Make an Impact by Writing Letters to Your Legislators
in Advocacy
Make an Impact by Writing Letters to Your Legislators
Click here to download a sample letter to send to your legislator. Be sure to customize your letter
Author: Janet Barone
#ThankfulThursday – Mindy
For #ThankfulThursday, we want to give a huge thank you to Mindy! Mindy has been involved with the Chapter since 2018 when her 2-year-old son, Ryker,
Save the Date! – World Hemophilia Day | April 17, 2020
World Hemophilia Day is an international awareness day for hemophilia and other bleeding disorders. It is held annually on April 17th. Since 1989, World Hemophilia
#ThankfulThursday – Eileen
This #ThankfulThursday we want to give a huge thank you to Eileen! Eileen became involved with WPCNHF when her four-year-old grandson, Conor, was born with severe Hemophilia
Education Day Rescheduled for August 29
in Program
This event was originally scheduled for Saturday, March 21, 2020. This event will now be held on Saturday, August 29, 2020.
Register by August 19, 2020
#ThankfulThursday – Kelly
Happy #ThankfulThursday! This Thursday, we are thankful for Kelly. Kelly is personally connected to WPCNHF because her 7-year-old son, Jaxon, has Severe Type A Hemophilia. She
Ask Me Why I Advocate – The Bobro Family
Meet our Advocacy Ambassadors Mason, Heather, and Marty. Their first experience advocating for the community took place in 2013 when they joined the Chapter for
#ThankfulThursday – Chris
It’s Thursday, and you know what that means! For #ThankfulThursday we want to say thank you to Chris. He has been a member of our
Letter from the Hemophilia Center of Western PA
in Wellness
If you have questions, do not hesitate to call the Center at any time. The Hemophilia Center of Western PA can be reached at 412-209-7280.
Washington Days 2020
in Advocacy
Prior to Washington Days, I wasn’t typically involved in the Bleeding Disorder Community and felt as though I ought to contribute to the movement. My