BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//Western PA Bleeding Disorder Foundation - ECPv6.16.2//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:Western PA Bleeding Disorder Foundation
X-ORIGINAL-URL:https://wpbdf.org
X-WR-CALDESC:Events for Western PA Bleeding Disorder Foundation
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20140309T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20141102T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20150308T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20151101T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20160313T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20161106T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20170312T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20171105T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20180311T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20181104T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20190310T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20191103T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20200308T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20201101T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20210314T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20211107T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20220313T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20221106T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20230312T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20231105T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20240310T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20241103T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20250309T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20251102T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240522T180000
DTEND;TZID=America/New_York:20240522T203000
DTSTAMP:20260825T023333
CREATED:20240404T233140Z
LAST-MODIFIED:20240412T172446Z
UID:36587-1716400800-1716409800@wpbdf.org
SUMMARY:Insurance Basics: Everything You Didn’t Know You Needed to Know
DESCRIPTION:RSVP via email\, rsvp@wpbdf.org\, or calling the Foundation office at 724-741-6160.
URL:https://wpbdf.org/event/insurance-basics-everything-you-didnt-know-you-needed-to-know/
LOCATION:Luciano’s Italian Brick Oven\, 161 Scharberry Lane\, Mars\, PA\, 16046\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/04/insurance_anime_program_flyer_with_photo.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240506T150000
DTEND;TZID=America/New_York:20240507T170000
DTSTAMP:20260825T023333
CREATED:20240105T174058Z
LAST-MODIFIED:20240503T171208Z
UID:36288-1715007600-1715101200@wpbdf.org
SUMMARY:Advocacy Ambassador Education and Training
DESCRIPTION:We are looking for individuals who are interested in supporting the advocacy efforts of the Pennsylvania Bleeding Disorders Foundations throughout the year. Do you have a desire to meet with legislators to help influence decisions on policies that affect individuals and families living with bleeding disorders? \nIf you answered yes\, we would like you to join us in Harrisburg\, on Monday\, May 6 and Tuesday\, May 7\, 2024! \nOn Monday\, May 6\, you will receive training to become a Volunteer Advocacy Ambassador and learn about the issues we will be discussing with legislators the following day. \nOn Tuesday\, May 7\, we will head to the capitol to meet with legislators to advocate for the needs of the bleeding disorders community. Each advocate will be teamed up with other advocates to attend meetings in small groups. \nIf you have any questions\, call 724-741-6160 or send an email to info@wpbdf.org. \nThis training is open to individuals 18 years and older and mature adolescents and teens. No childcare will be provided at this event. \nThis is an overnight training and advocacy day. Training begins at 3 pm on Monday\, May 6. On Tuesday\, May 7\, we will head to the PA state capitol where you will have the opportunity to meet with your local legislators. \nThe Foundations will provide dinner on Monday\, a hotel room at the Harrisburg Hilton on Monday night\, and breakfast on Tuesday morning. \nTransportation assistance is available upon request. \nThe FINAL day to register is Friday\, April 5!\nTo register\, visit: bit.ly/advocacytrainingpa\n  \n \nThank you to our Sponsors \nAccredo\, CSL Behring\, Genentech\, HemaBiologics\, InfuCare\, Novo Nordisk\, Pfizer\, and Sanofi. \nSpecial Thanks to the Hemophilia Alliance and the National Bleeding Disorders Foundation. \n  \nLearn more about Pfizer’s togetherforrare.com and hemhorizon.com.
URL:https://wpbdf.org/event/advocacy-ambassador-education-and-training/
LOCATION:Harrisburg Hilton\, One N 2nd St\, Harrisburg\, PA\, 17101\, United States
CATEGORIES:Advocacy
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/01/advocacy_retreat_flyer_jpg-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240426
DTEND;VALUE=DATE:20240429
DTSTAMP:20260825T023333
CREATED:20240102T194446Z
LAST-MODIFIED:20240111T170600Z
UID:36260-1714089600-1714348799@wpbdf.org
SUMMARY:Education Weekend
DESCRIPTION:The Western Pennsylvania Bleeding Disorders Foundation’s Education Weekend benefits patients and their families living with hemophilia\, von Willebrand disease\, and other rare bleeding disorders. All ages are welcome!\nWhen: April 26 – 28\, 2024 \nWhere: Seven Springs Mountain Resort\n777 Waterwheel Dr.\, Seven Springs\, PA 15622 \nProgram Information:\nThe weekend will include sessions for adults with bleeding disorders and parents of children with bleeding disorders. Special programs and activities are provided for children aged 5-17 (or 18 and in high school) and daycare is provided for children aged 0-4. \nSessions include:\n\nBleeding Disorders 101\nMusculoskeletal\nHands-on Infusion Training\nChildbearing Years and Childbirth\nPreparing for Surgery and After-Surgery Support\n\nFun\, educational sessions and activities will be provided for children\, based on age group. Activities may include bowling\, indoor mini-golf\, scavenger hunts\, and game room. We are excited to announce that this year\, Education Weekend will begin on Friday\, April 26\, for all registered participants! \nThe weekend includes:\n\n2 Night Hotel Stay\nMeals and Snacks\nEducation Sessions for Adults\nSupervision\, Education Sessions\, and Activities for Children\nDaycare for Infants and Preschoolers\n\nThe only cost to attend this event is a $50 non-refundable registration fee\, per family (due at time of registration). If the $50 registration fee and/or cost of transportation would present a hardship that would prevent you from attending\, you may apply for a scholarship. \nRegistration is limited to immediate family members living in the household with the person who has a bleeding disorder. \n \n“Our son\, Zhi\, was recently diagnosed with Hemophilia A and we were naive of what that diagnosis meant for his future. Education Weekend provided our family with the opportunity to educate ourselves about his bleeding disorder. We were able to talk with doctors\, nurses and other families who have children living with the same condition and that helped us tremendously. One of the most satisfying things that came out of this weekend for us was that Zhi had a better understanding of his bleeding disorder and was no longer scared about his diagnosis. He was able to interact with other children with the same or similar condition\, and has made so many new friends.” \nAngela\nHotel Rooms and Meals:\nA hotel room\, meals\, education sessions\, children’s programs\, and childcare will be provided for all registered families during the weekend. \nFriday\, April 26 – Check-in for Education Weekend will begin at 6:00 pm and the Opening Session will begin at 7:00 pm. \nSaturday\, April 27 – Breakfast will begin at 8:00 am. Programs and activities will begin at 9:00 am. After dinner\, you will be free to enjoy the resort on your own. \nSunday\, April 28 – Breakfast will begin at 8:00 AM. Programs\, activities\, and optional infusion training will begin at 9:00 am. The event will conclude by 12:30 pm. \n \n“Hello! I have two children\, Lennox and Scarlett\, ages 8 and 6. I was diagnosed with von Willebrand disease when I was a small child. Currently\, I am the only one in my family to be diagnosed with a bleeding/clotting disorder. At Education Weekend\, I enjoy all the opportunities to connect with others in the community. My favorite activity last year was axe throwing! This year\, I am looking forward to all the learning options there will be. The presentations are always informative and I always leave with more knowledge than I arrived with. Also\, the food is always good!” \nArthur\nRegistration Information:\n\nTo request a registration form\, send an email to rsvp@wpbdf.org or call 724-741-6160. Once approved\, you will recieve a link to fill out your registration form online.\nThe $50 registration fee can be paid with a check\, money order\, or credit card.\nThe deadline to request a registration form and a scholarship application is March 14\, 2024.\nCompleted registration form (including all signed documents) and the registration fee (or scholarship request) must be received by March 17\, 2024.\n\n \n“Our family has had the opportunity to gain valuable knowledge from Education Weekend by attending workshops\, networking with other families\, and learning more about treatments for von Willebrand disease and the platelet disorders that run in our family. We are most excited to continue networking with other families affected by various bleeding disorders at the upcoming conference.” \nLinda\n\n\nCompleted registration forms and $50 registration fee (or scholarship request) must be received by\nMarch 17\, 2024.\nYou are encouraged to register early!\nPlease note: Any family that has registered for and no-showed this event in the past or has no-showed multiple events in the last 18 months (without a medical reason) may be placed on a waiting list.  \nContact the Foundation at rsvp@wpbdf.org or call 724-741-6160.
URL:https://wpbdf.org/event/education-weekend-2024/
LOCATION:Seven Springs\, 777 Water Wheel Dr\, Seven Springs\, PA\, 15622\, United States
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/01/Education-Weekend-One-Pager_FINAL_jpg-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240417T180000
DTEND;TZID=America/New_York:20240417T200000
DTSTAMP:20260825T023333
CREATED:20240209T155101Z
LAST-MODIFIED:20240209T155652Z
UID:36411-1713376800-1713384000@wpbdf.org
SUMMARY:World Hemophilia Day 2024 Celebration!
DESCRIPTION:You’re invited!\nJoin us for a World Hemophilia Day 2024 generation celebration!\nWhen:\nWednesday\, April 17\, 2024\, 06:00 PM – 08:00 PM EDT \nWhere:\nMonterey Bay Fish Grotto\n1411 Grandview Ave\nPittsburgh PA 15211 \nRSVP: \nContact WPBDF! RSVP via email\, rsvp@wpbdf.org\, or calling the Foundation office at 724-741-6160. \nThis community shares a connection that spans generations. Our 2024 One Family program is a celebration of the bond that comes from living with hemophilia: young and old\, near and far\, where we are now and where we want to be. RSVP today to join us for hands-on activities like: \n• Personal time capsule kits\n• Selfie stations and DIY photo frames\n• Wish ribbons for the global community\n• Space to share your story and voice \nIt’s all happening on World Hemophilia Day.
URL:https://wpbdf.org/event/world-hemophilia-day-2024-celebration/
LOCATION:Monterey Bay Fish Grotto\, 1411 Grandview Ave\, Pittsburgh\, PA\, 15211\, United States
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/02/Chapter-Program-Sanofi_OneFamilyWHD2024_Invitation_03NOV2023_1707492177072-2.jpg
ORGANIZER;CN="Kara Dornish":MAILTO:kara@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240328T190000
DTEND;TZID=America/New_York:20240328T210000
DTSTAMP:20260825T023333
CREATED:20231212T165538Z
LAST-MODIFIED:20231212T183030Z
UID:36220-1711652400-1711659600@wpbdf.org
SUMMARY:Pittsburgh Penguins Fundraiser
DESCRIPTION:Support WPBDF by attending a Pittsburgh Penguins Game! See the Penguins battle the Blue Jackets! \nWhen: Thursday\, March 28\, 2024\nGame Time: 7:00 PM\nWhere: PPG Paints Arena \n1001 Fifth Ave\nPittsburgh\, PA 15219 \nUpper Bowl: $53\nLower Bowl: $92 \nA maximum of six (6) tickets can be purchased at a time. For larger groups\, please email Derick at\ndwoodard@pittsburghpenguins.com. \n$10 from every ticket will be donated to the Western PA Bleeding Disorders Foundation. You can help provide education\, support groups\, and patient assistance to our families and individuals in need! \n  \nGet tickets at: https://bit.ly/penguinsbdf23
URL:https://wpbdf.org/event/pittsburgh-penguins-fundraiser/
LOCATION:PPG Paints Arena\, 1001 Fifth Ave\, Pittsburgh\, PA\, 15219\, United States
CATEGORIES:Fundraisers
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2023/12/penguins_fundraiser_flyer_2024_jpg.jpg
ORGANIZER;CN="Jessica Lee":MAILTO:jessica@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240327T190000
DTEND;TZID=America/New_York:20240327T203000
DTSTAMP:20260825T023333
CREATED:20240215T204536Z
LAST-MODIFIED:20240217T155418Z
UID:36452-1711566000-1711571400@wpbdf.org
SUMMARY:Roctavian Educational Program
DESCRIPTION:Join the Western PA Bleeding Disorders Foundation and representatives from BioMarin to dive into the gene therapy treatment advancements for Hemophilia A. \nThis education program offers you the opportunity to: \n\nLearn about Roctavian\, the first and only FDA approved gene therapy for Hemophilia A\nGain valuable information and deepen your understanding of Roctavian through a live Q&A session\nAsk questions and receive new resources on gene therapy\n\nTo register\, send an email to rsvp@wpbdf.org or call 724-741-6160. Please be sure to include the number of people you are registering for and any food restrictions we should be aware of. \nMedical Disclaimer: WPBDF does not give medical advice or engage in the practice of medicine. WPBDF under no circumstances recommends treatment for specific individuals and in all cases recommends that you consult your physician or local hemophilia treatment center before pursuing any course of treatment. \n  \nClick here for more information on Roctavian.
URL:https://wpbdf.org/event/roctavian-educational-program/
LOCATION:Grand Concourse\, 100 W Station Square Dr\, Pittsburgh\, PA\, 15219\, United States
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/02/roctavian_flyer-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240325T183000
DTEND;TZID=America/New_York:20240325T210000
DTSTAMP:20260825T023333
CREATED:20240206T174800Z
LAST-MODIFIED:20240322T201303Z
UID:36377-1711391400-1711400400@wpbdf.org
SUMMARY:Trivia Night
DESCRIPTION:Join us for a fun-filled evening of brain-teasing questions and friendly competition at Greersburg Tavern\, in Darlington\, PA! Get ready to test your knowledge and enjoy a night of laughter and camaraderie. \nDate: Monday\, March 25\, 2024 \nTime: 6:30 PM \nLocation: 3551 Darlington Rd\, Darlington\, PA 16115 \nWhether you’re a trivia buff or just looking for a good time\, this in-person event is the perfect opportunity to challenge your friends or make new ones. Cost is $10 per person. Trivia teams can be a maximum of 5 people. Please let us know the name of your team\, or another team member\, when purchasing your tickets so we can be sure to group you together. Everyone who attends will receive a raffle ticket when they arrive for a chance to win some WPBDF and bleeding disorders swag items! Trivia questions will be general knowledge! \nDon’t miss out on the chance to win and have bragging rights as the ultimate trivia champions! A prize will be awarded to the first-place team! \nThere will be even more chances to win with a 50/50 raffle and baskets donated by local businesses! \nSpace is limited! Be sure to register your team today! Online ticket sales will end at 3:30 pm on Monday\, March 25th. Tickets will be available for purchase at the event. \nThank you to Greersburg Tavern for donating their space for the night as well as WPBDF Board Member\, Kristen Spezialetti\, for organizing this event!
URL:https://wpbdf.org/event/trivia-night/
LOCATION:Greersburg Tavern\, 3551 Darlington Rd\, Darlington\, PA\, 16115\, United States
ATTACH;FMTTYPE=image/png:https://wpbdf.org/wp-content/uploads/2024/02/Trivia-1.png
ORGANIZER;CN="Jessica Lee":MAILTO:jessica@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240323T100000
DTEND;TZID=America/New_York:20240323T120000
DTSTAMP:20260825T023333
CREATED:20240213T142315Z
LAST-MODIFIED:20240213T142315Z
UID:36429-1711188000-1711195200@wpbdf.org
SUMMARY:Youth Group Museum Day
DESCRIPTION:When:\nSaturday\, March 23\, 10:00 AM -12:00 PM\nWhere:\nChildren’s Museum of Pittsburgh / Museum Lab\n10 Children’s Way\nPittsburgh\, PA 15212\n\nHey kids! Join your friends for a chat with Kathaleen\, and a day at the Children’s Museum and Museum Lab. There will be yummy food and a fun activity\, too! \nHow do I sign up? Ask your grown-up to send an email to rsvp@wpbdf.org\, by March 17. Make sure we know how many people are coming and the ages of any siblings attending with you. \nParents: This event is for families with a child aged 7-12\, who either has a bleeding disorder or is the sibling of a child with a bleeding disorder. All family members living in the household with the child who has a bleeding disorder are welcome. Bleeding disorders are a chronic condition and whether the diagnosis is mild or taking a medication that has kiddos present as milder\, it’s important for them to understand and be reminded why it’s important to be mindful of their own bleeding disorder or siblings bleeding disorder as well as finding empowerment in their awareness. Kathaleen Schnur\, LCSW\, from the Hemophilia Center of Western PA\, will guide a discussion with the children (ages 7-12) on respecting bleeding disorders. \nMuseum Admission: We will meet in one of the party rooms in the Children’s Museum; however\, admission to both the Children’s Museum and Museum Lab is included\, and you are welcome to spend the remainder of the day enjoying the museums. When you register\, please be sure to let us know if there are any food allergies or special dietary requirements.
URL:https://wpbdf.org/event/youth-group-museum-day/
LOCATION:Children’s Museum\, 10 Children's Way\, Pittsburgh\, PA\, 15212\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/02/youth_group_march_23_2024_jpg-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240311T180000
DTEND;TZID=America/New_York:20240311T200000
DTSTAMP:20260825T023333
CREATED:20240213T160439Z
LAST-MODIFIED:20240213T160439Z
UID:36445-1710180000-1710187200@wpbdf.org
SUMMARY:Women's Group
DESCRIPTION:Help us assemble period packs that will be distributed to local schools and health clinics to help spread awareness of bleeding disorders. \nJoin us for dinner\, jewelry making\, and assembling period packs to spread awareness of bleeding disorders. This event is open to women and people with the potential to menstruate\, who have bleeding disorders\, and are adults or mature teenagers or are a parent/caregiver or spouse/partner of someone with a \nbleeding diagnosis. \nTo register\, send an email to rsvp@wpbdf.org or call the Foundation at 724-741-6160. Please let us know if you have any food allergies. The final day to register is Tuesday\, March 5th. \nThank you to our sponsor\, Cottrill’s Pharmacy! \nThe Western Pennsylvania Bleeding Disorders Foundation is an organization of acceptance and tolerance for all of its members and the patients it serves\, regardless of race\, color\, ethnicity\, national origin\, religion\, sex\, sexual orientation\, gender identity or expression\, age or disability.
URL:https://wpbdf.org/event/womens-group-2/
LOCATION:Bravo! Italian Kitchen\, 211 Summit Park Dr\, Pittsburgh\, PA\, 15275\, United States
CATEGORIES:Advocacy,Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/02/womens_group_03_11_24-scaled.jpg
ORGANIZER;CN="Kara Dornish":MAILTO:kara@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240306
DTEND;VALUE=DATE:20240309
DTSTAMP:20260825T023333
CREATED:20231222T185607Z
LAST-MODIFIED:20231222T185607Z
UID:36253-1709683200-1709942399@wpbdf.org
SUMMARY:Washington Days
DESCRIPTION:
URL:https://wpbdf.org/event/washington-days-6/
CATEGORIES:Advocacy
ATTACH;FMTTYPE=image/png:https://wpbdf.org/wp-content/uploads/2023/12/Washington-Days-2024-FINAL-1.png
ORGANIZER;CN="Kara Dornish":MAILTO:kara@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240218
DTEND;VALUE=DATE:20240219
DTSTAMP:20260825T023333
CREATED:20231114T101207Z
LAST-MODIFIED:20240208T144422Z
UID:35914-1708214400-1708300799@wpbdf.org
SUMMARY:Bowling for Bleeding Disorders
DESCRIPTION:Join us for our annual Bowling for Bleeding Disorders fundraiser to benefit the Western Pennsylvania Bleeding Disorders Foundation! \nWhen: \nSunday\, February 18\, 2024\n2:00 pm – 5:00 pm \nWhere: \nParadise Island Bowl\n7601 Grand Avenue\nPittsburgh\, PA 15225 \n$25 per person. Includes 3 hours of bowling\, shoe rental\, pizza\, and unlimited soft drinks! Proceeds raised at this event will provide education\, support groups\, and patient assistance to the bleeding disorders community of Western PA! \nEach lane can hold six bowlers. \n  \nGrab your tickets below! \n  \nThank you to our sponsors!\nTurkey Sponsors:  \n  \n \nLane Sponsor:
URL:https://wpbdf.org/event/bowling-for-bleeding-disorders-5/
LOCATION:Paradise Island Bowl\, 7601 Grand Avenue\, Pittsburgh\, PA\, 15225\, United States
CATEGORIES:Fundraisers
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2023/11/bowling_marketing_flyer_2024-scaled.jpg
ORGANIZER;CN="Jessica Lee":MAILTO:jessica@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240208T190000
DTEND;TZID=America/New_York:20240208T200000
DTSTAMP:20260825T023333
CREATED:20240125T204931Z
LAST-MODIFIED:20240125T204931Z
UID:36324-1707418800-1707422400@wpbdf.org
SUMMARY:New Year – New Health Plan
DESCRIPTION:Do you have questions about your new health plan? \nBe in the know! Join us for a discussion on issues you are facing and things to look out for in your new insurance plan. Ryan Faden\, Director\, Patient Access at the National Bleeding Disorders Foundation will be leading the discussion about insurance issues you may be facing in your current health plan. Topics will include copay accumulator adjusters\, copay maximizers\, and formulary exclusions/limitations and more. \nDo you have a question about your current plan that you would like to address? Please let us know when you register. \nTo register\, email rsvp@wpbdf.org or call 724-741-6160 by 2:00 pm on Thursday\, February 8. Zoom link will be sent to those who register.
URL:https://wpbdf.org/event/new-year-new-health-plan/
LOCATION:Virtual
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2024/01/new-year-new-health-plan_FINAL-scaled.jpg
ORGANIZER;CN="Kara Dornish":MAILTO:kara@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240128T140000
DTEND;TZID=America/New_York:20240128T153000
DTSTAMP:20260825T023333
CREATED:20231220T175458Z
LAST-MODIFIED:20240126T201709Z
UID:36240-1706450400-1706455800@wpbdf.org
SUMMARY:New Parent Network: Emergency Situations
DESCRIPTION:This program is for parents of a child with a bleeding disorder\, aged 0-7\, and will take place virtually\, over Zoom. \nTo register: Send an email to rsvp@wpbdf.org or call 724-741-6160\, by January 25. Be sure to include your first and last name and your choice of gift card. A Zoom link will be sent to those who register. \n  \nThank you to our sponsors:
URL:https://wpbdf.org/event/new-parent-network-emergency-situations/
LOCATION:Virtual
CATEGORIES:Programs
ATTACH;FMTTYPE=image/png:https://wpbdf.org/wp-content/uploads/2023/12/npn_winter_program_invitation_2024_01_28.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240127T110000
DTEND;TZID=America/New_York:20240127T150000
DTSTAMP:20260825T023333
CREATED:20231222T184914Z
LAST-MODIFIED:20231222T184914Z
UID:36249-1706353200-1706367600@wpbdf.org
SUMMARY:Teen Group Winter Meet-Up
DESCRIPTION:To register (or ask questions)\, send an email to rsvp@wpbdf.org by January 25. \nPlease let us know the full name of the teen(s) and parent/guardian attending. \nIf you need support with the cost oftransportation/fuel to get to this event\, you may request a gas card when you register.
URL:https://wpbdf.org/event/teen-group-winter-meet-up/
LOCATION:Carnegie Science Center\, 1 Allegheny Avenue\, Pittsburgh\, PA\, 15212\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/png:https://wpbdf.org/wp-content/uploads/2023/12/Teen-Group.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240125T180000
DTEND;TZID=America/New_York:20240125T193000
DTSTAMP:20260825T023333
CREATED:20231212T180132Z
LAST-MODIFIED:20231212T180155Z
UID:36225-1706205600-1706211000@wpbdf.org
SUMMARY:The Joint Movement
DESCRIPTION:This program is for members of WPBDF and family members living in the household. To register\, send an email to rsvp@wpbdf.org or call the Foundation office at 724-741-6160. Let us know the number of people in your party and if there are any food allergies. If children will be attending\, please include their ages.
URL:https://wpbdf.org/event/the-joint-movement/
LOCATION:Il Pizzaiolo\, 701 Warrendale Village Drive\, Warrendale\, PA\, 15086\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/png:https://wpbdf.org/wp-content/uploads/2023/12/WPBDF_JointMovement_Invite_2023-12-05.png
ORGANIZER;CN="Kara Dornish":MAILTO:kara@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231209T110000
DTEND;TZID=America/New_York:20231209T140000
DTSTAMP:20260825T023333
CREATED:20231114T100810Z
LAST-MODIFIED:20231114T100810Z
UID:35909-1702119600-1702130400@wpbdf.org
SUMMARY:Winterfest
DESCRIPTION:Join us for an educational program on nutrition and staying active! Enjoy a visit from Santa\, fun games\, including dreidel\, brunch buffet\, exhibits\, and more! \nThis program is for members of WPBDF and family members living in the household. To register\, send an email to rsvp@wpbdf.org or call the Foundation office at 724-741-6160 by Thursday\, November 23. Let us know the number of people in your party and if there are any food allergies. If children will be attending\, please include their ages.
URL:https://wpbdf.org/event/winterfest-5/
LOCATION:The Club at Shadow Lakes\, 2000 Beaver Lakes Blvd\, Aliquippa\, PA\, 15001\, United States
CATEGORIES:Programs
ATTACH;FMTTYPE=image/png:https://wpbdf.org/wp-content/uploads/2023/11/2023-Winter-Program-Flyer-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231202T180000
DTEND;TZID=America/New_York:20231202T210000
DTSTAMP:20260825T023333
CREATED:20231114T100323Z
LAST-MODIFIED:20231114T100323Z
UID:35904-1701540000-1701550800@wpbdf.org
SUMMARY:Take A Bough
DESCRIPTION:The Western Pennsylvania Bleeding Disorders Foundation (WPBDF) invites you\, your family\, and friends to attend our holiday tree and wreath auction and bingo night! This auction will showcase decorated trees\, wreaths\, and tabletop centerpieces that are all available for bid. Bidding will open online on Friday\, November 24\, and end at our Final Night Event on December 2\, at 9 p.m. \nOur Final Night Event will take place at Red Fox Winery in Hickory\, PA. Tickets are $35 per person and doors open at 6:00 pm. Enjoy a delicious dinner\, take part in the auction live and in-person\, and play a few rounds of bingo! There will be additional raffles for even more chances to win big! Red Fox Winery will also be providing samples of their wine for guests 21 and over. You do not need to attend the Final Night Event to participate in the auction. \nClick here to view the auction and purchase tickets to the Final Night Event!
URL:https://wpbdf.org/event/take-a-bough-3/
LOCATION:Red Fox Winery\, 80 Red Fox Road\, Hickory\, PA\, 15340\, United States
CATEGORIES:Fundraisers
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2023/11/TAB_2023_Flyer_jpg-scaled-1.jpg
ORGANIZER;CN="Jessica Lee":MAILTO:jessica@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231121T100000
DTEND;TZID=America/New_York:20231121T120000
DTSTAMP:20260825T023333
CREATED:20231114T095009Z
LAST-MODIFIED:20231114T095651Z
UID:35897-1700560800-1700568000@wpbdf.org
SUMMARY:Advocacy Stakeholder Meeting
DESCRIPTION:RSVP by 3pm on Monday\, November 20 by emailing rsvp@wpbdf.org. The zoom link to join the meeting will be sent to everyone who registers.
URL:https://wpbdf.org/event/advocacy-stakeholder-meeting-2/
LOCATION:Virtual
CATEGORIES:Advocacy
ATTACH;FMTTYPE=image/png:https://wpbdf.org/wp-content/uploads/2023/11/Advocacy-Stakeholder-Meeting.png
ORGANIZER;CN="Kara Dornish":MAILTO:kara@wpcnhf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230909T090000
DTEND;TZID=America/New_York:20230909T233000
DTSTAMP:20260825T023333
CREATED:20221222T230325Z
LAST-MODIFIED:20230808T132642Z
UID:35326-1694250000-1694302200@wpbdf.org
SUMMARY:2023 Unite for Bleeding Disorders Walk
DESCRIPTION:UNITE for hope.\nUNITE for community.\nUNITE to make a difference.\nJoin us on Saturday\, September 9\, 2023\, at the North Park Swimming Pool for the 15th Annual Unite for Bleeding Disorders Walk! The Unite for Bleeding Disorders Walk brings our community together. It unites families with bleeding disorders and chapters with family\, friends\, neighbors\, and coworkers to support important programs and services to help people with Hemophilia\, von Willebrand Disease\, and other rare bleeding disorders in our community. \nThe funds generated from our Walk help the Western Pennsylvania Bleeding Disorders Foundation:  \nPromote patient advocacy and blood safety for everyone \nSupport families in need by offering assistance with medical bills\, travel to and from the treatment center\, knee/elbow braces and other medical devices \nProvide medical ID jewelry to our members at no cost to them \nProvide local educational programming throughout the year \nProvide a support network to all our community members \nCreate and increase awareness about bleeding disorders \n \nYour support means continued education\, support groups\, and patient assistance for our members in need. By participating in our Unite Walk\, you are raising critical funds and awareness for our mission and showing each other the strength & unity of the Bleeding Disorders Community. \nSign up today!\nRegister today by starting a team\, joining a team\, or being an individual walker. \nPlease stay tuned for more information! \nThank you for your support! \nP.S. This is a dog friendly event! We’d love to see your furry companions joining us on Walk Day! \n\nWPBDF strives to enrich the lives of those with bleeding disorders in Western Pennsylvania and respond to the needs of the community in a dynamic environment. \nThe Western Pennsylvania Bleeding Disorders Foundation is a nonprofit consumer advocacy and service organization founded in the 1950’s and incorporated as a 501(c)(3) nonprofit organization in 1976. \nWe were founded to help meet the vast education and support needs of the bleeding disorders community in Western Pennsylvania. \nWPBDF serves families with bleeding disorders in 26 counties of Western Pennsylvania. Membership is free for people with bleeding disorders. We provide patient assistance to our members with bleeding disorders as well as hold a variety of educational events that cover a wide range of topics. Because bleeding disorders impact nearly every area of our members lives\, we strive to provide relevant and timely information about everything from raising affected children to dealing with financial stress to joint health and treatment concerns and much more.
URL:https://wpbdf.org/event/2023-unite-for-bleeding-disorders-walk/
ATTACH;FMTTYPE=image/png:https://wpbdf.org/wp-content/uploads/2023/01/Unite-for-Bleeding-Disorders-Final-PNG.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230909T073000
DTEND;TZID=America/New_York:20230909T210000
DTSTAMP:20260825T023333
CREATED:20230125T201601Z
LAST-MODIFIED:20230127T004939Z
UID:35340-1694244600-1694293200@wpbdf.org
SUMMARY:Run for Their Lives 5K 2023
DESCRIPTION:Join us for the 14th Annual Run for Their Lives 5K happening in-person on September 9\, 2023!  Your participation will help raise awareness of bleeding disorders and help raise needed funds for education and advocacy. Run through beautiful tree-lined streets in North Park\, located in northern Allegheny County\, just north of Pittsburgh\, PA. \nDate: Saturday\, September 9\, 2023 \nLocation: North Park Swimming Pool Loop\nS. Ridge Drive\nAllison Park\, PA 15101 \nTime: Registration begins at 7:30 AM\, Race begins at 8:30 AM\nDistance: 5K (3.1 miles) \nRegister at: https://bit.ly/runfortheirlives2023 \nEach participant will receive a technical race t-shirt\, goody bag\, and medal. The FINAL day to register and ensure you receive a t-shirt is Friday\, August 11\, 2023. \nThe registration fee schedule is as follows:\n$25 – Now through September 8\, 2023 \n$30 – Race Day Fee \nVirtual Run for Their Lives 5K \nOur hybrid run gives you the choice to join us in-person on September 9th in North Park or be a virtual runner and run one of your favorite courses! No matter where you run\, you’re still raising critical awareness and funds to support those affected by bleeding disorders in Western Pennsylvania! \nRegistration for virtual runners is $25 and includes a t-shirt\, race medal\, and goody bag. Virtual runners have the option to have their race packets/bags mailed to them for an additional fee or free pick-up at the WPBDF office located at: \nWPBDF \n775 Fourth Street\, First Floor \nBeaver PA 15009 \nOur office is open from 9 am – 4 pm. Please contact Jessica\, Race Director\, at jessica@wpbdf.org to coordinate packet pick-up. Race packets will be shipped and be available for pick-up starting on Monday\, September 4th. \nRegister at: https://bit.ly/runfortheirlives2023 \nCome for the Run – Stay for the Fun!\nFollowing the Run For Their Lives 5K there will be our Unite for Bleeding Disorders Walk to support the Western PA Bleeding Disorder Foundation.  For more information about the walk and to register or donate please visit our Walk page at: https://uniteforbleedingdisorders.org/event/wpa \nQuestions?  Call Jessica at 724-741-6160 or e-mail jessica@wpbdf.org.
URL:https://wpbdf.org/event/run-for-their-lies-5k-2023/
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2023/01/run_flyer_FINAL_jpg-scaled-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230417T180000
DTEND;TZID=America/New_York:20230417T200000
DTSTAMP:20260825T023333
CREATED:20230118T021415Z
LAST-MODIFIED:20230127T005025Z
UID:35335-1681754400-1681761600@wpbdf.org
SUMMARY:World Hemophilia Day Celebration
DESCRIPTION:Join us for dinner at this Mount Washington restaurant to view downtown buildings lit red in celebration of World Hemophilia Day! There will be hands-on activities which will provide an opportunity to use intentional storytelling as a form of advocacy\, both personally and for the community. \nRSVP by emailing rsvp@wpbdf.org or call the Foundation at 724-741-6160. Please include the names of everyone in your party. \nThis program is open to members of the Western Pennsylvania Bleeding Disorders Foundation and their family members who live in their household. \n  \nThank you to Sanofi for sponsoring this program!
URL:https://wpbdf.org/event/world-hemophilia-day-celebration/
CATEGORIES:Advocacy,Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2023/01/whd_2023_program_flyer_FINAL_jpg-scaled-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230308
DTEND;VALUE=DATE:20230311
DTSTAMP:20260825T023333
CREATED:20230103T200445Z
LAST-MODIFIED:20230127T005038Z
UID:35331-1678233600-1678492799@wpbdf.org
SUMMARY:Washington Days
DESCRIPTION:NHF’s Washington Days is an opportunity for people affected by inherited blood disorders to advocate for issues important to them. Washington Days will take place in person March 8-10\, 2023. \nThe Pennsylvania Bleeding Disorders Foundations are thrilled to be able to provide scholarships for individuals and families to attend Washington Days. Please fill out this form to apply for a scholarship. Funds are limited and awards will be granted based on eligibility\, advocacy experience\, and district location. We will notify and announce scholarship recipients the week of January 23\, 2023. \nIn order to be eligible for a scholarship to attend NHF’s Washington Days you must: \n1.) Agree to attend and be registered for the Pennsylvania Advocacy Ambassador Retreat March 4-5\, 2023\, at the Omni Bedford Springs Resort in Bedford\, PA. Register for the Pennsylvania Advocacy Ambassador Retreat Here. \n2.) Agree to attend and stay for the entire duration of Washington Days\, March 8-10\, 2023. \n3.) Submit this form to apply by Monday\, January 23\, 2023. \nScholarships include 2 night hotel stay at the Hyatt Regency Washington on Capitol Hill and transportation costs from your home to Washington\, DC. NHF will provide the following meals at the hotel:\nWednesday\, March 8 – Reception/Dinner\nThursday\, March 9 – Breakfast\, AM/PM Snacks\, and Dinner\nFriday\, March 10 – Breakfast
URL:https://wpbdf.org/event/washington-days-5/
CATEGORIES:Advocacy
ATTACH;FMTTYPE=image/png:https://wpbdf.org/wp-content/uploads/2023/01/Washington-Days-Final.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230304T110000
DTEND;TZID=America/New_York:20230305T110000
DTSTAMP:20260825T023333
CREATED:20221222T214803Z
LAST-MODIFIED:20230127T005049Z
UID:35324-1677927600-1678014000@wpbdf.org
SUMMARY:Advocacy Ambassador Retreat
DESCRIPTION:We are looking for individuals who are interested in supporting the advocacy efforts of the Pennsylvania Bleeding Disorders Foundations throughout the year. Do you have a desire to meet with legislators to help influence decisions on policies that affect individuals and families living with bleeding disorders? Are you willing to make phone calls or write letters to your legislators asking them to support legislation that could have a positive impact on the bleeding disorders community and vote against legislation that could have a negative impact? If you’ve answered yes to any of the above questions\, we would like you to join us at the Omni Bedford Springs Resort to receive training to become a Volunteer Advocacy Ambassador! \nThis is an overnight retreat open to adults and mature teenagers. The retreat begins at 11 am on Saturday\, March 4th and ends after breakfast on Sunday\, March 5th. The Foundations will provide all meals and hotel room for Saturday night. Transportation assistance is available upon request. To register go to: https://forms.gle/PVR2N7RZ9nH3aVxE6 \nIf you have any questions call 724-741-6160 or send an email to info@wpbdf.org. \n  \nPennsylvania Advocacy Ambassador Retreat Agenda\nOmni Bedford Springs Resort\nHotel rooms and meals will be paid for by WPBDF and EPBDF. Transportation assistance is also available.\n\nSaturday\, March 4\, 2023 \n\n11 a.m. – 11:30 a.m. –   Guest registration and vendor displays\n11:30am – Opening Announcements and Ice Breakers\nNoon – Lunch\n12:30pm-1:45pm – Hot Topics in Policy\n15-minute break\n2pm- Your Voice Has Weight: Let’s Advocate\n3pm- Find Your Fight Song: Storytelling Workshop\n4pm-5:30pm – Break/Check-in to rooms\n5:30pm-6:30pm – Legislative Meeting Role Plays\n6:30pm-8:30pm – Dinner and Advocacy Trivia\n\nSunday\, March 5\, 2023\nBreakfast
URL:https://wpbdf.org/event/advocacy-ambassador-retreat/
CATEGORIES:Advocacy
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2023/01/advocacy_ambassador_retreat_03_04_2023_jpg_file-scaled-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230223T190000
DTEND;TZID=America/New_York:20230223T200000
DTSTAMP:20260825T023333
CREATED:20230110T003331Z
LAST-MODIFIED:20230127T005100Z
UID:35333-1677178800-1677182400@wpbdf.org
SUMMARY:Mindfulness
DESCRIPTION:This event will take place virtually on Zoom. \nRSVP at rsvp@wpbdf.org or call the Foundation at 724-741-6160. \nThis program is open to members of the Western Pennsylvania Bleeding Disorders Foundation and their family members who live in their household.
URL:https://wpbdf.org/event/mindfulness/
CATEGORIES:Programs
ATTACH;FMTTYPE=image/png:https://wpbdf.org/wp-content/uploads/2023/01/3799_HelloTalk_Invite_Digital_Virtual-HEM-10528-Optimized-PDF.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230212T140000
DTEND;TZID=America/New_York:20230212T170000
DTSTAMP:20260825T023333
CREATED:20220930T193747Z
LAST-MODIFIED:20240117T153836Z
UID:35311-1676210400-1676221200@wpbdf.org
SUMMARY:Bowling for Bleeding Disorders
DESCRIPTION:Get tickets NOW at: https://give.classy.org/bowlingforbleedingdisorders \n \nA bowling fundraiser to benefit the Western Pennsylvania Bleeding Disorders Foundation! \nSunday\, February 12\, 2023\n2:00 pm – 5:00 pm \nParadise Island Bowl\n7601 Grand Avenue\nPittsburgh\, PA 15225 \n$25 per person. Includes 3 hours of bowling\, shoe rental\, pizza\, and unlimited soft drinks! A portion of proceeds raised at this event will provide education\, support groups\, and patient assistance to the bleeding disorders community of Western PA! \nGet tickets NOW at: https://give.classy.org/bowlingforbleedingdisorders \nThank you to Scavenger Hunts by Let’s Roam\, https://www.letsroam.com and https://www.adventurebook.com\, for providing awesome prizes for our event!
URL:https://wpbdf.org/event/bowling-for-bleeding-disorders-event/
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2023/01/bowling_for_bleeding_disorders_2023_FINAL_with_link-scaled-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230129T170000
DTEND;TZID=America/New_York:20230129T183000
DTSTAMP:20260825T023333
CREATED:20221222T213717Z
LAST-MODIFIED:20230127T005120Z
UID:35321-1675011600-1675017000@wpbdf.org
SUMMARY:Cooking with Chef Mike
DESCRIPTION:Join us on Sunday\, January 29\, 2023\, to cook a family friendly\, healthy meal with Chef Mike! This event will take place virtually on Zoom. Everyone who registers will get a $25 gift cad to purchase ingredients. \nRSVP by Monday\, January 23 at rsvp@wpbdf.org or call the Foundation at 724-741-6160. \nThis program is open to members of the Western Pennsylvania Bleeding Disorders Foundation and their family members who live in their household.
URL:https://wpbdf.org/event/cooking-with-chef-mike/
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2023/01/cooking-with-chef-mike_updated-scaled-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20150417T183000
DTEND;TZID=America/New_York:20150417T213000
DTSTAMP:20260825T023333
CREATED:20150325T200757Z
LAST-MODIFIED:20230127T013927Z
UID:34542-1429295400-1429306200@wpbdf.org
SUMMARY:World Hemophilia Day
DESCRIPTION:The Art of Community\nShining Bright for Hemophilia\nPlease join us as we raise awareness for hemophilia and honor progress in our community. \nIn celebration of the bright future ahead\, we will light the Carnegie Science Center and host a painting activity at which each family will have the chance to create their own work of art.  We chose the canvas design to serve as a beacon of inspiration\, and hope it will be a constant reminder of all that we can accomplish together. \nThis event is sponsored by Biogen Idec.  Please RSVP to WPCNHF by calling the office at 724-741-6160 or e-mailing us at rsvp@wpcnhf.org.
URL:https://wpbdf.org/event/world-hemophilia-day/
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2023/01/worldhemophiliaday.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20150320T180000
DTEND;TZID=America/New_York:20150322T103000
DTSTAMP:20260825T023333
CREATED:20150122T012831Z
LAST-MODIFIED:20230127T014007Z
UID:34531-1426874400-1427020200@wpbdf.org
SUMMARY:Teen & Parent Retreat
DESCRIPTION:Teenagers and their parents are invited to join us at the beautiful Family Retreat Center in Mars\, PA.  The weekend will include a great teen and parent program tailored for our group\, by Patrick Torrey.   The weekend will also include opportunities for both teens and parents to spend time with their peers and enjoy the retreat center! \nTeenagers ages 13-18 are invited. At this time\, there is a limit of one parent per family\, and a parent MUST accompany their teen(s). No other family members are permitted to attend. There is no cost. \nThe deadline for pre-registration was December 21st.  Registration forms have been mailed to those who pre-registered and and are qualified to attend.  Please call Janet Barone at 724-741-6160 or e-mail her at janet@wpcnhf.org with any questions.
URL:https://wpbdf.org/event/teen-parent-retreat/
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2022/11/Teens-on-stairs.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20150723T180000
DTEND;TZID=America/New_York:20150723T203000
DTSTAMP:20260825T023333
CREATED:20150519T182039Z
LAST-MODIFIED:20230127T013720Z
UID:34555-1437674400-1437683400@wpbdf.org
SUMMARY:WPCNHF Annual Meeting
DESCRIPTION:This year\, our Annual Meeting will be held at Dave & Busters! You will hear short presentations from factor manufacturers about their products\, programs\, and/or services. \nThe evening will include exhibit displays from home healthcare and factor manufacturers\, a buffet dinner\, and game cards. \nTime & Location:\nRegistration and exhibits begin at 6:00 p.m.\nDave & Buster’s – The Waterfront\, 180 E Waterfront Dr\, Homestead\, PA 15120 \nRSVP:\nTo register\, send an e-mail or call 724-741-6160 by July 15. If children will be attending\, please be sure to include their ages.
URL:https://wpbdf.org/event/wpcnhf-annual-meeting/
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2023/01/daveandbusters.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20150427T180000
DTEND;TZID=America/New_York:20150427T203000
DTSTAMP:20260825T023333
CREATED:20150320T195021Z
LAST-MODIFIED:20230127T013849Z
UID:34540-1430157600-1430166600@wpbdf.org
SUMMARY:Food & Fitness Basics
DESCRIPTION:WPCNHF invites you to join us for a cooking class and dinner!\nDuring this fun and educational hands-on event you will get a chance to see a cooking demonstration as well as explore: \n\nThe benefits of physical activity and good nutrition.\nGuidelines for choosing physical activities and exercises.\nReading food labels and making healthy food choices.\nHow small changes may help lead to a healthier lifestyle.\n\nMonday April 27th\, 2015\n6:00 pm – 8:30 pm\nGiant Eagle Market District\n100 Settlers Ridge Center Drive\nPittsburgh\, PA 15205 \nSpace is limited.  Please RSVP by April 24th by calling 724-741-6160 or e-mailing Janet at janet@wpcnhf.org. \nThank you to NovoNordisk for sponsoring this program.
URL:https://wpbdf.org/event/food-fitness-basics/
CATEGORIES:Programs
ATTACH;FMTTYPE=image/jpeg:https://wpbdf.org/wp-content/uploads/2023/01/family-cooking.jpg
END:VEVENT
END:VCALENDAR