Couple’s Retreat

Wyndham Grand Pittsburgh Downtown 600 Commonwealth Pl, Pittsburgh

Registration for this event is closed.

World Hemophilia Day Celebration

Monterey Bay Fish Grotto 1411 Grandview Ave, Pittsburgh, PA

Join us for dinner at this Mount Washington restaurant to view downtown buildings lit red in celebration of World Hemophilia Day! There will be hands-on activities which will provide an opportunity to use intentional storytelling as a form of advocacy, both personally and for the community. RSVP by emailing or call the Foundation atRead More

Gene Therapy Research: Understanding the Science

Grand Concourse 100 W Station Square Dr, Pittsburgh, PA

When: Tuesday, May 2, 2023 Time: 6:30 PM - 8:30 PM Location: Grand Concourse 100 West Station Square Drive Pittsburgh, PA 15219 Join us an BioMarin Pharmaceutical as we answer questions about gene therapy research, including: How gene therapy research is designed What different types of gene therapies are being researched Why are some peopleRead More

Hemgenix – Dinner Program

Atrias 4869 William Penn Highway, Murrysville, PA

To register, send an email to or call the Foundation office at 724-741-6160

Run for Their Lives 5K 2023

North Park Swimming Pool South Ridge Drive, Allison Park, PA

Join us for the 14th Annual Run for Their Lives 5K happening in-person on September 9, 2023!  Your participation will help raise awareness of bleeding disorders and help raise needed funds for education and advocacy. Run through beautiful tree-lined streets in North Park, located in northern Allegheny County, just north of Pittsburgh, PA. Date: Saturday, SeptemberRead More


2023 Unite for Bleeding Disorders Walk

North Park Swimming Pool South Ridge Drive, Allison Park, PA

UNITE for hope. UNITE for community. UNITE to make a difference. Join us on Saturday, September 9, 2023, at the North Park Swimming Pool for the 15th Annual Unite for Bleeding Disorders Walk! The Unite for Bleeding Disorders Walk brings our community together. It unites families with bleeding disorders and chapters with family, friends, neighbors, andRead More