Finding Answers in a Family of Bleeding Disorders
Seth has been a part of the bleeding disorders community for most of his life, but for a long time, it was as a sibling.
Category: Fundraiser
Quintin’s Road to Diagnosis
Quintin has always lived an active lifestyle. From the age of seven, he played multiple sports, including football, baseball, and basketball. Like most kids, he
Claire’s Story: Empowering and Educating Others
At age 17, Claire’s life was flipped upside down following a tonsillectomy. Following the procedure, she experienced a severe hemorrhage and was ultimately diagnosed with
Rare but Not Alone: Amanda’s Story
For Miles, a bright, active five-and-a-half-year-old with a rare bleeding disorder, bruises come with the territory; especially now that he’s playing baseball and soccer. From
Why I Walk – Lenore
in Fundraiser
Lenore and her family have been a part of the Unite for Bleeding Disorders Walk since 2009, and this year, she’s excited to walk alongside
“I wish more OB/GYNs would be more educated about bleeding disorders. My gynecologist told me to get a hysterectomy, not knowing I had a bleeding disorder. If he had known about my VWD, I wouldn’t have had to make that choice and get that procedure.”
Constance is diagnosed with von Willebrand Disease (VWD), and like many other women in the bleeding disorders community, did not receive her diagnosis until much
“We have struggled to be heard, but now is the time to speak up because they are starting to listen! The struggles were worth it, especially if I can advocate and prevent someone from going through all the pain and struggles that I have had to go through.”
At two years old, Cassie accidentally received her diagnosis of Type 1 von Willebrand Disease, severe, when she was scheduled for surgery. Before the procedure,
“We do have symptoms, we are not going to be satisfied with, ‘Oh that’s your normal,’ anymore!”
Before Jessamyn received her bleeding disorder diagnosis, she had terrible, long, and miserable periods. Her family had a long history of bleeding issues, but once
Volunteer
There are many meaningful ways for you to invest your time, creativity, and talents to help WPBDF operate efficiently and meet our goals. Time spent
Blood, Sweat, and Lift Helps Raise Awareness for Bleeding Disorders!
On Saturday, August 6, 2023, Megan W. hosted a fundraiser for her senior project to help raise funds for the Western Pennsylvania Bleeding Disorders Foundation