Advocacy Stakeholder Meeting
VirtualRSVP by 3pm on Monday, November 20 by emailing rsvp@wpbdf.org. The zoom link to join the meeting will be sent to everyone who registers.
RSVP by 3pm on Monday, November 20 by emailing rsvp@wpbdf.org. The zoom link to join the meeting will be sent to everyone who registers.
Join us for an educational program on nutrition and staying active! Enjoy a visit from Santa, fun games, including dreidel, brunch buffet, exhibits, and more! This program is for members of WPBDF and family members living in the household. To register, send an email to rsvp@wpbdf.org or call the Foundation office at 724-741-6160 by Thursday, […]
This program is for members of WPBDF and family members living in the household. To register, send an email to rsvp@wpbdf.org or call the Foundation office at 724-741-6160. Let us know the number of people in your party and if there are any food allergies. If children will be attending, please include their ages.
Do you have questions about your new health plan? Be in the know! Join us for a discussion on issues you are facing and things to look out for in your new insurance plan. Ryan Faden, Director, Patient Access at the National Bleeding Disorders Foundation will be leading the discussion about insurance issues you may […]
Help us assemble period packs that will be distributed to local schools and health clinics to help spread awareness of bleeding disorders. Join us for dinner, jewelry making, and assembling period packs to spread awareness of bleeding disorders. This event is open to women and people with the potential to menstruate, who have bleeding disorders, and […]
Join the Western PA Bleeding Disorders Foundation and representatives from BioMarin to dive into the gene therapy treatment advancements for Hemophilia A. This education program offers you the opportunity to: Learn about Roctavian, the first and only FDA approved gene therapy for Hemophilia A Gain valuable information and deepen your understanding of Roctavian through a […]
You’re invited! Join us for a World Hemophilia Day 2024 generation celebration! When: Wednesday, April 17, 2024, 06:00 PM - 08:00 PM EDT Where: Monterey Bay Fish Grotto 1411 Grandview Ave Pittsburgh PA 15211 RSVP: Contact WPBDF! RSVP via email, rsvp@wpbdf.org, or calling the Foundation office at 724-741-6160. This community shares a connection that spans […]
The Western Pennsylvania Bleeding Disorders Foundation’s Education Weekend benefits patients and their families living with hemophilia, von Willebrand disease, and other rare bleeding disorders. All ages are welcome! When: April 26 - 28, 2024 Where: Seven Springs Mountain Resort 777 Waterwheel Dr., Seven Springs, PA 15622 Program Information: The weekend will include sessions for adults […]
We are looking for individuals who are interested in supporting the advocacy efforts of the Pennsylvania Bleeding Disorders Foundations throughout the year. Do you have a desire to meet with legislators to help influence decisions on policies that affect individuals and families living with bleeding disorders? If you answered yes, we would like you to […]
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