Category: Advocacy

Advocacy Alert: Ask Your State Representatives to Co-Sponsor Legislation Banning Co-Pay Accumulators

February 23, 2026

On February 18, 2026, Representative Emily Kinkead formally introduced the Prescription Drug Copay Fairness Act (HB 2226) in the Pennsylvania House of Representatives. HB 2226

Keeping Your Information Safe

August 28, 2025

in Advocacy

Dear WPBDF Community, Your privacy and peace of mind are very important to us. We want you to always feel safe, respected, and supported when you

Protect Patients from Non-Medical Switching

July 18, 2025

in Advocacy

As an Advocacy Ambassador, we are calling on you to take action and encourage your Pennsylvania House Representative members to co-sponsor vital bipartisan legislation that

One Full Award Up To $3,000 Per Degree Program Or Course Of Study Will Be Granted. Partial Awards May Be Granted. Individuals Who Have Received A Partial Award (less Than $3,000) From WPBDF In The (2)

Community Highlight: Anna B.

May 7, 2025

in Advocacy

Up until Anna was 19 years old, she never noticed any abnormal bleeding symptoms. In 2014, she underwent oral surgery, which to her wasn’t a

What Living With von Willebrand Disease Has Taught Me About Profits Taking Priority Over Patient Lives

April 25, 2024

in Advocacy, Making a Difference

Maria Shoemaker Any person living with a chronic illness knows that we often must become our own advocates in the fight for our health and for

When Copay Assistance Backfires on Patients

April 15, 2024

in Advocacy

Julie Appleby, KFF Health News March 15, 2024 In early 2019, Jennifer Hepworth and her husband were stunned by a large bill they unexpectedly received for

Vote for your favorite 2024 World Hemophilia Canvas!

April 11, 2024

in Advocacy, Making a Difference

To celebrate Bleeding Disorders Awareness Month and World Hemophilia Day, members of the WPBDF community were sent 4 x 4 canvases and were asked to

“I wish more OB/GYNs would be more educated about bleeding disorders. My gynecologist told me to get a hysterectomy, not knowing I had a bleeding disorder. If he had known about my VWD, I wouldn’t have had to make that choice and get that procedure.”

March 29, 2024

in Advocacy, Fundraiser, Making a Difference

Constance is diagnosed with von Willebrand Disease (VWD), and like many other women in the bleeding disorders community, did not receive her diagnosis until much

“We have struggled to be heard, but now is the time to speak up because they are starting to listen! The struggles were worth it, especially if I can advocate and prevent someone from going through all the pain and struggles that I have had to go through.”

March 27, 2024

in Advocacy, Fundraiser, Making a Difference

At two years old, Cassie accidentally received her diagnosis of Type 1 von Willebrand Disease, severe, when she was scheduled for surgery. Before the procedure,

“We do have symptoms, we are not going to be satisfied with, ‘Oh that’s your normal,’ anymore!”

March 21, 2024

in Advocacy, Fundraiser, Making a Difference

Before Jessamyn received her bleeding disorder diagnosis, she had terrible, long, and miserable periods. Her family had a long history of bleeding issues, but once

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Category: Advocacy

Advocacy Alert: Ask Your State Representatives to Co-Sponsor Legislation Banning Co-Pay Accumulators

Keeping Your Information Safe

Protect Patients from Non-Medical Switching

Community Highlight: Anna B.

What Living With von Willebrand Disease Has Taught Me About Profits Taking Priority Over Patient Lives

When Copay Assistance Backfires on Patients

Vote for your favorite 2024 World Hemophilia Canvas!

“I wish more OB/GYNs would be more educated about bleeding disorders. My gynecologist told me to get a hysterectomy, not knowing I had a bleeding disorder. If he had known about my VWD, I wouldn’t have had to make that choice and get that procedure.”

“We have struggled to be heard, but now is the time to speak up because they are starting to listen! The struggles were worth it, especially if I can advocate and prevent someone from going through all the pain and struggles that I have had to go through.”

“We do have symptoms, we are not going to be satisfied with, ‘Oh that’s your normal,’ anymore!”

Help Us Create a Better World for Those with Bleeding Disorders

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