Western PA Bleeding Disorders Foundation

Making PA a better place for those with bleeding disorders.

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Patient Education Videos

 

340B Drug Pricing Program Long | Supporting Hemophilia Treatment Centers Across the Nation

The National Hemophilia Program Coordinating Center (NHPCC) video highlighting the benefits of the 340B Drug Pricing Program to hemophilia treatment centers (HTCs) across the nation.

National Hemophilia Foundation: Copay Accumulator Patient Impact

In the age of high deductibles and patient out of pocket expenditures, more and more people depend on copay assistance to afford their life-saving specialty medications. This video demonstrates how Copay accumulator adjustments affect patients requiring specialty medications with no generic alternatives.

What you should know about hemophilia and its management.
By Dr. Patrick F. Fogarty

Hemophilia can be a difficult condition to manage, both for the patient and the caregiver. This program includes a short video by Dr. Patrick F. Fogarty that will be useful to patients with hemophilia or parents of children with hemophilia to help them to better manage.

Camp Hot-to-Clot

WPBDF is proud to support Camp Hot-to-Clot which is organized by the Hemophilia Center of Western Pennsylvania.

Camp Hot-to-Clot is offered for children with bleeding disorders and their siblings, ages 7 to 17. Fun activities such as rock wall climbing, fishing, canoeing, archery, arts and crafts, swimming, and field games that are organized in a safe, nurturing environment that gives the campers a chance to broaden their experiences. We also offer a Leader In Training program for boys and girls ages 15-17, who show leadership qualities and interest in the program. For more information contact Kit or Kat at the Hemophilia Center of Western Pennsylvania at 412-209-7267.

 

 

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Western Pennsylvania Bleeding Disorders Foundation