Lunch Program – Shared Decision Making
To register, email rsvp@wpbdf.org or call the Foundation office at 724-741-6160 by Thursday, February 12.
To register, email rsvp@wpbdf.org or call the Foundation office at 724-741-6160 by Thursday, February 12.
Enjoy a delicious lunch while you join us for an engaging and interactive Novo Nordisk presentation! Learn about a subcutaneous prophylactic treatment option delivered through a convenient, prefilled injection pen. We’ll explore the clinical study behind the product, including safety, efficacy, and its innovative mechanism of action. You’ll also get a closer look at the […]
Join us for a meaningful and engaging afternoon featuring a screening of Dismissed, followed by a guided discussion, lunch, and hands-on activity stations. After the film, participants can rotate through interactive stations, including: Packing period packs for distribution to school nurses across Pennsylvania Creating kindness cards Canvas painting Making mini flags Sharing your voice on […]
Whether you’re brand new to bleeding disorders or have been managing care for years, this virtual education program is here to support you. Caregivers are invited to join a relaxed, informative session focused on caring for a child with a bleeding disorder in everyday life. We know there are times when your child may be […]
When: Tuesday, March 24, 2026 at 6:30 pm Where: Grand Concourse, 100 W Station Square Drive, Pittsburgh, PA 15219 The following topics will be covered during the program: The underlying cause of von Willebrand disease (VWD). What VONVENDI is, who it is for, and how it works. How to properly store, prepare, and administer VONVENDI. […]
Calling all kids ages 7–12! Join us for an exciting youth group event that combines an interactive educational program with an action-packed laser tag party—all in a private room just for our group. When: Saturday, March 28, 2026 | 9:00 AM - 12:00 PM Where: Laser Storm Pittsburgh, 7715 McKnight Rd, Pittsburgh, PA 15237 Program: […]
This World Hemophilia Day, we’re celebrating the power of a less limited mindset, inspiring our community to redefine what’s possible and explore future possibilities. It’s a day to share stories, make genuine connections, and empower one another to go beyond perceived limits. Ready to celebrate? RSVP to rsvp@wpbdf.org or call the Foundation office at 724-741-6160. […]
This World Hemophilia Day, we’re celebrating the power of a less limited mindset, inspiring our community to redefine what’s possible and explore future possibilities. It’s a day to share stories, make genuine connections, and empower one another to go beyond perceived limits. Ready to celebrate? RSVP to rsvp@wpbdf.org or call the Foundation office at 724-741-6160. […]
We are looking for individuals who are interested in supporting the advocacy efforts of the Pennsylvania Bleeding Disorders Foundations throughout the year. Do you have a desire to meet with legislators to help influence decisions on policies that affect individuals and families living with bleeding disorders? If you answered yes, we would like you to […]
Come join us for breakfast and connect with other families raising a young child with a bleeding disorder in a welcoming, supportive environment. Enjoy fun activities, meaningful connections, and shared experiences with families on a similar journey. Afterward, keep the fun going with a day at the Zoo and Aquarium with your family—zoo admission is […]
Join us for an educational session exploring a rebalancing treatment option for hemophilia. You’ll hear: The science behind rebalancing therapy Clinical trial data Safety information Information on administration Shared decision-making tips for patients and caregivers To RSVP, email rsvp@wpbdf.org or call the Foundation office at 724-741-6160. Please include any allergies or food restrictions.
When: May 27, 2026 | 6:30 PM Where: Virtual on Zoom Are you experiencing challenges in your hemophilia B Care? Let’s talk about it. Living with hemophilia B can present unique challenges. This program explores common roadblocks and invites you to share your hopes for the future of hemophilia B management. Are you ready to […]
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