Category: Advocacy

Join the NPF and IDF at 3:00 PM EST on Dec 12, 2022 for a free webinar “Copay Accumulators: Barriers to Patient Access and Legislative Fixes

Click here to take action! Earlier this year, State Senate Bill 225 passed the Senate unanimously, bringing patients one step closer to having better access to

As you might know, Pennsylvania’s Medicaid program has a Preferred Drug List. Not all products used to treat bleeding disorders are on the preferred drug

Pennsylvania Advocacy Update Wednesday, August 3rd - 6:30pm - Zoom Meeting Action Items: Sign up to receive our action alerts here: https://p2a.co/udfkjur HELP Copays Act HR 5801:

To celebrate Bleeding Disorders Awareness Month and World Hemophilia Day, members of the WPBDF community were sent 4 x 4 canvases and were asked to

VIDEO 1 VIDEO 2  HARRISBURG – Sen. Judy Ward (R-30) called for legislative action on Monday, Feb. 28 – a date recognized across the world as Rare Disease

WPBDF is celebrating Bleeding Disorders Awareness Month (BDAM) this March! Each year, our community celebrates BDAM to bring much need attention to the cause of

Today Governor Tom Wolf announced his proposed budget plan. We are happy to see the Hemophilia line item separated out at level funding of $959,000.

This program is for members of the Western and Eastern Pennsylvania Bleeding Disorders Foundations. Whether you are a seasoned advocate or are just getting started,

If you would like to participate in NHF's Washington Days and join us in attending legislative meetings to advocate for the bleeding disorders community, please