Author: Janet Barone

Pennsylvania Advocacy Update Wednesday, August 3rd - 6:30pm - Zoom Meeting Action Items: Sign up to receive our action alerts here: https://p2a.co/udfkjur HELP Copays Act HR 5801:

Fundraising Frenzy Week will officially begin on Monday, July 25th and run through Sunday, July 31st! Each day we will launch a series of fun,

Who is eligible for the WPBDF Scholarship?  Any person or immediate family member of a person with hemophilia, von Willebrand Disease, or other inherited bleeding disorder

WPBDF is seeking new board members. Any individual interested in serving on the board can fill out an application at: https://www.surveymonkey.com/r/52C3ZC9

The West Virginia Chapter is hosting their first ever Camp BleedSTEM for teens with bleeding disorders who are interested in Science, Tech, Engineering, and Math.

Join us on Saturday, May 14 for our Women’s Retreat! This will be a special day of interaction and education with topics on aging, being

To register email rsvp@wpbdf.org or call 724-741-6160.

Buildings and landmarks throughout Pittsburgh were lit red on Sunday, April 17, 2022, to celebrate World Hemophilia Day! This day is celebrated around the world

To celebrate Bleeding Disorders Awareness Month and World Hemophilia Day, members of the WPBDF community were sent 4 x 4 canvases and were asked to

WPBDF is partnering with The Pennsylvania Rare Disease Advisory Council (PARDAC) to promote participation in the PA Rare Disease Survey. The survey results will help