Ward Calls for Legislative Action on Rare Disease Day
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HARRISBURG – Sen. Judy Ward (R-30) called for legislative action on Monday, Feb. 28 – a date recognized across the world as Rare Disease
Category: Advocacy
WPBDF Celebrates Bleeding Disorders Awareness Month!
WPBDF is celebrating Bleeding Disorders Awareness Month (BDAM) this March! Each year, our community celebrates BDAM to bring much need attention to the cause of
Advocacy Update – Governor Wolf’s Proposed Budget
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Today Governor Tom Wolf announced his proposed budget plan. We are happy to see the Hemophilia line item separated out at level funding of $959,000.
Advocacy Ambassador Training – February 23rd
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This program is for members of the Western and Eastern Pennsylvania Bleeding Disorders Foundations. Whether you are a seasoned advocate or are just getting started,
NHF’s Washington Days
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If you would like to participate in NHF's Washington Days and join us in attending legislative meetings to advocate for the bleeding disorders community, please
No Surprises Act In Effect January 1
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The No Surprises Act went into effect on January 1. Patients with health insurance will no longer receive as many unexpected medical charges from emergency
Advocacy Stakeholder Meeting
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If you would like to sign up to receive action alerts from the Pennsylvania Bleeding Disorders Foundations you can do so here: https://p2a.co/UDfKJur
You can participate
Virtual World AIDS Day National Observance on December 1
Join the National AIDS Memorial and their partners on World AIDS Day with powerful voices for a series of inspiring and insightful conversations. 2021 marks
McEachin, Davis Introduce Bipartisan Legislation to Prevent Increased Prescription Drug Costs
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Washington, D.C. – Today, Congressman A. Donald McEachin (VA-04) and Congressman Rodney Davis (IL-13) introduced the Help Ensure Lower Patient (HELP) Copays Act to protect patients
Pennsylvania Passes Budget with the Hemophilia Line Item Fully Funded
in Advocacy
We are excited to announce that on Wednesday, June 30th Governor Wolf signed the 2021 – 2022 State Budget that passed the Pennsylvania General Assembly