Team 4 Rare Kids is made up of the team captains, Christy and Jason, and their children, Seth, Spencer, Xavier, and Scarlett. Christy didn’t learn that she had a bleedingRead More
34 Patient Advocacy Organizations Call on Payer Matrix to Stop Misidentifying as a Patient Advocacy Company
By Identifying as a ‘Leading Patient Advocate,’ Payer Matrix Puts Patients in Jeopardy New York, NY (August 24, 2023) – 34 patient advocacy organizations, including CancerCare®, a leading national cancerRead More
HFA’s Mild Matters Summit Application’s Open!
Hemophilia Federation of America is excited to once again offer their Mild Matters Summit, created for adults with mild bleeding disorders and parents of children diagnosed as mild from Nov.Read More
Blood, Sweat, and Lift Helps Raise Awareness for Bleeding Disorders!
On Saturday, August 6, 2023, Megan W. hosted a fundraiser for her senior project to help raise funds for the Western Pennsylvania Bleeding Disorders Foundation (WPBDF)! Megan is a memberRead More
Team Fox Factor
Eager to get involved with WPBDF, Ashley and her family joined the Unite for Bleeding Disorders Walk in 2022 with the name Fox Factor. Their family walks for their one-year-oldRead More
WPBDF’s Annual Meeting – July 16th
Enjoy dinner, visit sponsor booths, and learn about the WPBDF’s services at the Annual Meeting! Everyone who attends is invited to join us after the meeting for the Gateway Clipper’sRead More
WPBDF is looking for a Marketing and Events Manager Intern!
Summary Responsible for assisting in managing WPBDF’s fundraising initiatives; including the development, planning and execution of special events. WPBDF offers a competitive salary and a fun, relaxed work environment. Read More
Contact Your Senators Today!
We have an exciting opportunity to advance the Safe Step Act and the HELP Copays Act. The Senate HELP Committee might include these bills in an upcoming markup, which isRead More
SOMETHING TO CROW ABOUT: NATURE’S SCAVENGER HUNT GAME
Hemophilia, von Willebrands Disease, or any other bleeding disorder? No problem! Fly into this fine-feathered hike and game for fun physical activity! By Jill Squire, The Birding Nurse Combining hiking,Read More
Vote for your Favorite 2023 World Hemophilia Day Canvas!
To celebrate Bleeding Disorders Awareness Month and World Hemophilia Day, members of the WPBDF community were sent 4 x 4 canvases and were asked to let their creativity show! TheyRead More
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