WPBDF is seeking new board members. Any individual interested in serving on the board can fill out an application at: https://www.surveymonkey.com/r/52C3ZC9
Vote for your Favorite World Hemophilia Day Collage!
To celebrate Bleeding Disorders Awareness Month and World Hemophilia Day, members of the WPBDF community were sent 4 x 4 canvases and were asked to let their creativity show! TheyRead More
PA RARE DISEASE SURVEY
WPBDF is partnering with The Pennsylvania Rare Disease Advisory Council (PARDAC) to promote participation in the PA Rare Disease Survey. The survey results will help the PARDAC and all ofRead More
Ward Calls for Legislative Action on Rare Disease Day
VIDEO 1 VIDEO 2 HARRISBURG – Sen. Judy Ward (R-30) called for legislative action on Monday, Feb. 28 – a date recognized across the world as Rare Disease Day – toRead More
WPBDF Celebrates Bleeding Disorders Awareness Month!
WPBDF is celebrating Bleeding Disorders Awareness Month (BDAM) this March! Each year, our community celebrates BDAM to bring much need attention to the cause of inheritable bleeding disorders. This monthRead More
Starbucks Foundation Grant Recipient
Yesterday, Jason Miller (community member, volunteer, and Starbucks Manager) and Lukas McGowan (Starbucks Manager) delivered exciting news to the WPBDF Staff! WPBDF has been chosen to receive a $1,000 grantRead More
Virtual World AIDS Day National Observance on December 1
Join the National AIDS Memorial and their partners on World AIDS Day with powerful voices for a series of inspiring and insightful conversations. 2021 marks 40 years since the firstRead More
We Need Your Help! Reach Out to Your Pennsylvania State Legislators!
Urge your Pennsylvania state legislator to ensure all co-pays count and support new bills aimed at reforming the harmful insurance practices of prior authorization and step therapy! Read on toRead More
Urge Your Pennsylvania State Legislator to Ensure All Co-Pays Count
Urge your state senator to support Senate Bill 196, which would help Pennsylvanians afford the treatments they need by ensuring all co-pay assistance counts towards out-of-pocket requirements. Many individualsRead More
Governor Wolf Proclaims April 17, 2021 World Hemophilia Day in PA!
WPCNHF is proud to share this proclamation from Governor Tom Wolf proclaiming April 17, 2021 World Hemophilia Day in Pennsylvania!
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