Western PA Bleeding Disorders Foundation

Making PA a better place for those with bleeding disorders.

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Make Some Noise for World Hemophilia Day!

April 15, 2016 By Kara Dornish Leave a Comment

This information was provided by the National Hemophilia Foundation 2016 Red Tie Challenge – https://www.thunderclap.it/projects/38113-2016-red-tie-challenge

 

LET’S MAKE HISTORY! JOIN NHF’S THUNDERCLAP TODAY SO WE CAN REACH 500,000 PEOPLE ON APRIL 17, WORLD HEMOPHILIA DAY!

What is the Red Tie Challenge?

A movement created by the bleeding disorders community and the National Hemophilia Foundation (NHF) to start a conversation about inheritable bleeding disorders and support the global bleeding disorders community.

What are inheritable bleeding disorders?

Hemophilia, von Willebrand disease and rare factor deficiencies—all of which prevent the blood from clotting normally—can result in extended bleeding after injury, surgery, or trauma, and can be fatal if not treated effectively.

Why the red tie?

Because it symbolizes the blood ties that bind over 3 million Americans to our community.

What is Bleeding Disorders Awareness Month?

Our community, led by NHF, worked with the U.S. Department of Health and Human Services to have each March recognized as Bleeding Disorders Awareness Month so that we can: take these disorders—which affect millions—out of the shadows and into the light, alongside other chronic diseases; and raise funds for research and advocacy. March 2016 was the first-ever Bleeding Disorders Awareness Month!

Why should I take the Challenge?

To support our community and let us know we are not alone in the fight against inheritable bleeding disorders.

How do I take the Challenge?

1. Accept the challenge and get a red tie.

2. Get creative and show how you wear that tie!

3. Record your best tie look, pledge to support the bleeding disorders community, and challenge a few friends.

4. Post your video with #RedTieChallenge, challenge your followers, and think about making a donation at http://www.redtiechallenge.org/.

DOWNLOAD OUR INFOGRAPHIC for a loop-by-loop guide to taking the Challenge! https://redtiechallenge.org/how-do-you-wear-red-tie

CHANGE YOUR PROFILE PICTURE to show support for the bleeding disorders community by clicking here! https://twibbon.com/Support/red-tie-challenge

CLICK HERE to make a donation to the National Hemophilia Foundation. https://redtiechallenge.org/donate

HAVE FUN & THANK YOU FOR YOUR SUPPORT!

Filed Under: Advocacy, Making a Difference

By Kara Dornish

Kara is the Executive Director at WPCNHF and has been a part of the WPCNHF team since August 2013. Kara loves spending time outdoors hiking and exploring new places and trails with her son, Gus.

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