, PA\, 16046\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/04/insurance_anime_program_flyer_with_photo.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240506T150000
DTEND;TZID=America/New_York:20240507T170000
DTSTAMP:20260825T011034
CREATED:20240105T174058Z
LAST-MODIFIED:20240503T171208Z
UID:36288-1715007600-1715101200@wpbdf.org
SUMMARY:Advocacy Ambassador Education and Training
DESCRIPTION:We are looking for individuals who are interested in supporting the advocacy efforts of the Pennsylvania Bleeding Disorders Foundations throughout the year. Do you have a desire to meet with legislators to help influence decisions on policies that affect individuals and families living with bleeding disorders? \nIf you answered yes\, we would like you to join us in Harrisburg\, on Monday\, May 6 and Tuesday\, May 7\, 2024! \nOn Monday\, May 6\, you will receive training to become a Volunteer Advocacy Ambassador and learn about the issues we will be discussing with legislators the following day. \nOn Tuesday\, May 7\, we will head to the capitol to meet with legislators to advocate for the needs of the bleeding disorders community. Each advocate will be teamed up with other advocates to attend meetings in small groups. \nIf you have any questions\, call 724-741-6160 or send an email to info@wpbdf.org. \nThis training is open to individuals 18 years and older and mature adolescents and teens. No childcare will be provided at this event. \nThis is an overnight training and advocacy day. Training begins at 3 pm on Monday\, May 6. On Tuesday\, May 7\, we will head to the PA state capitol where you will have the opportunity to meet with your local legislators. \nThe Foundations will provide dinner on Monday\, a hotel room at the Harrisburg Hilton on Monday night\, and breakfast on Tuesday morning. \nTransportation assistance is available upon request. \nThe FINAL day to register is Friday\, April 5!\nTo register\, visit: bit.ly/advocacytrainingpa\n  \n \nThank you to our Sponsors \nAccredo\, CSL Behring\, Genentech\, HemaBiologics\, InfuCare\, Novo Nordisk\, Pfizer\, and Sanofi. \nSpecial Thanks to the Hemophilia Alliance and the National Bleeding Disorders Foundation. \n  \nLearn more about Pfizer’s togetherforrare.com and hemhorizon.com.
URL:https://wpbdf.org/event/advocacy-ambassador-education-and-training/
LOCATION:Harrisburg Hilton\, One N 2nd St\, Harrisburg\, PA\, 17101\, United States
CATEGORIES:Advocacy
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/01/advocacy_retreat_flyer_jpg-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240426
DTEND;VALUE=DATE:20240429
DTSTAMP:20260825T011034
CREATED:20240102T194446Z
LAST-MODIFIED:20240111T170600Z
UID:36260-1714089600-1714348799@wpbdf.org
SUMMARY:Education Weekend
DESCRIPTION:The Western Pennsylvania Bleeding Disorders Foundation’s Education Weekend benefits patients and their families living with hemophilia\, von Willebrand disease\, and other rare bleeding disorders. All ages are welcome!\nWhen: April 26 – 28\, 2024 \nWhere: Seven Springs Mountain Resort\n777 Waterwheel Dr.\, Seven Springs\, PA 15622 \nProgram Information:\nThe weekend will include sessions for adults with bleeding disorders and parents of children with bleeding disorders. Special programs and activities are provided for children aged 5-17 (or 18 and in high school) and daycare is provided for children aged 0-4. \nSessions include:\n\nBleeding Disorders 101\nMusculoskeletal\nHands-on Infusion Training\nChildbearing Years and Childbirth\nPreparing for Surgery and After-Surgery Support\n\nFun\, educational sessions and activities will be provided for children\, based on age group. Activities may include bowling\, indoor mini-golf\, scavenger hunts\, and game room. We are excited to announce that this year\, Education Weekend will begin on Friday\, April 26\, for all registered participants! \nThe weekend includes:\n\n2 Night Hotel Stay\nMeals and Snacks\nEducation Sessions for Adults\nSupervision\, Education Sessions\, and Activities for Children\nDaycare for Infants and Preschoolers\n\nThe only cost to attend this event is a $50 non-refundable registration fee\, per family (due at time of registration). If the $50 registration fee and/or cost of transportation would present a hardship that would prevent you from attending\, you may apply for a scholarship. \nRegistration is limited to immediate family members living in the household with the person who has a bleeding disorder. \n \n“Our son\, Zhi\, was recently diagnosed with Hemophilia A and we were naive of what that diagnosis meant for his future. Education Weekend provided our family with the opportunity to educate ourselves about his bleeding disorder. We were able to talk with doctors\, nurses and other families who have children living with the same condition and that helped us tremendously. One of the most satisfying things that came out of this weekend for us was that Zhi had a better understanding of his bleeding disorder and was no longer scared about his diagnosis. He was able to interact with other children with the same or similar condition\, and has made so many new friends.” \nAngela\nHotel Rooms and Meals:\nA hotel room\, meals\, education sessions\, children’s programs\, and childcare will be provided for all registered families during the weekend. \nFriday\, April 26 – Check-in for Education Weekend will begin at 6:00 pm and the Opening Session will begin at 7:00 pm. \nSaturday\, April 27 – Breakfast will begin at 8:00 am. Programs and activities will begin at 9:00 am. After dinner\, you will be free to enjoy the resort on your own. \nSunday\, April 28 – Breakfast will begin at 8:00 AM. Programs\, activities\, and optional infusion training will begin at 9:00 am. The event will conclude by 12:30 pm. \n \n“Hello! I have two children\, Lennox and Scarlett\, ages 8 and 6. I was diagnosed with von Willebrand disease when I was a small child. Currently\, I am the only one in my family to be diagnosed with a bleeding/clotting disorder. At Education Weekend\, I enjoy all the opportunities to connect with others in the community. My favorite activity last year was axe throwing! This year\, I am looking forward to all the learning options there will be. The presentations are always informative and I always leave with more knowledge than I arrived with. Also\, the food is always good!” \nArthur\nRegistration Information:\n\nTo request a registration form\, send an email to rsvp@wpbdf.org or call 724-741-6160. Once approved\, you will recieve a link to fill out your registration form online.\nThe $50 registration fee can be paid with a check\, money order\, or credit card.\nThe deadline to request a registration form and a scholarship application is March 14\, 2024.\nCompleted registration form (including all signed documents) and the registration fee (or scholarship request) must be received by March 17\, 2024.\n\n \n“Our family has had the opportunity to gain valuable knowledge from Education Weekend by attending workshops\, networking with other families\, and learning more about treatments for von Willebrand disease and the platelet disorders that run in our family. We are most excited to continue networking with other families affected by various bleeding disorders at the upcoming conference.” \nLinda\n\n\nCompleted registration forms and $50 registration fee (or scholarship request) must be received by\nMarch 17\, 2024.\nYou are encouraged to register early!\nPlease note: Any family that has registered for and no-showed this event in the past or has no-showed multiple events in the last 18 months (without a medical reason) may be placed on a waiting list.  \nContact the Foundation at rsvp@wpbdf.org or call 724-741-6160.
URL:https://wpbdf.org/event/education-weekend-2024/
LOCATION:Seven Springs\, 777 Water Wheel Dr\, Seven Springs\, PA\, 15622\, United States
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/01/Education-Weekend-One-Pager_FINAL_jpg-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240417T180000
DTEND;TZID=America/New_York:20240417T200000
DTSTAMP:20260825T011034
CREATED:20240209T155101Z
LAST-MODIFIED:20240209T155652Z
UID:36411-1713376800-1713384000@wpbdf.org
SUMMARY:World Hemophilia Day 2024 Celebration!
DESCRIPTION:You’re invited!\nJoin us for a World Hemophilia Day 2024 generation celebration!\nWhen:\nWednesday\, April 17\, 2024\, 06:00 PM – 08:00 PM EDT \nWhere:\nMonterey Bay Fish Grotto\n1411 Grandview Ave\nPittsburgh PA 15211 \nRSVP: \nContact WPBDF! RSVP via email\, rsvp@wpbdf.org\, or calling the Foundation office at 724-741-6160. \nThis community shares a connection that spans generations. Our 2024 One Family program is a celebration of the bond that comes from living with hemophilia: young and old\, near and far\, where we are now and where we want to be. RSVP today to join us for hands-on activities like: \n• Personal time capsule kits\n• Selfie stations and DIY photo frames\n• Wish ribbons for the global community\n• Space to share your story and voice \nIt’s all happening on World Hemophilia Day.
URL:https://wpbdf.org/event/world-hemophilia-day-2024-celebration/
LOCATION:Monterey Bay Fish Grotto\, 1411 Grandview Ave\, Pittsburgh\, PA\, 15211\, United States
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/02/Chapter-Program-Sanofi_OneFamilyWHD2024_Invitation_03NOV2023_1707492177072-2.jpg
ORGANIZER;CN="Kara Dornish":MAILTO:kara@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240328T190000
DTEND;TZID=America/New_York:20240328T210000
DTSTAMP:20260825T011034
CREATED:20231212T165538Z
LAST-MODIFIED:20231212T183030Z
UID:36220-1711652400-1711659600@wpbdf.org
SUMMARY:Pittsburgh Penguins Fundraiser
DESCRIPTION:Support WPBDF by attending a Pittsburgh Penguins Game! See the Penguins battle the Blue Jackets! \nWhen: Thursday\, March 28\, 2024\nGame Time: 7:00 PM\nWhere: PPG Paints Arena \n1001 Fifth Ave\nPittsburgh\, PA 15219 \nUpper Bowl: $53\nLower Bowl: $92 \nA maximum of six (6) tickets can be purchased at a time. For larger groups\, please email Derick at\ndwoodard@pittsburghpenguins.com. \n$10 from every ticket will be donated to the Western PA Bleeding Disorders Foundation. You can help provide education\, support groups\, and patient assistance to our families and individuals in need! \n  \nGet tickets at: https://bit.ly/penguinsbdf23
URL:https://wpbdf.org/event/pittsburgh-penguins-fundraiser/
LOCATION:PPG Paints Arena\, 1001 Fifth Ave\, Pittsburgh\, PA\, 15219\, United States
CATEGORIES:Fundraisers
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2023/12/penguins_fundraiser_flyer_2024_jpg.jpg
ORGANIZER;CN="Jessica Lee":MAILTO:jessica@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240327T190000
DTEND;TZID=America/New_York:20240327T203000
DTSTAMP:20260825T011034
CREATED:20240215T204536Z
LAST-MODIFIED:20240217T155418Z
UID:36452-1711566000-1711571400@wpbdf.org
SUMMARY:Roctavian Educational Program
DESCRIPTION:Join the Western PA Bleeding Disorders Foundation and representatives from BioMarin to dive into the gene therapy treatment advancements for Hemophilia A. \nThis education program offers you the opportunity to: \n\nLearn about Roctavian\, the first and only FDA approved gene therapy for Hemophilia A\nGain valuable information and deepen your understanding of Roctavian through a live Q&A session\nAsk questions and receive new resources on gene therapy\n\nTo register\, send an email to rsvp@wpbdf.org or call 724-741-6160. Please be sure to include the number of people you are registering for and any food restrictions we should be aware of. \nMedical Disclaimer: WPBDF does not give medical advice or engage in the practice of medicine. WPBDF under no circumstances recommends treatment for specific individuals and in all cases recommends that you consult your physician or local hemophilia treatment center before pursuing any course of treatment. \n  \nClick here for more information on Roctavian.
URL:https://wpbdf.org/event/roctavian-educational-program/
LOCATION:Grand Concourse\, 100 W Station Square Dr\, Pittsburgh\, PA\, 15219\, United States
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/02/roctavian_flyer-scaled.jpg
END:VEVENT
END:VCALENDAR