Tag: and those with the potential to menstruate

“I wish more OB/GYNs would be more educated about bleeding disorders. My gynecologist told me to get a hysterectomy, not knowing I had a bleeding disorder. If he had known about my VWD, I wouldn’t have had to make that choice and get that procedure.”

March 29, 2024

in Advocacy, Fundraiser, Making a Difference

Constance is diagnosed with von Willebrand Disease (VWD), and like many other women in the bleeding disorders community, did not receive her diagnosis until much

Source Bleeding Disorders In Women And Girls State Of The Science And CDC Collaborative Programs (Center For Disease Control And Prevention). (10)

“I finally learned that I was not a problem, and that women do have hemophilia.”

March 7, 2024

in Advocacy, Making a Difference

Marisa has mild hemophilia A, but she didn’t receive her diagnosis until she was 31 years old. Growing up as a teenager, and throughout her

Women’s Group

Help us assemble period packs that will be distributed to local schools and health clinics to help spread awareness of bleeding disorders. Join us for dinner,

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Tag: and those with the potential to menstruate

“I wish more OB/GYNs would be more educated about bleeding disorders. My gynecologist told me to get a hysterectomy, not knowing I had a bleeding disorder. If he had known about my VWD, I wouldn’t have had to make that choice and get that procedure.”

“I finally learned that I was not a problem, and that women do have hemophilia.”

Women’s Group

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