Western PA Bleeding Disorders Foundation

Making PA a better place for those with bleeding disorders.

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World Hemophilia Day Canvas Collage Project

March 11, 2022 By Kara Dornish Leave a Comment

Express yourself and your family’s journey with bleeding disorders and it will be added to a large collage that will displayed at the Foundation office! All the squares will beRead More

Filed Under: Program

Ward Calls for Legislative Action on Rare Disease Day

March 2, 2022 By Kara Dornish Leave a Comment

VIDEO 1 VIDEO 2  HARRISBURG – Sen. Judy Ward (R-30) called for legislative action on Monday, Feb. 28 – a date recognized across the world as Rare Disease Day – toRead More

Filed Under: Advocacy, Making a Difference

WPBDF Celebrates Bleeding Disorders Awareness Month!

March 1, 2022 By Kara Dornish Leave a Comment

WPBDF is celebrating Bleeding Disorders Awareness Month (BDAM) this March! Each year, our community celebrates BDAM to bring much need attention to the cause of inheritable bleeding disorders. This monthRead More

Filed Under: Advocacy, Making a Difference Tagged With: advocacy, bdam, bleeding disorders awareness month

Advocacy Update – Governor Wolf’s Proposed Budget

February 8, 2022 By Kara Dornish Leave a Comment

Today Governor Tom Wolf announced his proposed budget plan. We are happy to see the Hemophilia line item separated out at level funding of $959,000. This year we are requestingRead More

Filed Under: Advocacy

Beth Carew Memorial Scholarhip

February 3, 2022 By Kara Dornish Leave a Comment

Applications are now being accepted for the Beth Carew Memorial Scholarship Program. Any undergraduate student with hemophilia, von Willebrand disease, or a related inherited bleeding disorder is eligible to apply.Read More

Filed Under: Scholarships and Grants

Advocacy Ambassador Training – February 23rd

January 28, 2022 By Kara Dornish Leave a Comment

This program is for members of the Western and Eastern Pennsylvania Bleeding Disorders Foundations. Whether you are a seasoned advocate or are just getting started, this program is for you!Read More

Filed Under: Advocacy

Starbucks Foundation Grant Recipient

January 21, 2022 By Kara Dornish Leave a Comment

Yesterday, Jason Miller (community member, volunteer, and Starbucks Manager) and Lukas McGowan (Starbucks Manager) delivered exciting news to the WPBDF Staff! WPBDF has been chosen to receive a $1,000 grantRead More

Filed Under: Making a Difference

NHF’s Washington Days

January 10, 2022 By Kara Dornish Leave a Comment

If you would like to participate in NHF’s Washington Days and join us in attending legislative meetings to advocate for the bleeding disorders community, please email us at rsvp@wpbdf.org, byRead More

Filed Under: Advocacy

Gene Therapy Jeopardy – Virtual Program on February 3rd

January 5, 2022 By Kara Dornish Leave a Comment

To RSVP to this program, or for any questions or additional details, please contact rsvp@wpbdf.org or call the Chapter office at 724-741-6160 by 3pm on February 3rd.

Filed Under: Program

No Surprises Act In Effect January 1

January 4, 2022 By Kara Dornish Leave a Comment

The No Surprises Act went into effect on January 1. Patients with health insurance will no longer receive as many unexpected medical charges from emergency visits and other out-of-network healthRead More

Filed Under: Advocacy

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Western Pennsylvania Bleeding Disorders Foundation