WPBDF is partnering with The Pennsylvania Rare Disease Advisory Council (PARDAC) to promote participation in the PA Rare Disease Survey. The survey results will help the PARDAC and all of us who support people living with rare diseases to better understand their needs and take action to improve their lives. The survey is completely confidential and takes less than 10 minutes to complete. If you are a rare Pennsylvanian or care for someone who is, please take the PARDAC Survey at pardac.org/survey/. For more information about the PARDAC or if you would like information about the survey results once released, please sign up for their newsletter at pardac.org/news/
By Kara Dornish
Kara is the Executive Director at WPCNHF and has been a part of the WPCNHF team since August 2013. Kara loves spending time outdoors hiking and exploring new places and trails with her son, Gus.