17th Annual Unite for Bleeding Disorders and 5K Run
The Unite for Bleeding Disorders Walk brings our community together. It unites families with bleeding disorders and chapters with family, friends, neighbors and coworkers to
Author: Jessica Lee
Travel Grant for NBDF’s 2025 BDC
Educational Grants are Available for NBDF’s 2025 Bleeding Disorders Conference
The Western Pennsylvania Bleeding Disorders Foundation (WPBDF) is pleased to offer Educational Grants for NBDF’s
Get Ready for Take A Bough – Event Details and More!
We're excited that you'll be joining us this weekend for the 12th Annual Take A Bough! To help you prepare for a fun and memorable
What Living With von Willebrand Disease Has Taught Me About Profits Taking Priority Over Patient Lives
Maria Shoemaker
Any person living with a chronic illness knows that we often must become our own advocates in the fight for our health and for
Y’all YETI for this?
After a long day of traveling across the country, we were greeted by smiling, familiar faces in the Portland, Oregon airport. Our friends (old and
Vote for your favorite 2024 World Hemophilia Canvas!
To celebrate Bleeding Disorders Awareness Month and World Hemophilia Day, members of the WPBDF community were sent 4 x 4 canvases and were asked to
“I wish more OB/GYNs would be more educated about bleeding disorders. My gynecologist told me to get a hysterectomy, not knowing I had a bleeding disorder. If he had known about my VWD, I wouldn’t have had to make that choice and get that procedure.”
Constance is diagnosed with von Willebrand Disease (VWD), and like many other women in the bleeding disorders community, did not receive her diagnosis until much
“We have struggled to be heard, but now is the time to speak up because they are starting to listen! The struggles were worth it, especially if I can advocate and prevent someone from going through all the pain and struggles that I have had to go through.”
At two years old, Cassie accidentally received her diagnosis of Type 1 von Willebrand Disease, severe, when she was scheduled for surgery. Before the procedure,
“We do have symptoms, we are not going to be satisfied with, ‘Oh that’s your normal,’ anymore!”
Before Jessamyn received her bleeding disorder diagnosis, she had terrible, long, and miserable periods. Her family had a long history of bleeding issues, but once
“I finally learned that I was not a problem, and that women do have hemophilia.”
Marisa has mild hemophilia A, but she didn’t receive her diagnosis until she was 31 years old. Growing up as a teenager, and throughout her