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“I wish more OB/GYNs would be more educated about bleeding disorders. My gynecologist told me to get a hysterectomy, not knowing I had a bleeding disorder. If he had known about my VWD, I wouldn’t have had to make that choice and get that procedure.”

March 29, 2024

Constance is diagnosed with von Willebrand Disease (VWD), and like many other women in the bleeding disorders community, did not

“We have struggled to be heard, but now is the time to speak up because they are starting to listen! The struggles were worth it, especially if I can advocate and prevent someone from going through all the pain and struggles that I have had to go through.”

March 27, 2024

At two years old, Cassie accidentally received her diagnosis of Type 1 von Willebrand Disease, severe, when she was scheduled

Travel Grant for NBDF’s 2024 BDC

March 22, 2024

Educational Grants are Available for NBDF’s 2024 Bleeding Disorders Conference The Western Pennsylvania Bleeding Disorders Foundation (WPBDF) is pleased to

“We do have symptoms, we are not going to be satisfied with, ‘Oh that’s your normal,’ anymore!”

March 21, 2024

Before Jessamyn received her bleeding disorder diagnosis, she had terrible, long, and miserable periods. Her family had a long history

WPBDF’s 2024 Academic Scholarship

March 12, 2024

Who is eligible for the WPBDF Scholarship? Any person or immediate family member of a person with hemophilia, von Willebrand Disease,

Source Bleeding Disorders In Women And Girls State Of The Science And CDC Collaborative Programs (Center For Disease Control And Prevention). (10)

“I finally learned that I was not a problem, and that women do have hemophilia.”

March 7, 2024

Marisa has mild hemophilia A, but she didn’t receive her diagnosis until she was 31 years old. Growing up as

WPBDF is looking for a Summer 2024 Intern!

February 5, 2024

Program and Events Coordinator Summer 2024 Internship Summary Responsible for assisting in planning and managing WPBDF’s programs and fundraising initiatives; including the

Request a Review of Denied Health Insurance Claims

January 29, 2024

Did you know you can request a review of denied health insurance claims online? If your health plan has denied a

Volunteer

November 29, 2023

There are many meaningful ways for you to invest your time, creativity, and talents to help WPBDF operate efficiently and

WPBDF is looking for a Spring 2024 Intern!

October 27, 2023

Program and Events Coordinator Spring 2024 Internship Western Pennsylvania Bleeding Disorders Foundation Summary Responsible for assisting in planning and managing WPBDF’s programs and fundraising

Unite with 4 Rare Kids!

August 31, 2023

Team 4 Rare Kids is made up of the team captains, Christy and Jason, and their children, Seth, Spencer, Xavier,

34 Patient Advocacy Organizations Call on Payer Matrix to Stop Misidentifying as a Patient Advocacy Company

August 24, 2023

By Identifying as a ‘Leading Patient Advocate,’ Payer Matrix Puts Patients in Jeopardy New York, NY (August 24, 2023) – 34 patient

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HFA’s Mild Matters Summit Application’s Open!

August 10, 2023

Hemophilia Federation of America is excited to once again offer their Mild Matters Summit, created for adults with mild bleeding

Blood, Sweat, and Lift Helps Raise Awareness for Bleeding Disorders!

August 7, 2023

On Saturday, August 6, 2023, Megan W. hosted a fundraiser for her senior project to help raise funds for the

Team Fox Factor

July 26, 2023

Eager to get involved with WPBDF, Ashley and her family joined the Unite for Bleeding Disorders Walk in 2022 with