To celebrate Bleeding Disorders Awareness Month and World Hemophilia Day, members of the WPBDF community were sent 4 x 4 canvases and were asked to let their creativity show! TheyRead More
PA RARE DISEASE SURVEY
WPBDF is partnering with The Pennsylvania Rare Disease Advisory Council (PARDAC) to promote participation in the PA Rare Disease Survey. The survey results will help the PARDAC and all ofRead More
THE WPBDF SCHOLARSHIP 2022-2023
Click here to download the 2022 Chapter Scholarship Application and Guidelines Who is eligible for the WPBDF Scholarship? Any person or immediate family member of a person with hemophilia, vonRead More
World Hemophilia Day – Virtual Event – April 12th
Register for WPBDF’s World Hemophilia Day program! Connect and learn virtually with our community in hands-on activities that focus on: the importance of joint health, hemophilia care around the world,Read More
World Hemophilia Day Canvas Collage Project
Express yourself and your family’s journey with bleeding disorders and it will be added to a large collage that will displayed at the Foundation office! All the squares will beRead More
Ward Calls for Legislative Action on Rare Disease Day
VIDEO 1 VIDEO 2 HARRISBURG – Sen. Judy Ward (R-30) called for legislative action on Monday, Feb. 28 – a date recognized across the world as Rare Disease Day – toRead More
WPBDF Celebrates Bleeding Disorders Awareness Month!
WPBDF is celebrating Bleeding Disorders Awareness Month (BDAM) this March! Each year, our community celebrates BDAM to bring much need attention to the cause of inheritable bleeding disorders. This monthRead More
Advocacy Update – Governor Wolf’s Proposed Budget
Today Governor Tom Wolf announced his proposed budget plan. We are happy to see the Hemophilia line item separated out at level funding of $959,000. This year we are requestingRead More
Beth Carew Memorial Scholarhip
Applications are now being accepted for the Beth Carew Memorial Scholarship Program. Any undergraduate student with hemophilia, von Willebrand disease, or a related inherited bleeding disorder is eligible to apply.Read More
Advocacy Ambassador Training – February 23rd
This program is for members of the Western and Eastern Pennsylvania Bleeding Disorders Foundations. Whether you are a seasoned advocate or are just getting started, this program is for you!Read More
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