Western PA Bleeding Disorders Foundation

Making PA a better place for those with bleeding disorders.

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Advocacy Ambassador Retreat

January 11, 2023 By Kara Dornish Leave a Comment

We are looking for individuals who are interested in supporting the advocacy efforts of the Pennsylvania Bleeding Disorders Foundations throughout the year. Do you have a desire to meet withRead More

Filed Under: Advocacy, Program

Washington Days Scholarship

January 3, 2023 By Kara Dornish Leave a Comment

NHF’s Washington Days is an opportunity for people affected by inherited blood disorders to advocate for issues important to them. Washington Days will take place in person March 8-10, 2023.Read More

Filed Under: Advocacy

How to Identify Copay Accumulators

December 15, 2022 By Kara Dornish Leave a Comment

Insurers use copay accumulators to accept third-party copay assistance for a patient’s medication without counting these payments towards a patient’s cost-sharing obligations, lulling patients into a false sense of securityRead More

Filed Under: Advocacy

“Copay Accumulators: Barriers to Patient Access and Legislative Fixes in PA.” – Webinar on December 10th

December 1, 2022 By Kara Dornish Leave a Comment

Join the NPF and IDF at 3:00 PM EST on Dec 12, 2022 for a free webinar “Copay Accumulators: Barriers to Patient Access and Legislative Fixes in PA.” Click hereRead More

Filed Under: Advocacy

Get in the Fight to Reform Prior Authorization & Step Therapy!

September 19, 2022 By Kara Dornish Leave a Comment

Click here to take action! Earlier this year, State Senate Bill 225 passed the Senate unanimously, bringing patients one step closer to having better access to care. Now, we’re racingRead More

Filed Under: Advocacy

Patient Stories Needed

August 11, 2022 By Kara Dornish Leave a Comment

As you might know, Pennsylvania’s Medicaid program has a Preferred Drug List. Not all products used to treat bleeding disorders are on the preferred drug list. If a doctor wantsRead More

Filed Under: Advocacy

Pennsylvania Advocacy Update – Action Items and Notes

August 5, 2022 By Kara Dornish Leave a Comment

Pennsylvania Advocacy Update Wednesday, August 3rd – 6:30pm – Zoom Meeting Action Items: Sign up to receive our action alerts here: https://p2a.co/udfkjur HELP Copays Act HR 5801: We continue toRead More

Filed Under: Advocacy

Vote for your Favorite World Hemophilia Day Collage!

April 7, 2022 By Kara Dornish 5 Comments

To celebrate Bleeding Disorders Awareness Month and World Hemophilia Day, members of the WPBDF community were sent 4 x 4 canvases and were asked to let their creativity show! TheyRead More

Filed Under: Advocacy, Making a Difference

Ward Calls for Legislative Action on Rare Disease Day

March 2, 2022 By Kara Dornish Leave a Comment

VIDEO 1 VIDEO 2  HARRISBURG – Sen. Judy Ward (R-30) called for legislative action on Monday, Feb. 28 – a date recognized across the world as Rare Disease Day – toRead More

Filed Under: Advocacy, Making a Difference

WPBDF Celebrates Bleeding Disorders Awareness Month!

March 1, 2022 By Kara Dornish Leave a Comment

WPBDF is celebrating Bleeding Disorders Awareness Month (BDAM) this March! Each year, our community celebrates BDAM to bring much need attention to the cause of inheritable bleeding disorders. This monthRead More

Filed Under: Advocacy, Making a Difference Tagged With: advocacy, bdam, bleeding disorders awareness month

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Western Pennsylvania Bleeding Disorders Foundation