PABDC – Surveys
Thank You for Attending the Pennsylvania Bleeding Disorders Conference!
We’re so grateful you joined us for this conference. Your presence, energy, and engagement helped make it a truly special event.
To help us continue improving, we’d love to hear your feedback. Please take a few moments to complete the conference surveys. Your insights are incredibly valuable and help shape future programming.
Thank you again for being part of our community and for helping us grow stronger together.
Thank you to everyone who took the surveys!
Congratulations Sandy F. for winning the drawing for a $50 Amazon gift card!
- PABDC Event Survey - Please share your thoughts and experiences on the PA Bleeding Disorders Conference as a whole.
- Infusion Training - Please complete this survey if you attended Infusion Training.
- Advocacy Ambassador Precon - Please complete this survey if you attended the Advocacy Ambassador Precon.
- View PowerPoint Presentations and handouts here.
Friday, May 16th
Saturday, May 17th
7:30am-8:45am
9:00am-10:00am
- Platelet Disorders - Michele Lambert, MD and Laura Dogen, RN, BSN, CPN
- von Willebrand Disease - Ruben Rhoades, MD, MS
- One on One with Rare Bleeding Disorders - Frederico Xavier, MD, MS
- Hemophilia - Nathan Hagstrom, MD
10:15am-11:15am
- Drowning in Debt: Financial Do's/Don'ts/Legal Solutions - Donnie Akers, Jr., JD
- What Would Life Look Like If You Didn't Need Prophy? *Branded Program on HEMGENIX - Richard Lemons, MD, PhD
- CelebrVIII: A First-Class Treatment *Branded Program on ALTVIIIO - Alexis Akins
- Mental Health and Wellness - Frank Lentini
11:30am-12:15pm
- Defining Mild VWD: Challenges in Diagnosis and Treatment - Ruben Rhoades, MD, MS
- Understanding Current Needs and Areas of Research in Hemophilia - Paulette Bryant, MD
- It's a Feeling. If You Know You Know. *Branded Program on HEMLIBRA - Tony Pacuicci, MBA
- Pain and Children: Coping Strategies for Children with Bleeding Disorders - Courtney McGrath, MA and Allison Kulp, M.Ed., CCLS
12:15pm-1:15pm
1:30pm-2:15pm
- Women and Girls with Bleeding Disorders - Peter Cygan, MD
- Journey to Jivi *Branded Program on Jivi Antihemophilic Factor - Brandom Schrom
- Navigating Hemophilia in Men with Mild to Moderate Factor Deficiency - Craig Seaman, MD
- Aging with a Bleeding Disorder - Angela Lambing, MSN, ANP, GNP
2:30pm-3:15pm
- Understanding and Optimizing Women's Health - Angela Crosley, DC
- Psychosocial Aspects of Medical Trauma in the Bleeding Disorders Community - Charlie Gilbert, LCSW
- Understanding VWD in Children: Q&A for Parents and Caregivers - Dr. Frederico Xavier
- Keep in Touch: Stay on Track with Your HTC - Kathaleen Schnur, Meredith Getz, Peter Cygan, Bree Kelly
3:30pm-4:30pm
- Women and Aging - Sara Dunn, PT, DPT, NCS and Elsa Amaral, DPT
- Es un Sentimiento. El Que Sabe, Sabe. *Programa de marca sobre HEMLIBRA - Esmeralda Vazquez
- Spotlight on Insurance: What You Know Today May Not Be What You Need Tomorrow - Cindy Fisher and Melissa Kendrick
- Transitioning from Pediatric to Adult Bleeding Disorder Care - Kathaleen Schnur, Meredith Getz, Dyanne Morris, and Frederico Xavier
Sunday, May 18th
7:30am-8:45am
9:00am-10:00am