Registration is now open!

Join us for the inaugural Pennsylvania Bleeding Disorders Conference! Gather with other individuals and families living with bleeding disorders, from across the state of Pennsylvania and surrounding areas. Hear from experts in the bleeding disorders field and learn more about your or your loved one’s bleeding disorder; meet others and grow your peer network; visit vendor booths and learn about the latest treatments and services.

The Conference Includes:

• Education Sessions for Adults
• Supervision, Education Sessions, and Activities for Children
• Daycare for Infants and Young Children
• Meals and Snacks During the Conference
• 2-Night Hotel Accommodations

Program & Activities: 

The weekend will include sessions for adults with bleeding disorders and parents of children with bleeding disorders. Fun, educational sessions and activities will be provided for children, based on age group. Daycare will be provided for children ages 0-6.

Program Topics Include:

• Aging and Bleeding Disorders
• Women with Bleeding Disorders
• Treatment for Men with Mild Diagnoses
• Pediatric to Adult Clinic Transition
• Children and Pain
• Hemophilia, Von Willebrand Disease, Rare Factor Deficiencies, Platelet Disorders, Bleeding of Unknown Cause
• And more!

The conference will begin the evening of Friday, May 16 and conclude by noon on Sunday, May 18. An optional, pre-conference program for Advocacy Ambassadors will be offered on Friday afternoon.

All registered persons are expected to participate in meal programs and education sessions for the duration of the conference. Children will be enrolled in programs and activities, based on age.

The schedule is as follows:*

Friday, May 16 – Check-in for PABDC will begin at 4:00 pm and the Opening Session and dinner will begin at 6:00 pm. An optional pre-conference program for those interested in becoming an Advocacy Ambassador, will begin at 1:00 pm.

Saturday, May 17 – Breakfast will begin at 7:30 am, followed by education sessions. Lunch will be included. A reception with light appetizers will take place from 5:00-6:30 pm. After the reception, you will be free to enjoy the resort on your own. Dinner will be on your own.

Sunday, May 18 – Breakfast will begin at 7:30 am, followed by program sessions. The event will conclude by noon. No lunch will be provided.

*Please note, times subject to change.

Registration Information: 

To request a registration form, send an email to rsvp@wpbdf.org or call 724-741-6160. Once approved, you will receive a link to fill out your registration form online.

The only cost to attend this event is a $50 non-refundable registration fee, per family (due at time of registration). If the $50 registration fee and/or cost of transportation would present a hardship that would prevent you from attending, you may apply for a scholarship.

The $50 registration fee can be paid with a check, money order, or credit card. Registration approval and payment instructions will be emailed to you after your registration form has been reviewed by WPBDF.

The deadline to request a registration form is March 13, 2025. Completed registration form (including all signed documents) and the $50 registration fee (or scholarship request) must be received by March 15, 2025.

If you do not have access to the online registration form and need a printed copy mailed to you, you must request the registration form no later than March 3, 2025.

This event is open to members of the Western or Eastern PA Bleeding Disorders Foundations or patients of one of the seven HTCs in PA. Registration is limited to immediate family members living in the household with the person who has a bleeding disorder.

Please note: Any family that has no-showed multiple events in the last 18 months (without a medical reason) may be placed on a waiting list. Please note: Any family that has no-showed multiple events in the last 18 months (without a medical reason) may be placed on a waiting list.