Category: Making a Difference

Emily and her husband Pat are parents to almost 2 year old Conor who has severe Hemophilia A.  He was diagnosed at birth. Emily remembers

Team Jaxson was formed in August 2014, two months after Jaxson was diagnosed with Severe Type A Hemophilia. The Bakers heard about the Hemophilia Walk

Your access to healthcare is at risk. The Senate is currently considering another bill to repeal the Affordable Care Act (ACA), sponsored by Sens. Cassidy and

The Senate Bill, the Better Care Reconciliation Act, (BCRA) Will Hurt the Bleeding Disorders Community Call TODAY and tell your Senator to vote NO on BCRA Senate

Help Us Fight to Maintain Hemophilia Program Funding in the 2017-18 State Budget   There are approximately 20,000 patients with hemophilia and thousands more with other inherited

The House of Representatives may be voting as early as tomorrow on a revived version of the American Health Care Act (AHCA), the bill to repeal and

WE ASKED FOR YOUR HELP LAST WEEK AND YOU ROCKED IT! YOUR HELP IS NEEDED AGAIN – HTC FUNDING COULD BE IN JEOPARDY! President Trump sent Congress a

The House of Representatives will be voting this afternoon on the American Health Care Act (AHCA), the bill to repeal and replace the ACA. Final

March 10, 2017 The Philadelphia Sunday Val Bias’ entire life changed when he heard the loud noise come from the bathroom. The year was 1988, but

More than three million Americans have a bleeding disorder—such as hemophilia, von Willebrand disease or rare factor deficiencies—which: prevents their blood from clotting normally; can