Category: Making a Difference

WPBDF is partnering with The Pennsylvania Rare Disease Advisory Council (PARDAC) to promote participation in the PA Rare Disease Survey. The survey results will help

VIDEO 1 VIDEO 2  HARRISBURG – Sen. Judy Ward (R-30) called for legislative action on Monday, Feb. 28 – a date recognized across the world as Rare Disease

WPBDF is celebrating Bleeding Disorders Awareness Month (BDAM) this March! Each year, our community celebrates BDAM to bring much need attention to the cause of

Yesterday, Jason Miller (community member, volunteer, and Starbucks Manager) and Lukas McGowan (Starbucks Manager) delivered exciting news to the WPBDF Staff! WPBDF has been chosen

Join the National AIDS Memorial and their partners on World AIDS Day with powerful voices for a series of inspiring and insightful conversations. 2021 marks

Urge your Pennsylvania state legislator to ensure all co-pays count and support new bills aimed at reforming the harmful insurance practices of prior authorization and

  https://youtu.be/7ExMnOJs-h8 Urge your state senator to support Senate Bill 196, which would help Pennsylvanians afford the treatments they need by ensuring all co-pay assistance counts towards

WPCNHF is proud to share this proclamation from Governor Tom Wolf proclaiming April 17, 2021 World Hemophilia Day in Pennsylvania!  

Thank you to everyone who attended our bingo fundraiser last night! We are happy to report over $700 was raised for the bleeding disorders community

Participate TODAY in a Community Survey on Bleeding Disorder Research Priorities We are working to define those areas of research for today that can make