Western PA Bleeding Disorders Foundation

Making PA a better place for those with bleeding disorders.

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WPBDF is Seeking New Board Members

June 6, 2022 By Kara Dornish Leave a Comment

WPBDF is seeking new board members. Any individual interested in serving on the board can fill out an application at: https://www.surveymonkey.com/r/52C3ZC9

Filed Under: Making a Difference

Vote for your Favorite World Hemophilia Day Collage!

April 7, 2022 By Kara Dornish 5 Comments

To celebrate Bleeding Disorders Awareness Month and World Hemophilia Day, members of the WPBDF community were sent 4 x 4 canvases and were asked to let their creativity show! TheyRead More

Filed Under: Advocacy, Making a Difference

PA RARE DISEASE SURVEY

April 5, 2022 By Kara Dornish Leave a Comment

WPBDF is partnering with The Pennsylvania Rare Disease Advisory Council (PARDAC) to promote participation in the PA Rare Disease Survey. The survey results will help the PARDAC and all ofRead More

Filed Under: Making a Difference

Ward Calls for Legislative Action on Rare Disease Day

March 2, 2022 By Kara Dornish Leave a Comment

VIDEO 1 VIDEO 2  HARRISBURG – Sen. Judy Ward (R-30) called for legislative action on Monday, Feb. 28 – a date recognized across the world as Rare Disease Day – toRead More

Filed Under: Advocacy, Making a Difference

WPBDF Celebrates Bleeding Disorders Awareness Month!

March 1, 2022 By Kara Dornish Leave a Comment

WPBDF is celebrating Bleeding Disorders Awareness Month (BDAM) this March! Each year, our community celebrates BDAM to bring much need attention to the cause of inheritable bleeding disorders. This monthRead More

Filed Under: Advocacy, Making a Difference Tagged With: advocacy, bdam, bleeding disorders awareness month

Starbucks Foundation Grant Recipient

January 21, 2022 By Kara Dornish Leave a Comment

Yesterday, Jason Miller (community member, volunteer, and Starbucks Manager) and Lukas McGowan (Starbucks Manager) delivered exciting news to the WPBDF Staff! WPBDF has been chosen to receive a $1,000 grantRead More

Filed Under: Making a Difference

Virtual World AIDS Day National Observance on December 1

November 16, 2021 By Jessica Lee Leave a Comment

Join the National AIDS Memorial and their partners on World AIDS Day with powerful voices for a series of inspiring and insightful conversations. 2021 marks 40 years since the firstRead More

Filed Under: Advocacy, Making a Difference, Program, Research Tagged With: program, virtual, world aids day

We Need Your Help! Reach Out to Your Pennsylvania State Legislators!

May 10, 2021 By Jessica Lee Leave a Comment

Urge your Pennsylvania state legislator to ensure all co-pays count and support new bills aimed at reforming the harmful insurance practices of prior authorization and step therapy! Read on toRead More

Filed Under: Advocacy, Making a Difference

Urge Your Pennsylvania State Legislator to Ensure All Co-Pays Count

April 14, 2021 By Jessica Lee Leave a Comment

  Urge your state senator to support Senate Bill 196, which would help Pennsylvanians afford the treatments they need by ensuring all co-pay assistance counts towards out-of-pocket requirements. Many individualsRead More

Filed Under: Advocacy, Making a Difference Tagged With: advocacy, affordable treatment, co pay assistance, contact your legislature

Governor Wolf Proclaims April 17, 2021 World Hemophilia Day in PA!

March 16, 2021 By Jessica Lee Leave a Comment

WPCNHF is proud to share this proclamation from Governor Tom Wolf proclaiming April 17, 2021 World Hemophilia Day in Pennsylvania!  

Filed Under: Advocacy, Making a Difference Tagged With: advocacy, world hemophilia day

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Western Pennsylvania Bleeding Disorders Foundation