Please join us on Tuesday, April 17, 2018, for Harrisburg Day

This is the single most important day for bleeding disorders in Pennsylvania each year and we need your help.
We hope you can join us for the entire day as we make visits as a group to local members of the PA House of Representatives and Senate to discuss significant issues we are facing right now in Pennsylvania and to ask them to continue to support the seven hemophilia programs in the state.
To register please call the Chapter office at 724-741-6160.

2018 Issues

Hemophilia Program Line Item

The Eastern and Western Pennsylvania Chapters of the National Hemophilia Foundation have been very busy in Harrisburg this year meeting with members of the governor’s office and legislators to discuss the Hemophilia Program Line Item and the need to keep it separate and level funded. We were told from the start that the Governor would once again consolidate it with Cystic Fibrosis, Cooley’s Anemia and Sickle Cell. Because we had meetings so early in the year, our hope is that the line item will be immediately separated out in the House and Senate versions of the budget. This will be our main issue when we have our annual Advocacy Day on Tuesday, April 17.

House Bill 2113

Both Chapters will be supporting House Bill 2113 introduced by Representative Donna Oberlander (R-Allegheny). This bill would amend Pennsylvania’s Unfair Insurance Practices Act to prohibit commercial insurers from making coverage changes during the policy year that deny or increase the cost of a treatment, service or prescription that a patient is already receiving. We have joined a large coalition for this issue, which also will be part of our PA Advocacy Day.

Conference Calls

The Eastern and Western PA Executive Directors will host two conference calls to discuss the agenda items for Advocacy Day and help educate you on how the day will run. There also will be pointers on how to best interact with legislators, proper dress code, etc.

The two conference calls are on:

Monday, April 9 at 12 noon

Wednesday, April 11 at 6:30 pm

Both calls will contain the same information. Please choose the time that works best for you.

Call in Information

1-888-585-9008, then Conference Room ID 972-893-547 followed by the # sign