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X-ORIGINAL-URL:https://wpbdf.org
X-WR-CALDESC:Events for Western PA Bleeding Disorder Foundation
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DTSTART;TZID=America/New_York:20261002T190000
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DTSTAMP:20260825T220916
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UID:41857-1790967600-1790973000@wpbdf.org
SUMMARY:New Parent Network: Every Family Belongs
DESCRIPTION:Join us for an opportunity to connect with other parents who have young children with a bleeding disorder in a supportive and\nunderstanding environment! \nDuring this session\, we’ll explore what it means to be part of the bleeding disorders community while recognizing that every family’s journey is unique. Some parents in our community have lived through times when treatment options were far more limited\, while today’s families have access to significant advances in care that have transformed outcomes and quality of life. Understanding these different perspectives can help you appreciate the progress that has been made while embracing your\nown family’s experience with confidence and hope. Whether your child has had few bleeding episodes or has faced more challenges\, your family’s story matters\, and you belong in this community. \nChildcare: Supervision and a meal for children will be provided in a nearby room. Siblings are included! \nOvernight Accommodations: One hotel room will be provided per family\, for Friday night. \nFall Program & Splash Lagoon: Stay for the Fall Program on Saturday and enjoy a day at Splash Lagoon Indoor\nWater Park! The Hilton Garden Inn and the Ambassador Banquet & Conference Center (location for the Fall Program) are connected–no need to go outside! Learn more at: https://wpbdf.org/event/fall-program-2026/ \nTo RSVP:\nThis event is specifically for families who have a child aged 7 and under who has a bleeding disorder. To register\, email rsvp@wpbdf.org or call the Foundation office (724) 741-6160. The cutoff date to reserve a hotel room is September 1. The cost of the hotel room will be covered by the Foundation. However\, you will be requested to provide a credit card upon hotel check-in\, to cover any incidental charges\, such as room service. \nWhen you register\, please provide the following information: your first and last name and the full name of other adult in your hotel room (if any)\, number of adults\, number of children and their ages\, and any food allergies or dietary restrictions.
URL:https://wpbdf.org/event/new-parent-network-every-family-belongs/
LOCATION:Hilton Garden Inn\, 2225 Downs Drive\, Erie\, PA\, 16509\, United States
CATEGORIES:Programs
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DTSTART;TZID=America/New_York:20261003T100000
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CREATED:20260825T132059Z
LAST-MODIFIED:20260825T132059Z
UID:41862-1791021600-1791032400@wpbdf.org
SUMMARY:Fall Program
DESCRIPTION:Clinical research has played a vital role in advancing the treatment of bleeding disorders\, leading to safer\, more effective therapies and improved quality of life for individuals and families. This educational session will provide an overview of the clinical research process and help participants better understand what it means to take part in a research study. \nWe’ll cover key research terms as well as the different types and phases of clinical research. Participants will also learn why clinical studies are important\, how they contribute to future treatment advances\, and what protections are in place for research participants. \nThe session\, presented by Dana Ivanco\, CCRC\, Sr. Clinical Research Coordinator\, from the Hemophilia Center of Western PA\, will conclude with an overview of current and emerging clinical studies involving people with bleeding disorders\, providing insight into the ongoing research shaping the future of care. \nMeals: A buffet lunch will be served immediately following the program. A child’s meal will be reserved for children aged 12 and under. (If you’d like to request an exception\, please notify us when you register.) \nTransportation: Transportation assistance\, in the form of a gas card\, is available upon request. \nChildcare: Onsite childcare will be provided during the educational program. \nEnjoy the rest of the day at Splash Lagoon Indoor Water Park! Tickets to Splash Lagoon will be handed out to those who attend the Fall Program. Tickets will be valid from 2:00 PM to 9:00 PM on Saturday\, October 3rd. \nTo RSVP:\nThere is no cost to attend this event! To register\, send an email to rsvp@wpbdf.org or call the Foundation office at 724-741-6160 by September 18. \nPlease provide the following information: first and last name\, number of adults\, number of children and their ages\, any food allergies or dietary restrictions\, number of swimmers (people going in the water at Splash Lagoon) and number of observers (people going to the Water Park but not going in the water).
URL:https://wpbdf.org/event/fall-program-2026/
LOCATION:Ambassador Center\, 7794 Peach Street\, Erie\, PA\, 16509\, United States
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