Category: Advocacy

Do you use copay assistance to afford treatment for your bleeding disorder? Have you faced high out-of-pocket costs for your treatment? If you answered yes

We're excited to announce the Hemophilia SNF Access Act was included in the end-of-year omnibus federal spending and economic relief package passed by Congress on

Harrisburg, PA – As the Wolf Administration pushes back on federal attempts to dismantle the Affordable Care Act amid a pandemic and the start of flu season,

House Bill 2387 Signed in House, May 28, 2020 Signed in Senate, May 28, 2020 Presented to the Governor, May 28, 2020 Approved by the Governor, May 29, 2020   We are happy to let you know on Friday,

The Western and Eastern PA Hemophilia Foundations are coming together for a Call to Advocacy! Join us for a Zoom Meeting on Thursday, May 14th

HARRISBURG/PHILADELPHIA/PITTSBURGH – Friday, April 17, 2020 is “World Hemophilia Day,” which is an annual international awareness day for hemophilia and other bleeding disorders.  Since 1989,

Make an Impact by Writing Letters to Your Legislators Click here to download a sample letter to send to your legislator. Be sure to customize your letter

Prior to Washington Days, I wasn’t typically involved in the Bleeding Disorder Community and felt as though I ought to contribute to the movement. My

In an effort to make decisions with the well being of our community and patients in mind, we have continued to monitor the rapidly changing

Advocacy Ambassador Program To help drive the efforts of the Pennsylvania Hemophilia Foundations, we are launching an Advocacy Ambassador Program. Advocacy Ambassadors are volunteers in a