VIDEO 1 VIDEO 2 HARRISBURG – Sen. Judy Ward (R-30) called for legislative action on Monday, Feb. 28 – a date recognized across the world as Rare Disease Day – toRead More
WPBDF Celebrates Bleeding Disorders Awareness Month!
WPBDF is celebrating Bleeding Disorders Awareness Month (BDAM) this March! Each year, our community celebrates BDAM to bring much need attention to the cause of inheritable bleeding disorders. This monthRead More
Advocacy Update – Governor Wolf’s Proposed Budget
Today Governor Tom Wolf announced his proposed budget plan. We are happy to see the Hemophilia line item separated out at level funding of $959,000. This year we are requestingRead More
Beth Carew Memorial Scholarhip
Applications are now being accepted for the Beth Carew Memorial Scholarship Program. Any undergraduate student with hemophilia, von Willebrand disease, or a related inherited bleeding disorder is eligible to apply.Read More
Advocacy Ambassador Training – February 23rd
This program is for members of the Western and Eastern Pennsylvania Bleeding Disorders Foundations. Whether you are a seasoned advocate or are just getting started, this program is for you!Read More
Starbucks Foundation Grant Recipient
Yesterday, Jason Miller (community member, volunteer, and Starbucks Manager) and Lukas McGowan (Starbucks Manager) delivered exciting news to the WPBDF Staff! WPBDF has been chosen to receive a $1,000 grantRead More
NHF’s Washington Days
If you would like to participate in NHF’s Washington Days and join us in attending legislative meetings to advocate for the bleeding disorders community, please email us at rsvp@wpbdf.org, byRead More
Gene Therapy Jeopardy – Virtual Program on February 3rd
To RSVP to this program, or for any questions or additional details, please contact rsvp@wpbdf.org or call the Chapter office at 724-741-6160 by 3pm on February 3rd.
No Surprises Act In Effect January 1
The No Surprises Act went into effect on January 1. Patients with health insurance will no longer receive as many unexpected medical charges from emergency visits and other out-of-network healthRead More
Anatomy Workshop – Virtual Program on January 20th at 7pm
Led by Dr. Angela Forsyth, PT, DPT By using body crayons, tracings and other media, participants will learn about the joints and muscles that are most important to them. They’llRead More
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