This year, our Annual Meeting will be held at Dave & Busters! You will hear short presentations from factor manufacturers about their products, programs, and/or services. The evening will include exhibit displays from home healthcare and factor manufacturers, a buffet dinner, and game cards. Time & Location: Registration and exhibits begin at 6:00 p.m. Dave […]
Teenagers and their parents are invited to join us at the beautiful Family Retreat Center in Mars, PA. The weekend will include a great teen and parent program tailored for our group, by Patrick Torrey. The weekend will also include opportunities for both teens and parents to spend time with their peers and enjoy the […]
The Art of Community Shining Bright for Hemophilia Please join us as we raise awareness for hemophilia and honor progress in our community. In celebration of the bright future ahead, we will light the Carnegie Science Center and host a painting activity at which each family will have the chance to create their own work […]
On Monday, April 20, 2015, members and friends of the Western Pennsylvania Chapter of the National Hemophilia Foundation will join volunteers from the Eastern PA Chapter in Harrisburg to speak with legislators about the needs of the Pennsylvania bleeding disorders community. This is a very important day for bleeding disorders in Pennsylvania and we really need your help! […]
Erie Program Our annual program in Erie, will be held during the summer this year. You will have a choice of which educational session to attend: Cracking the Code or Power of Empowerment. Cracking the Code: Learn about DNA and how it makes you unique, how it is responsible for how your body functions, and […]
Join us in running a 5K for the lives of people with bleeding disorders in Western Pennsylvania. They are often unable to run for themselves because they suffer from complications of their disease. Your participation will help raise awareness of bleeding disorders and help raise needed funds for education and advocacy. Run through beautiful tree-lined […]
The 7th Annual Western Pennsylvania Hemophilia Walk will take place in North Park on Sept 12th, 2015. You can register for the Walk by visiting http://www.hemophilia.org/walk and clicking on PA. Registration Check-In Time: 9:00 am Walk Start Time: 10:00 am Distance: 5K (3.1 Miles) Location: North Park/Harmar Grove Shelter South Ridge Drive Allison Park, PA […]
Lunch, Informational Presentations & Hands-on Help applying for Scholarships For individuals with bleeding disorders, guardians & siblings Topics include: Navigating the Financial Aspects of Higher Learning and Writing a Winning Scholarship Essay. Date: Saturday, February 7, 2015 Time: Check-in and Continental Breakfast begin at 9:30am, Program will be held from 10:00am-2:00pm Location: Regional Learning […]
Are you considering home infusion and want to see what it's all about? Have you been trained in home infusion and want a refresher? Would you like to have a babysitter, grandparent, spouse, sibling, or other relative or caregiver learn how to infuse you or your child? Then Infusion Day is for you! You and […]
Self-Care for Bleeding Disorder Caregivers - Put Your Oxygen Mask on First Caring for a child or partner can be exhausting. Bleeding disorders affect everyone in the family and you can experience a range of emotions from anger and anxiety to pride and satisfaction. This workshop is designed to help caregivers identify and accept the […]
The Pennsylvania Women's Hemophilia Outreach Planning Committee invite you to this event! This is a discussion and education event for female relatives ages 18 and up of patients with Hemophilia A or B. Topics will focus on the importance of knowing carrier status, inheritance patterns, genetic testing, and care treatment. Participants will have the […]
Giving back is as simple as one dollar, one day, one moment. You can change the tomorrow of someone in need. Join Us.
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