Diagnosis Was the First Step: One Mother’s Journey Through Hemophilia
Lynda is the mother of two boys, who were born just 15 months apart. Her first son didn’t show any signs of a bleeding disorder
Author: Jessica Lee
Finding Answers in a Family of Bleeding Disorders
Seth has been a part of the bleeding disorders community for most of his life, but for a long time, it was as a sibling.
Quintin’s Road to Diagnosis
Quintin has always lived an active lifestyle. From the age of seven, he played multiple sports, including football, baseball, and basketball. Like most kids, he
Claire’s Story: Empowering and Educating Others
At age 17, Claire’s life was flipped upside down following a tonsillectomy. Following the procedure, she experienced a severe hemorrhage and was ultimately diagnosed with
Get Involved During Bleeding Disorders Awareness Month
Looking for ways to get involved during Bleeding Disorders Awareness Month? Keep reading for simple ways you can make a difference this month!
Advocate:
Become an
Advocacy Alert: Ask Your State Representatives to Co-Sponsor Legislation Banning Co-Pay Accumulators
in Advocacy
On February 18, 2026, Representative Emily Kinkead formally introduced the Prescription Drug Copay Fairness Act (HB 2226) in the Pennsylvania House of Representatives. HB 2226
Rare but Not Alone: Amanda’s Story
For Miles, a bright, active five-and-a-half-year-old with a rare bleeding disorder, bruises come with the territory; especially now that he’s playing baseball and soccer. From
Tamara’s Journey: 50 Years Searching for Answers
Tamara spent most of her childhood and teenage years feeling like something was wrong with her, even though no one believed her. From the time she
Protect Patients from Non-Medical Switching
in Advocacy
As an Advocacy Ambassador, we are calling on you to take action and encourage your Pennsylvania House Representative members to co-sponsor vital bipartisan legislation that
Fight Medicaid Cuts!
Medicaid provides quality and affordable health care coverage for about 1 in 4 Americans, and 3 in 10 people with bleeding disorders. Without Medicaid, many lower-income