We are looking for individuals who are interested in supporting the advocacy efforts of the Pennsylvania Bleeding Disorders Foundations throughout the year. Do you have a desire to meet withRead More
Washington Days Scholarship
NHF’s Washington Days is an opportunity for people affected by inherited blood disorders to advocate for issues important to them. Washington Days will take place in person March 8-10, 2023.Read More
How to Identify Copay Accumulators
Insurers use copay accumulators to accept third-party copay assistance for a patient’s medication without counting these payments towards a patient’s cost-sharing obligations, lulling patients into a false sense of securityRead More
“Copay Accumulators: Barriers to Patient Access and Legislative Fixes in PA.” – Webinar on December 10th
Join the NPF and IDF at 3:00 PM EST on Dec 12, 2022 for a free webinar “Copay Accumulators: Barriers to Patient Access and Legislative Fixes in PA.” Click hereRead More
Get in the Fight to Reform Prior Authorization & Step Therapy!
Click here to take action! Earlier this year, State Senate Bill 225 passed the Senate unanimously, bringing patients one step closer to having better access to care. Now, we’re racingRead More
Patient Stories Needed
As you might know, Pennsylvania’s Medicaid program has a Preferred Drug List. Not all products used to treat bleeding disorders are on the preferred drug list. If a doctor wantsRead More
Pennsylvania Advocacy Update – Action Items and Notes
Pennsylvania Advocacy Update Wednesday, August 3rd – 6:30pm – Zoom Meeting Action Items: Sign up to receive our action alerts here: https://p2a.co/udfkjur HELP Copays Act HR 5801: We continue toRead More
Vote for your Favorite World Hemophilia Day Collage!
To celebrate Bleeding Disorders Awareness Month and World Hemophilia Day, members of the WPBDF community were sent 4 x 4 canvases and were asked to let their creativity show! TheyRead More
Ward Calls for Legislative Action on Rare Disease Day
VIDEO 1 VIDEO 2 HARRISBURG – Sen. Judy Ward (R-30) called for legislative action on Monday, Feb. 28 – a date recognized across the world as Rare Disease Day – toRead More
WPBDF Celebrates Bleeding Disorders Awareness Month!
WPBDF is celebrating Bleeding Disorders Awareness Month (BDAM) this March! Each year, our community celebrates BDAM to bring much need attention to the cause of inheritable bleeding disorders. This monthRead More
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