Community Highlight: Anna B.
in Advocacy
Up until Anna was 19 years old, she never noticed any abnormal bleeding symptoms. In 2014, she underwent oral surgery, which to her wasn’t a
Tag: girls
“I wish more OB/GYNs would be more educated about bleeding disorders. My gynecologist told me to get a hysterectomy, not knowing I had a bleeding disorder. If he had known about my VWD, I wouldn’t have had to make that choice and get that procedure.”
Constance is diagnosed with von Willebrand Disease (VWD), and like many other women in the bleeding disorders community, did not receive her diagnosis until much
“We do have symptoms, we are not going to be satisfied with, ‘Oh that’s your normal,’ anymore!”
Before Jessamyn received her bleeding disorder diagnosis, she had terrible, long, and miserable periods. Her family had a long history of bleeding issues, but once
“I finally learned that I was not a problem, and that women do have hemophilia.”
Marisa has mild hemophilia A, but she didn’t receive her diagnosis until she was 31 years old. Growing up as a teenager, and throughout her
Women’s Group
Help us assemble period packs that will be distributed to local schools and health clinics to help spread awareness of bleeding disorders.
Join us for dinner,