Click here to take action! Earlier this year, State Senate Bill 225 passed the Senate unanimously, bringing patients one step closer to having better access to care. Now, we’re racingRead More
Patient Stories Needed
As you might know, Pennsylvania’s Medicaid program has a Preferred Drug List. Not all products used to treat bleeding disorders are on the preferred drug list. If a doctor wantsRead More
Pennsylvania Advocacy Update – Action Items and Notes
Pennsylvania Advocacy Update Wednesday, August 3rd – 6:30pm – Zoom Meeting Action Items: Sign up to receive our action alerts here: https://p2a.co/udfkjur HELP Copays Act HR 5801: We continue toRead More
Vote for your Favorite World Hemophilia Day Collage!
To celebrate Bleeding Disorders Awareness Month and World Hemophilia Day, members of the WPBDF community were sent 4 x 4 canvases and were asked to let their creativity show! TheyRead More
Ward Calls for Legislative Action on Rare Disease Day
VIDEO 1 VIDEO 2 HARRISBURG – Sen. Judy Ward (R-30) called for legislative action on Monday, Feb. 28 – a date recognized across the world as Rare Disease Day – toRead More
WPBDF Celebrates Bleeding Disorders Awareness Month!
WPBDF is celebrating Bleeding Disorders Awareness Month (BDAM) this March! Each year, our community celebrates BDAM to bring much need attention to the cause of inheritable bleeding disorders. This monthRead More
Advocacy Update – Governor Wolf’s Proposed Budget
Today Governor Tom Wolf announced his proposed budget plan. We are happy to see the Hemophilia line item separated out at level funding of $959,000. This year we are requestingRead More
Advocacy Ambassador Training – February 23rd
This program is for members of the Western and Eastern Pennsylvania Bleeding Disorders Foundations. Whether you are a seasoned advocate or are just getting started, this program is for you!Read More
NHF’s Washington Days
If you would like to participate in NHF’s Washington Days and join us in attending legislative meetings to advocate for the bleeding disorders community, please email us at rsvp@wpbdf.org, byRead More
No Surprises Act In Effect January 1
The No Surprises Act went into effect on January 1. Patients with health insurance will no longer receive as many unexpected medical charges from emergency visits and other out-of-network healthRead More
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