Hello Advocacy Ambassadors! By now you've heard the great news that Pennsylvania has passed a five month budget with the Hemophilia line fully funded, and language included to ensure the funds will be distributed to the treatment centers the same way they have been distributed in the past! Congratulations and thank you for your work on […]
Registration is free! Register here: https://www.hemophiliafed.org/our-role-and-programs/national-community-events/annual-symposium/
This program is for members of the Western and Eastern Pennsylvania Bleeding Disorders Foundations. Whether you are a seasoned advocate or are just getting started, this program is for you! RSVP by 3:00 pm on Wednesday, February 23rd, by emailing rsvp@wpbdf.org or calling 724-741-6160. A Zoom link to join the program will be sent to […]
If you would like to join us in advocating for the bleeding disorders community, please email us at rsvp@wpbdf.org, by Friday, February 4th.
RSVP by 3pm on Wednesday, August 3rd by emailing rsvp@wpbdf.org or calling 724-741-6160. A zoom link will be sent to everyone who registers.
RSVP by 3pm on Monday, November 21 by emailing rsvp@wpbdf.org. The zoom link to join the meeting will be sent to everyone who registers.
We are looking for individuals who are interested in supporting the advocacy efforts of the Pennsylvania Bleeding Disorders Foundations throughout the year. Do you have a desire to meet with legislators to help influence decisions on policies that affect individuals and families living with bleeding disorders? Are you willing to make phone calls or write […]
NHF’s Washington Days is an opportunity for people affected by inherited blood disorders to advocate for issues important to them. Washington Days will take place in person March 8-10, 2023. The Pennsylvania Bleeding Disorders Foundations are thrilled to be able to provide scholarships for individuals and families to attend Washington Days. Please fill out this […]
Join us for dinner at this Mount Washington restaurant to view downtown buildings lit red in celebration of World Hemophilia Day! There will be hands-on activities which will provide an opportunity to use intentional storytelling as a form of advocacy, both personally and for the community. RSVP by emailing rsvp@wpbdf.org or call the Foundation at […]
RSVP by 3pm on Monday, November 20 by emailing rsvp@wpbdf.org. The zoom link to join the meeting will be sent to everyone who registers.
Help us assemble period packs that will be distributed to local schools and health clinics to help spread awareness of bleeding disorders. Join us for dinner, jewelry making, and assembling period packs to spread awareness of bleeding disorders. This event is open to women and people with the potential to menstruate, who have bleeding disorders, and […]
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